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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20200224T100000
DTEND;TZID=Europe/London:20200224T180000
DTSTAMP:20260419T064717
CREATED:20200121T180232Z
LAST-MODIFIED:20200121T180232Z
UID:6211-1582538400-1582567200@www.m4rd.org
SUMMARY:Drug Repurposing for Rare Diseases 2020 Conference
DESCRIPTION:Findacure’s Drug Repurposing for Rare Diseases Conference is returning for its seventh consecutive year!\nFindacure’s 7th annual conference will showcase excellence in the development of repurposed drugs for rare disease patients\, highlight the potential for patient group-led innovation\, and emphasise repurposing as a valid business model for orphan drug development in industry. Held in celebration of Rare Disease Day\, our event will unite the rare disease community to share in groundbreaking drug repurposing projects that can bring real change to those living with rare diseases.
URL:https://www.m4rd.org/event/drug-repurposing-for-rare-diseases-2020-conference/
LOCATION:America Square Conference Centre\, 17 America Square\, London\, EC3N 2LB\, United Kingdom
CATEGORIES:Conference,Networking,Patient Information Day,Rare Diseases
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2020/01/Picture1-e1579629397364.png
ORGANIZER;CN="Findacure":MAILTO:maryrose@findacure.org.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200515
DTEND;VALUE=DATE:20200517
DTSTAMP:20260419T064717
CREATED:20200122T185220Z
LAST-MODIFIED:20200318T112441Z
UID:6255-1589500800-1589673599@www.m4rd.org
SUMMARY:The 10th European Conference on Rare Diseases & Orphan Products (ECRD)
DESCRIPTION:The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest\, patient-led rare disease event in which collaborative dialogue\, learning and conversation takes place\, forming the groundwork to shape future rare disease policies.\nThe event draws together more than 800 participants from over 50 countries around the world. Leading\, inspiring and engaging all stakeholders to take action\, ECRD is where innovative solutions in the rare disease field are born. The Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community  – patient representatives\, policy makers\, researchers\, clinicians\, industry representatives\, payers and regulators.
URL:https://www.m4rd.org/event/the-10th-european-conference-on-rare-diseases-orphan-products-ecrd/
LOCATION:ONLINE
CATEGORIES:Conference,Lectures,Networking,Rare Diseases,Showcase
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2020/01/ecrd2020-visuel-933x250.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20201117
DTEND;VALUE=DATE:20201120
DTSTAMP:20260419T064718
CREATED:20201022T084210Z
LAST-MODIFIED:20201022T084210Z
UID:7270-1605571200-1605830399@www.m4rd.org
SUMMARY:Virtual Rare Disease Showcase
DESCRIPTION:Findacure’s Rare Disease Showcase series is a celebration of rare disease projects around the UK\nFindacure’s Virtual Showcase is designed to be a unique event\, with interactive sessions taking place over a three-day period\, including conversations on telemedicine\, artificial intelligence\, patient group innovations\, and the impact of Covid-19 on rare diseases. Our online stage will include talks from across the rare disease spectrum\, supplemented by roundtable discussions\, networking sessions\, one-to-one video chats\, virtual exhibitions and more. \nWhether you wish to attend a single session\, or three days of fun\, secure your place now for free at The Virtual Rare Disease Showcase
URL:https://www.m4rd.org/event/virtual-rare-disease-showcase/
CATEGORIES:Conference,Rare Diseases,Showcase
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2020/10/https-cdn.evbuc_.com-images-110925457-176390699836-1-original.20200909-132835.jpeg
ORGANIZER;CN="Findacure":MAILTO:maryrose@findacure.org.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20201127
DTEND;VALUE=DATE:20201129
DTSTAMP:20260419T064718
CREATED:20200320T150136Z
LAST-MODIFIED:20200320T150302Z
UID:6597-1606435200-1606607999@www.m4rd.org
SUMMARY:RareFest20
DESCRIPTION:FREE to attend\, RAREfest20 is a full day Cambridge Rare Disease Network festival featuring interactive hands-on exhibits showcasing cool science\, visionary technology\, and pioneering organisations improving lives and bringing hope to those affected by rare diseases.  \nAlongside the exhibition there’ll be inspiring talks from experts and powerful patient voices\, rare disease inspired art and films.
