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X-WR-CALNAME:Medics For Rare Disease
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X-WR-CALDESC:Events for Medics For Rare Disease
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DTSTART;TZID=Europe/London:20221020T180000
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DTSTAMP:20260406T144818
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UID:10112-1666288800-1666294200@www.m4rd.org
SUMMARY:Young People’s Genomics Café
DESCRIPTION:Are you a young person interested in finding out more about genomics and health\, or affected by a rare or genetic condition? \nChromosomes!\nDr Andrew Fry\, Clinical Senior Lecturer in Medical Genetics\, Cardiff University \nAn Introduction to Pharmacogenomics\nSophie Harding\, Pharmacogenomics Lead\, Royal Pharmaceutical Society of GB \nMedics4Rare Diseases\nLucy McKay\, CEO Medics4RareDiseases \nEveryone is welcome to this FREE online event. \nRegister for Virtual Café: https://tinyurl.com/34ehzs74
URL:https://www.m4rd.org/event/young-peoples-genomics-cafe/
LOCATION:LIVE STREAM
CATEGORIES:Child and Young Person,Genetics,Genomics,Rare Diseases,Webinar
ATTACH;FMTTYPE=image/webp:https://www.m4rd.org/wp-content/uploads/2022/09/https-cdn.evbuc_.com-images-353431989-221628550545-1-original.20220913-144210.webp
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210611T120000
DTEND;TZID=Europe/London:20210611T133000
DTSTAMP:20260406T144818
CREATED:20210416T093427Z
LAST-MODIFIED:20210416T093427Z
UID:7826-1623412800-1623418200@www.m4rd.org
SUMMARY:RCPH-BPSU series: Type 2 Diabetes in children and young people
DESCRIPTION:There is growing evidence that the increase in childhood obesity has resulted in cases of Type 2 diabetes being diagnosed in younger age groups.\nAlthough the incidence of Type 2 diabetes is increasing\, the condition is still relatively rare in children\, and therefore the symptoms and clinical presentation of it in children may not always be clear to paediatricians who have not encountered the disease in children before. This can cause late and misdiagnoses of the condition and this often causes additional emotional and financial burdens on the patients and their families. \nIn this webinar\, Prof Julian Hamilton-Sheild and Prof Timothy Barrett will present the findings of the 2015-16 BPSU study.
URL:https://www.m4rd.org/event/rcph-bpsu-series-type-2-diabetes-in-children-and-young-people/
LOCATION:ONLINE
CATEGORIES:Child and Young Person,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/04/Untitled-design-4.png
ORGANIZER;CN="RCPCH-BPSU":MAILTO:events@rcpch.ac.uk
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20190710T133000
DTEND;TZID=Europe/London:20190710T170000
DTSTAMP:20260406T144818
CREATED:20190529T195130Z
LAST-MODIFIED:20190606T210007Z
UID:5054-1562765400-1562778000@www.m4rd.org
SUMMARY:BPSU Tea Party
DESCRIPTION:The British Paediatric Surveillance Unit invites you to this year’s event to enjoy afternoon tea and cakes\, hear young people speak about their experience of living with rare disease and visit informational stands.\nThe BPSU rare disease tea party will bring together stakeholders from across the rare disease community to hear young people and patient advocates speak about their experience of living with rare disease and working in the rare disease field. \nThis event is intended to be an informal networking opportunity with children and young people and carers\, healthcare professionals\, researchers and policy makers.
URL:https://www.m4rd.org/event/bpsu-tea-party/
LOCATION:Royal College of Paediatrics and Child Health\, 5-11 Theobalds Road\, London\, WC1X 8SH\, United Kingdom
CATEGORIES:Child and Young Person,Family Day,Networking,paediatric,Patient Information Day,Rare Diseases
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2019/05/unnamed-2-e1559854793637.jpg
ORGANIZER;CN="BPSU":MAILTO:enquiries@rcpch.ac.uk
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