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UID:13601-1752580800-1752588000@www.m4rd.org
SUMMARY:Our Voices\, Our Stories: Lived Experiences of Genomic Testing
DESCRIPTION:Genomic testing is a complex clinical topic\, with new developments and discoveries taking place at a rapid rate. Often\, we focus predominantly on the clinical and scientific aspects of genomics\, but it’s crucial to remember that each advancement has life-changing impacts on people across the world. \nIn this webinar\, we’ll be exploring the lived experiences of people who have gone through genomic testing\, research and diagnosis. Each of the participants you will hear from has a unique and impactful story\, and will provide powerful insights into the human side of the genomic testing process. With experiences across cancer and rare disease\, from parent carers through to those diagnosed as adults\, we’ll be shining a light on the emotions involved in testing\, diagnosis and treatment. Not only will you get to hear these compelling stories – you’ll also have the opportunity to ask questions and learn more about the importance of patient and public involvement in genomic testing and research. \nThe webinar will be co-chaired by two clinical experts in genomics – Dr Hannah Titheradge\, Consultant Clinical Geneticist at Birmingham Women’s and Children’s Hospital (BWC)\, and Emma Douglas\, Genetics Clinical Research Practitioner at BWC. Hannah has years of experience working in clinical genetics and is the Rare Disease Lead at BWC\, whilst Emma is an expert in genetic research and is currently working towards her PhD on the patient experience of genomic testing. \nThis session is open to everyone\, whether you’re a patient\, healthcare professional\, or an interested member of the public. If you’ve got lived experience yourself or any questions\, you are welcome to share during the Q&A. For healthcare professionals\, the session promises to provide you with a better understanding of the crucial patient perspective to better support those in your clinic. \nIf you have any queries about the event\, please get in touch. If you’ve got any accessibility requirements\, please let us know during the registration process. \nAnd if you’re interested but aren’t able to attend on the date itself\, make sure to still register and we will send you the recording after the event has taken place! \nYou can sign up here
URL:https://www.m4rd.org/event/our-voices-our-stories-lived-experiences-of-genomic-testing/
LOCATION:ONLINE
CATEGORIES:Conference,Webinar
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UID:13596-1752678000-1752681600@www.m4rd.org
SUMMARY:Introduction to Delphi Studies
DESCRIPTION:Have you ever heard of a Delphi Study and not quite sure what it entails? Or maybe you have never heard of Delphi? This webinar will be providing training on what a Delphi Study is and how they are run. PhD Candidate\, Shams Al-Ani\, studying Pharmaceutical medicine and regulatory affairs at Centre for Pharmaceutical Medicine Research\, King’s College London will be delivering the training through a 45 minute presentation with time for Q+A session afterwards. \nSign up here
URL:https://www.m4rd.org/event/introduction-to-delphi-studies/
LOCATION:ONLINE
CATEGORIES:Conference,Webinar
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