URL:https://www.m4rd.org/event/rarefest20/
LOCATION:Guildhall Cambridge\, Cambridge\, United Kingdom
CATEGORIES:Conference,exhibition,Networking,Rare Diseases
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2020/03/https-cdn.evbuc_.com-images-91443871-147790335965-1-original.20200207-185545-e1584716365180.jpeg
ORGANIZER;CN="CRDN":MAILTO:jo@camraredisease.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210224T180000
DTEND;TZID=Europe/London:20210224T200000
DTSTAMP:20260419T064718
CREATED:20200814T124039Z
LAST-MODIFIED:20210820T110608Z
UID:7110-1614189600-1614196800@www.m4rd.org
SUMMARY:The Unusual Suspects 2021
DESCRIPTION:The Unusual Suspects: Rare disease in everyday medicine is returning to The Royal Society of Medicine on 24th February!\nThis year it will all be online\, in the evening and free so there is nothing stopping you from joining us. We will be focusing on DIAGNOSIS. Why is a diagnosis so important and why is it imperative that diagnosis comes as early as possible? \nWe will be hearing from patients\, parents\, advocates and clinicians. We are particularly excited to hear about how early diagnosis can allow for gene therapy to change the lives of children born with debilitating rare diseases. \nBOOK NOW!\nAGENDA on 24th February 2021 via Zoom:\n6:00pm Welcome and introduction\nDr Lucy McKay\, Chief Executive Officer\, Medics for Rare Diseases \n6:05pm Rare Disease 101\nDr Lucy McKay \n6:15pm The undiagnosed diseases program\nDr Gareth Baynam\, Clinical Geneticist\, Genetic Services of Western Australia \n6:30pm Shortening the diagnostic odyssey through newborn screening\nGeorgina Morton\, Founder and Chair\, ArchAngel MLD Trust \n6:45pm Harnessing the power of gene therapy after diagnosis\nProf Bobby Gaspar\, Honorary Clinical Professor\, Great Ormond Street Hospital and the UCL Institute of Child Health and CEO\, Orchard Therapeutics \n7:00pm Panel discussion \n7:15pm I am Number 17 Campaign\nDavid Rose\, Rare Disease Patient and Advocate from Rare Revolution Magazine \n7:30pm Winner of Student Voice Prize 2020 \n7:40pm Panel discussion\n8:00pm Close of meeting
URL:https://www.m4rd.org/event/the-unusual-suspects-2021/
LOCATION:Online
CATEGORIES:Conference,Networking,Rare Diseases
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2020/10/M4RD-RSM042-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210615
DTEND;VALUE=DATE:20210617
DTSTAMP:20260419T064718
CREATED:20210416T095306Z
LAST-MODIFIED:20210416T095306Z
UID:7839-1623715200-1623887999@www.m4rd.org
SUMMARY:Drug Repurposing for Rare Diseases 2021
DESCRIPTION:Findacure’s Drug Repurposing for Rare Diseases Conference is back for an eighth year\, and this time\, it’s gone virtual!\nNaturally\, this year’s conference will be a little different. COVID-19 has forced us online\, but in grabbing the word’s attention\, it has also become the poster boy for the power of drug repurposing. In a matter of months\, scientists successfully repurposed dexamethasone to treat COVID-19\, so why can’t the same urgency be applied to rare diseases?
