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X-WR-CALNAME:Medics For Rare Disease
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X-WR-CALDESC:Events for Medics For Rare Disease
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UID:11098-1689769800-1689778800@www.m4rd.org
SUMMARY:Rare @ Manchester - 1st Anniversary Celebration Event
DESCRIPTION:We are thrilled to invite you to this special event to mark the one-year anniversary of the Manchester Rare Conditions Centre. \nThis event will highlight the significant strides Manchester has made in improving the lives of individuals with rare conditions. \nThe aim of this celebration is to showcase the progress the centre has made in the last year\, with speakers from our specialist clinical services\, our research theme and academy. \nFull agenda to be announced. \nDue to limited capacity we encourage you to confirm your attendance as soon as possible.
URL:https://www.m4rd.org/event/rare-manchester-1st-anniversary-celebration-event/
LOCATION:Citylabs 1.0 Nelson Street Manchester M13 9NQ
CATEGORIES:Conference,Rare Diseases
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2023/07/manchester-rare-conditions-centre.jpeg
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DTSTART;TZID=Europe/London:20230720T133000
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DTSTAMP:20260411T000159
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UID:10998-1689859800-1689876000@www.m4rd.org
SUMMARY:Medicine and Me: Young sudden cardiac death
DESCRIPTION:Medicine and Me meetings aim to provide an outline of current best practice and future updates for important conditions. They give a direct voice to patients and carers\, enabling them to discuss their concerns and reflections on the impact of diagnosis\, investigation and management. Physicians\, surgeons and indeed all healthcare professionals continue to learn from and be inspired to improve care by hearing directly from patients. \nIn the UK alone\, 12 seemingly healthy people under the age of 35 die from undiagnosed cardiac conditions every week\, otherwise known as young sudden cardiac death. \nJoin us for an event\, run in association with the charity Cardiac Risk in the Young\, to learn about the latest developments in our understanding of the causes and prevention of young sudden cardiac death\, and how to ensure the best quality of life for those living with diagnosed cardiac conditions. \nParticipants will have the opportunity to hear from some of the world’s leading experts in inherited cardiac conditions and ask questions about their experiences providing support and dealing with affected families. \nAttend this event to gain an understanding of: \n\nThe causes and prevention of young sudden cardiac death\nMethods for early identification of high-risk individuals\nProviding optimal care for patients with diagnosed cardiac conditions\nHow to manage and support affected families\nAreas where further research is needed\n\nGet your tickets here 
URL:https://www.m4rd.org/event/medicine-and-me/
LOCATION:Royal Society of Medicine\, 1 Wimpole Street\, London\, W1G 0AE\, United Kingdom
CATEGORIES:Conference,M4RD
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