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X-WR-CALDESC:Events for Medics For Rare Disease
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DTSTART;TZID=Europe/London:20260902T080000
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SUMMARY:Future for Rare Online Webinar
DESCRIPTION:Join our friends at Genetic Alliance UK for this online webinar exploring the future of rare conditions policy across the UK. \nThe Future for Rare campaign is gathering views from people living with rare conditions\, families\, healthcare professionals\, researchers\, charities and industry to help shape what comes after the current UK Rare Diseases Framework. This webinar is an opportunity to hear about the campaign\, learn how you can get involved\, and contribute to conversations that could influence future policy. \nWho should attend?\n* Healthcare professionals\n* Researchers\n* People living with rare conditions and families\n* Patient organisations\n* Anyone with an interest in improving rare disease care \n📅 Date: Wednesday 2 September 2026\n💻 Location: Online\n🎟️ Registration: Via Eventbrite
URL:https://www.m4rd.org/event/future-for-rare-online-webinar/
LOCATION:ONLINE
CATEGORIES:Policy & Advocacy,Webinar
ATTACH;FMTTYPE=image/webp:https://www.m4rd.org/wp-content/uploads/2026/07/image.webp
ORGANIZER;CN="Genetic Alliance UK":MAILTO:contactus@geneticalliance.org.uk
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260914
DTEND;VALUE=DATE:20260916
DTSTAMP:20260716T081112Z
CREATED:20260716T081112Z
LAST-MODIFIED:20260716T081112Z
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SUMMARY:2nd European Congress on Rare Diseases & Orphan Drugs
DESCRIPTION:The 2nd European Congress on Rare Diseases & Orphan Drugs\, organised by C2P Forum\, brings together researchers\, clinicians\, industry leaders\, policymakers and patient advocates to explore the latest advances in rare disease research\, diagnosis\, treatment and orphan drug development. The two-day programme includes keynote presentations\, panel discussions\, workshops\, networking opportunities and an exhibition showcasing emerging technologies and therapies. The congress aims to encourage collaboration and accelerate progress towards improving outcomes for people living with rare diseases. \nWho should attend?\n* Healthcare professionals\n* Researchers and academics\n* Pharmaceutical and biotech professionals\n* Patient advocacy organisations\n* Policymakers\n* Anyone with an interest in rare diseases and orphan drug development \nFind out more and register\nVisit the official event website:\n2nd European Congress on Rare Diseases & Orphan Drugs
URL:https://www.m4rd.org/event/2nd-european-congress-on-rare-diseases-orphan-drugs/
LOCATION:Renaissance London Heathrow Hotel\, London\, United Kingdom
CATEGORIES:Conference
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ORGANIZER;CN="C2P Forum":MAILTO:contact@c2pforum.com
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DTSTART;TZID=Europe/London:20260924T120000
DTEND;TZID=Europe/London:20260924T140000
DTSTAMP:20260715T092555Z
CREATED:20260715T092555Z
LAST-MODIFIED:20260715T092555Z
UID:15111-1790251200-1790258400@www.m4rd.org
SUMMARY:Corporate Partner Connect 2026 | Exclusive Partner Event
DESCRIPTION:Please note: This event is by invitation and is exclusively for current Medics for Rare Disease corporate partners and sponsors. \nCorporate Partner Connect is an opportunity to:\n* Hear the latest updates from Medics for Rare Disease.\n* Learn more about our #RareAware plans and upcoming opportunities.\n* Meet and network with fellow corporate partners.\n* Share ideas and discuss how we can work together to improve education and awareness of rare diseases. \nWe look forward to welcoming representatives from our valued partner organisations for an open\, collaborative discussion. \nIf your organisation is already a corporate partner but you haven’t received an invitation\, please get in touch. \nInterested in becoming a corporate partner? We’d love to hear from you. Please contact us to explore partnership opportunities.
URL:https://www.m4rd.org/event/corporate-partner-connect-2026-exclusive-partner-event/
LOCATION:ONLINE
CATEGORIES:M4RD,Networking
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2026/07/Online-partner-meeting2.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261007
DTEND;VALUE=DATE:20261008
DTSTAMP:20260715T093117Z
CREATED:20260715T093117Z
LAST-MODIFIED:20260715T093117Z
UID:15114-1791331200-1791417599@www.m4rd.org
SUMMARY:RAREsummit26
DESCRIPTION:RAREsummit26 (Partner Event) \n📅 Date: Wednesday 7 October 2026\n📍 Location: Wellcome Genome Campus\, Cambridge (with hybrid livestream option) \nWe’re delighted to share RAREsummit26\, hosted by our friends at CamRARE (Cambridge Rare Disease Network). \nBringing together patients\, advocates\, clinicians\, researchers\, industry and policymakers\, RAREsummit26 is a unique opportunity to make new connections\, exchange ideas and explore how collaboration can accelerate progress for people living with rare diseases. \nThis year’s summit features:\n* Inspiring keynote presentations\n* Panel discussions and interactive workshops\n* Networking opportunities\n* Research posters and exhibition space\n* Hybrid attendance options for those joining remotely \nWhether you’re working in healthcare\, research\, patient advocacy or the wider rare disease community\, RAREsummit26 offers an excellent opportunity to learn\, connect and collaborate.
URL:https://www.m4rd.org/event/raresummit26/
LOCATION:Wellcome Genome Campus Conference Centre
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2026/07/RS26_logo_colour_offset-scaled-1.png
ORGANIZER;CN="CRDN":MAILTO:jo@camraredisease.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261026
DTEND;VALUE=DATE:20261029
DTSTAMP:20260716T081626Z
CREATED:20260716T081626Z
LAST-MODIFIED:20260716T081626Z
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SUMMARY:World Orphan Drug Congress Europe 2026
DESCRIPTION:The World Orphan Drug Congress Europe returns to Amsterdam from 26–28 October 2026\, bringing together the global rare disease and orphan drug community for three days of collaboration\, innovation and knowledge sharing. \nRecognised as one of the world’s leading rare disease conferences\, the event welcomes patient organisations\, researchers\, clinicians\, regulators\, policymakers\, pharmaceutical and biotech companies\, investors and industry leaders. The programme covers the full orphan drug development pathway\, including cell and gene therapies\, genetic testing\, clinical trials\, market access\, regulatory affairs\, real-world evidence and patient engagement. \nPre-congress workshops take place on 26 October\, followed by the main congress on 27–28 October at the RAI Congress Centre\, Amsterdam. The event provides valuable opportunities to learn about the latest advances in rare disease research\, connect with international experts and explore innovative approaches to improving diagnosis\, treatment and access to therapies. \nLocation: RAI Congress Centre\, Amsterdam\, Netherlands\nDates: 26–28 October 2026\nFormat: In-person
URL:https://www.m4rd.org/event/world-orphan-drug-congress-europe-2026/
LOCATION:RAI Congress Centre\, Amsterdam\, Amsterdam\, Netherlands
CATEGORIES:Conference,Global Health,Networking,Policy & Advocacy,Public Engagement,Rare Disease
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