URL:https://www.m4rd.org/event/drug-repurposing-for-rare-diseases-2021/
LOCATION:ONLINE
CATEGORIES:Conference,Drug repurposing,Rare Diseases,Research,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/04/Findacure-DrugRepo2020-254-768x512-1.png
ORGANIZER;CN="Findacure":MAILTO:maryrose@findacure.org.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210630T093000
DTEND;TZID=Europe/London:20210630T153000
DTSTAMP:20260419T064718
CREATED:20210608T084319Z
LAST-MODIFIED:20210608T084319Z
UID:8175-1625045400-1625067000@www.m4rd.org
SUMMARY:Diverse Discoveries and Inclusive Insights Conference
DESCRIPTION:Come together with like minded professionals who have a passion to ensure no one is left behind. \n\nHear from organisations who are leading the way in engaging with our diverse and multi-cultural society\, the importance of the language used\, developments in genetics and how health inequalities can have a devastating impact on the lives of families affected by genetic conditions. \n\nBreaking Down Barriers know that it is often the fear of offending that stops people from doing anything. This event is a safe space for people to learn from others and explore new innovative approaches to ensure your organisation is inclusive and diverse to meet the needs of the community you serve.\n\n\n\n\nTop Topics:\n\nHealth inequalities the challenges and solutions\nThe impact of doing nothing\nDevelopments in Genetics and pre-implantation diagnosis\nThe power of language\n\nYou can register for this innovative event by following the link below: \nhttps://attendee.gotowebinar.com/register/7018232613206242062
URL:https://www.m4rd.org/event/diverse-discoveries-and-inclusive-insights-conference/
LOCATION:ONLINE
CATEGORIES:Conference,Genetics,Networking,Rare Diseases,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/06/Untitled-design-14.png
ORGANIZER;CN="Breaking Down Barriers":MAILTO:kerry.leeson@alstrom.org.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210708T100000
DTEND;TZID=Europe/London:20210708T120000
DTSTAMP:20260419T064718
CREATED:20210705T191725Z
LAST-MODIFIED:20210705T191725Z
UID:8246-1625738400-1625745600@www.m4rd.org
SUMMARY:Public Dialogue on Whole Genome Sequencing for Newborn Screening
DESCRIPTION:An online event to find out about a nationwide public dialogue on the implications of using whole genome sequencing for newborn screening.\n\n\n\n\n\n\n\nOne hundred and thirty members of the public from around the UK have taken part in a dialogue about the implications for the NHS and society of using whole genome sequencing for newborn screening. The dialogue was commissioned by Genomics England and the UK National Screening Committee\, co-funded and supported by UKRI’s Sciencewise programme. Come and hear what the dialogue has told us about the attitudes\, aspirations and concerns of the public about genomics and newborn screening. What are the values and principles that inform these views? How do we trade off potential harms with potential benefits for the child\, the parents\, the wider family\, the NHS and society more broadly? What might a newborn screening programme using genomics look like? What safeguards and information are needed?
URL:https://www.m4rd.org/event/public-dialogue-on-whole-genome-sequencing-for-newborn-screening/
LOCATION:ONLINE
CATEGORIES:Conference,Genetics,Genomics,Public health,Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2021/07/BCFE2D38-DFB4-4457-A7A7-718DDE97F926.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210918
DTEND;VALUE=DATE:20210919
DTSTAMP:20260419T064718
CREATED:20210907T134250Z
LAST-MODIFIED:20210907T134250Z
UID:8375-1631923200-1632009599@www.m4rd.org
SUMMARY:Wolfram Syndrome UK and WellChild International Virtual Conference (Part 1)
DESCRIPTION:Register for your place on this international virtual conference hosted by Wolfram Syndrome UK and WellChild.\nThe 10th WS conference will again be held as virtual events over 2 Saturdays in September 2021. \nOn Saturday 18th September there will be 3 presentations from international speakers and on Saturday 25th September there will be a mix of speakers. \nBoth events are open to the Global WS community\, doctors\, researchers and others interested in Wolfram Syndrome or rare diseases. \nClick here to view the full programme and how to register for individual webinar presentations.
URL:https://www.m4rd.org/event/wolfram-syndrome-uk-and-wellchild-international-virtual-conference-part-1/
LOCATION:ONLINE
CATEGORIES:Conference,Rare Diseases,Research,Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2021/09/NEW-WS-UK-Logo-Hi-Res-ISC.jpg
ORGANIZER;CN="Wolfram Syndrome UK":MAILTO:admin@wolframsyndrome.co.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210925
DTEND;VALUE=DATE:20210926
DTSTAMP:20260419T064718
CREATED:20210907T134709Z
LAST-MODIFIED:20210907T134709Z
UID:8378-1632528000-1632614399@www.m4rd.org
SUMMARY:Wolfram Syndrome UK and WellChild International Virtual Conference (Part 2)
DESCRIPTION:Register for your place on this international virtual conference hosted by Wolfram Syndrome UK and WellChild.\nThe 10th WS conference will again be held as virtual events over 2 Saturdays in September 2021. \nOn Saturday 18th September there will be 3 presentations from international speakers and on Saturday 25th September there will be a mix of speakers. \nBoth events are open to the Global WS community\, doctors\, researchers and others interested in Wolfram Syndrome or rare diseases. \nClick here to view the full programme and how to register for individual webinar presentations.
