BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Medics For Rare Disease - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Medics For Rare Disease
X-ORIGINAL-URL:https://www.m4rd.org
X-WR-CALDESC:Events for Medics For Rare Disease
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/London
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20221030T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20230326T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20231029T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20240331T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20241027T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231009
DTEND;VALUE=DATE:20231011
DTSTAMP:20260410T190100
CREATED:20230807T094529Z
LAST-MODIFIED:20230807T094711Z
UID:11200-1696809600-1696982399@www.m4rd.org
SUMMARY:Annual Lafora Disease Science Symposium
DESCRIPTION:Lafora disease researchers and clinicians at Instituto delle Scienze Neurologiche di Bologna (ISNB) IRCCS will host the 8th Annual Lafora Disease Science Symposium in Bologna\, Italy from October 9-10\, 2023. \nChelsea’s Hope is hosting registration. Please register individually to attend the in-person Symposium. If you can’t make it in person\, we encourage you to register and indicate your interest in receiving the recordings after the conference.
URL:https://www.m4rd.org/event/annual-lafora-disease-science-symposium/
LOCATION:Bologna
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2023/08/Screenshot-2023-08-07-at-10.44.49.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231012T090000
DTEND;TZID=Europe/London:20231012T173000
DTSTAMP:20260410T190100
CREATED:20230628T140925Z
LAST-MODIFIED:20230628T141426Z
UID:11079-1697101200-1697131800@www.m4rd.org
SUMMARY:CamRare's RAREsummit23
DESCRIPTION:A platform for change\nCamRARE’s RAREsummit23 welcomes and unites patients\, advocates\, experts and leaders to address the challenges faced by people affected by rare diseases. By reflecting on progress made\, showcasing best practices and new developments\, sharing knowledge and experience\, and finding ways to work together\, the journey towards better diagnosis\, treatment and support for patients and their families is smoother and more certain.\nOn Thursday 12 October 2023\, we will gather at the Wellcome Genome Campus for our 6th RAREsummit – a flagship CamRARE event gathering 300 great minds in rare diseases to make connections\, exchange ideas and openly debate possibilities. \n“RAREsummit has turned my growing curiosity in Rare Diseases into a reality. I was both able to connect with some amazing people and be inspired by the passion and activity going on throughout this community.”\nThrough RAREsummit23\, we aim: \n\nto raise awareness of rare conditions and their impact\nto showcase exemplars of impactful collaboration between stakeholders\, with patients at the heart\nto bring all stakeholders in rare diseases together as equals to drive patient group\, researcher and industry partnering opportunities\nto give stakeholders the knowledge and skills to ensure their practices involve patients and their advocates as essential partners\nto improve the lives of rare disease patients by working together with greater efficiency\, collaboration and success\n\nWhy attend? Learn something new\, be inspired\, meet people\, add value\, collaborate.\n\nBuild your network with 300 biotechnology\, pharma and startup leaders\, innovators\, patients and patient group CEOs\, healthcare professionals\, policy-makers\, CROs\, researchers\, investors and students assembled.\nMeet\, mingle and hold crucial discussions with potential partners from local and global arenas.\nTake away practical strategies and fresh ideas.\nParticipate in interactive workshops and Dragon’s Den style tech solutions sessions as an innovator or an audience ‘judge’.\nHear from and put questions to key opinion leaders from the patient\, scientific\, industry\, medical\, and policy sectors.\n\nThemes will include:\n\nProgress in diagnostics – where are we now? What does the future hold? Exploring a broad range of diagnostic tools and strategies\nYoung Voices – have we listened? Does the Rare Disease Framework reflect what young people want and need?\nRare researchers’ poster and pitch – showcasing novel academic and translational research\, the bedrock of better understanding.\nExploring funding challenges and opportunities for this vital research\nCan we fix the everyday challenges of rare patients with technology? In collaboration with Eastern Academic Health Science Network – a live Dragon’s Den Tech solution pitching session.\nTurning the research paradigm on its head. Showcasing patient-led research.\nGene therapies – where are we now and what does the future hold?\nPractical workshops – themes emerging …get in touch if you have a proposal or a wishlist!\nNetworking\, Patient Journey and research poster gallery\, exhibits\n\nBook now!
URL:https://www.m4rd.org/event/camrares-raresummit23/
LOCATION:Prague
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2023/06/raresummit23.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231013
DTEND;VALUE=DATE:20231015
DTSTAMP:20260410T190100
CREATED:20230627T145330Z
LAST-MODIFIED:20230627T145330Z
UID:11074-1697155200-1697327999@www.m4rd.org
SUMMARY:The BHD Symposium
DESCRIPTION:We are delighted to be hosting our first hybrid BHD Symposium on 13 and 14 October 2023 in London\, UK\, and online. \nThis is the first time we will be bringing together the whole BHD research community in person since 2015. The event will showcase the current research into BHD and folliculin and we hope it will provide a space for new collaborations to accelerate future research. \nThis year’s symposium is a hybrid event with the aim to reach as many people across the world as possible. You can book tickets to join us either online or in person in London\, UK. \nEmail us with any questions at bhdsymposia@myrovlytistrust.org
URL:https://www.m4rd.org/event/the-bhd-symposium/
LOCATION:Wellcome Collection 183 Euston Road London NW1 2BE
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2023/06/bhd-symposium-.jpeg
END:VEVENT
END:VCALENDAR