BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Medics For Rare Disease - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://www.m4rd.org
X-WR-CALDESC:Events for Medics For Rare Disease
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/London
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20230326T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20231029T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20240331T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20241027T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20251026T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20240515T080000
DTEND;TZID=Europe/London:20240516T170000
DTSTAMP:20260410T074817
CREATED:20240202T124604Z
LAST-MODIFIED:20240202T124658Z
UID:11475-1715760000-1715878800@www.m4rd.org
SUMMARY:ECRD 2024
DESCRIPTION:The 12th European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest\, patient-led\, rare disease policy-shaping event in which collaborative dialogue\, learning and conversation takes place\, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place. \nLeading\, inspiring and engaging all stakeholders to take action\, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with over 1000 stakeholders in the rare disease community – patient advocates\, policy makers\, researchers\, clinicians\, healthcare\nprofessionals\, healthcare industry representatives\, academics\, payers\, regulators and Member State representatives. \nWith the European elections approaching\, at the inception of a new term for the European Parliament and the European Commission\, the 12th ECRD becomes a key driver in shaping policies to address the unique needs of people with rare diseases and their families over the next\nfive years. \nThe ECRD’s value is underscored by its alignment with EURORDIS’ priorities for the EU elections\, evident in its comprehensive six-session agenda.\nWhat sets the ECRD apart is its integration into broader rare disease policy and healthcare ecosystem efforts. Rooted in the recommendations of the Rare 2030 Foresight Study\, the ECRD continues to build on this comprehensive review of the strategy for rare diseases and shape the thinking of policymakers and the community\, encouraging a more streamlined and proactive approach to addressing the unmet needs of people living with rare diseases and the persisting inequalities across Europe. \nSave the Date: 15 – 16 May 2024\, online and at The Square venue in Brussels
URL:https://www.m4rd.org/event/11475/
LOCATION:The Square Venue\, Brussels
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2024/02/Twitt.Linkd_.Faceb_Network-with-your-peers.png
END:VEVENT
END:VCALENDAR