URL:https://www.m4rd.org/event/wolfram-syndrome-uk-and-wellchild-international-virtual-conference-part-2/
LOCATION:ONLINE
CATEGORIES:Conference,Rare Diseases,Research,Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2021/09/DSCN1409-scaled.jpg
ORGANIZER;CN="Wolfram Syndrome UK":MAILTO:admin@wolframsyndrome.co.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211007T080000
DTEND;TZID=Europe/London:20211007T170000
DTSTAMP:20260419T064718
CREATED:20210705T123316Z
LAST-MODIFIED:20210705T131427Z
UID:8238-1633593600-1633626000@www.m4rd.org
SUMMARY:RAREsummit21
DESCRIPTION:Hear from and engage with a range of stakeholders pioneering change across the rare disease landscape…\n\n\n\n\n\n\n\nCRDN‘s RAREsummit21 is a platform for change. It is the infrastructure that unites patients\, advocates\, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience\, the journey towards better diagnosis\, treatment and support for patients and their families is smoother and more certain. \n7th October 2021 will see the 5th RAREsummit – a flagship CRDN event gathering over 300 great minds in rare diseases to make connections\, exchange ideas and openly debate possibilities. \nIt’s more than an event – it’s where the magic happens. A powerful movement and platform for change that provides the right ingredients and ecosystem for a better future\, where productive collaborations are nurtured and flourish for future patient impact. \nThe aim of RAREsummit21 is: \n\nto raise awareness of rare conditions and their impact\nto showcase exemplars of impactful patient group collaboration with other stakeholders\nto bring all stakeholders in rare diseases together to drive patient group\, researcher and industry partnering opportunities\nto give stakeholders the knowledge and skills to ensure their practices involve patients and their advocates as essential partners\nto improve the lives of rare disease patients\, together\, with greater efficiency\, collaboration and success
URL:https://www.m4rd.org/event/raresummit21/
LOCATION:ONLINE
CATEGORIES:Conference,Networking,Rare Diseases,Showcase,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/07/RS21-logo-and-date.png
ORGANIZER;CN="CRDN":MAILTO:jo@camraredisease.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211018
DTEND;VALUE=DATE:20211020
DTSTAMP:20260419T064718
CREATED:20210907T122346Z
LAST-MODIFIED:20210907T122346Z
UID:8371-1634515200-1634687999@www.m4rd.org
SUMMARY:NORD Breakthrough Summit
DESCRIPTION:NORD Rare Diseases and Orphan Products Breakthrough Summit is back on 18 & 19 October 2021 offering a two-day virtual programme.\nThe summit will discuss the latest updates on: \n\nrare disease diagnosis and research\ngenetics and genomics\ndrug development and patient engagement\nFDA oversight\n\nA limited number of free passes may be available to patient advocates\, students and patients.  Click here to apply.
URL:https://www.m4rd.org/event/nord-breakthrough-summit/
LOCATION:ONLINE
CATEGORIES:Conference,Genetics,Genomics,Networking,Rare Diseases,Research,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/09/Screenshot-2021-09-07-at-13.16.58.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220201
DTEND;VALUE=DATE:20220204
DTSTAMP:20260419T064718
CREATED:20211103T132333Z
LAST-MODIFIED:20211103T132333Z
UID:8540-1643673600-1643932799@www.m4rd.org
SUMMARY:The International Rare Disease Showcase
DESCRIPTION:The International Rare Disease Showcase is a virtual event like no other\, bringing everyone together including\, patient groups\, researchers\, medical professionals\, industry representatives and of course patients themselves.\nHere’s what to expect:  \n\nThree days of interactive sessions led by global experts and advocates\nConversations on policy\, patient advocacy\, access and approval\, new technologies\, research and data collection with an international focus!\nPanel discussions and breakout rooms where attendees will be able to interact with speakers and other attendees\nA worldwide\, diverse and multi-stakeholder audience\nPatient group and industry virtual exhibition booths and dedicated patient group poster zone\nAll material will be available to view on-demand for 21 days after the event
URL:https://www.m4rd.org/event/the-international-rare-disease-showcase/
LOCATION:ONLINE
CATEGORIES:Conference,Networking,Rare Diseases,Showcase
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/11/unnamed-12.png
ORGANIZER;CN="Findacure":MAILTO:maryrose@findacure.org.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220209T180000
DTEND;TZID=Europe/London:20220209T200000
DTSTAMP:20260419T064718
CREATED:20210820T112939Z
LAST-MODIFIED:20210923T113010Z
UID:8341-1644429600-1644436800@www.m4rd.org
SUMMARY:The Unusual Suspects: rare disease in everyday medicine
DESCRIPTION:The Unusual Suspects: Rare disease in everyday medicine is returning to The Royal Society of Medicine on 9th February!\nThe M4RD Annual Symposium has been a popular event in the rare disease calendar for many years\, allowing healthcare professionals at all levels\, trainees and students to come together to learn more about the importance of understanding rare diseases as a whole\, with a large focus on improving awareness and management. \nFollowing the success of last year’s online event\, we will be live streaming from 1 Wimpole Street. \nThis is the only medical meeting of its type in the UK that brings together stakeholders from across all sectors and rare diseases in order to teach those who don’t yet know much about rare disease.We will be hearing from patients\, parents\, advocates and clinicians. \nBOOK NOW
URL:https://www.m4rd.org/event/the-unusual-suspects-rare-disease-in-everyday-medicine/
LOCATION:LIVE STREAM
CATEGORIES:Conference,Networking,Rare Diseases,Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2021/08/M4RD2020-114-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220504
DTEND;VALUE=DATE:20220505
DTSTAMP:20260419T064718
CREATED:20220408T083425Z
LAST-MODIFIED:20220408T083425Z
UID:9272-1651622400-1651708799@www.m4rd.org
SUMMARY:Genomics England Research Summit 2022
DESCRIPTION:The Summit is an exciting one-day event that explores the latest research and technology innovations from Genomics England\, partners and complementary fields.\nThrough talks\, panel discussions\, posters and exhibitions across four themes\, you can take part in a valuable programme tailored to your areas of interest. Make connections\, learn new skills and help to shape the next steps in strengthening the ecosystem that’s turning science into healthcare for everyone. \nThe Summit is both virtual and in-person\, held at the Business Design Centre in Islington\, London\, easily accessed from King’s Cross and St Pancras International stations.
URL:https://www.m4rd.org/event/genomics-england-research-summit-2022/
LOCATION:Business Design Centre\, 52 Upper Street\, London\, N1 0QH\, United Kingdom
CATEGORIES:Conference,Genomics,Networking,Research
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2022/04/bknvflhiuapya6edkdrn.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220627
DTEND;VALUE=DATE:20220702
DTSTAMP:20260419T064718
CREATED:20220315T114405Z
LAST-MODIFIED:20220315T114405Z
UID:9161-1656288000-1656719999@www.m4rd.org
SUMMARY:11th European Conference on Rare Disease & Orphan Products (ECRD)
DESCRIPTION:The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest\, patient-led rare disease event in which collaborative dialogue\, learning and conversation takes place\, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place. \nECRD 2022 will take place online on 27 June -1 July. \nLeading\, inspiring and engaging all stakeholders to take action\, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with over 1500 stakeholders in the rare disease community – patient advocates\, policy makers\, researchers\, clinicians\, healthcare professionals\, healthcare industry representatives\, academics\, payers\, regulators and Member State representatives. \nThis 11th edition follows a pivotal two-year Rare 2030 Foresight Study\, supported by the European Parliament and European Commission\, that guided a large-scale and multi-stakeholder reflection on rare disease policy in Europe through 2030. \nThe concluding recommendation of Rare2030 was the need for a new European policy framework on rare diseases with measurable and actionable goals. Current actions at Member State level alone\, or legislative changes in specific areas are not enough. We need a new European collective strategy for rare diseases to bring Member States’ commitment to rare diseases under a common umbrella and mark a step forward in the post-COVID world. \nThis ECRD will be a critical opportunity for all stakeholders to consider how to transform this exhaustive review of the strategy on rare diseases into a proposal of concrete actions ultimately creating the ecosystem required to address the unmet needs and persisting inequalities across Europe.
URL:https://www.m4rd.org/event/11th-european-conference-on-rare-disease-orphan-products-ecrd/
LOCATION:ONLINE
CATEGORIES:Conference,Lectures,Networking,Rare Diseases
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2022/03/Word-Cloud_What-does-ECRD-mean-to-you.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221010
DTEND;VALUE=DATE:20221011
DTSTAMP:20260419T064718
CREATED:20220812T121726Z
LAST-MODIFIED:20220812T121726Z
UID:9815-1665360000-1665446399@www.m4rd.org
SUMMARY:Drug Repurposing for Rare Diseases 2022
DESCRIPTION:We are delighted to announce Beacon’s ninth annual Drug Repurposing for Rare Diseases Conference and\, for the first time since 2020\, it’s returning live and in-person! \nThis annual conference\, Drug Repurposing for Rare Diseases\, highlights the role that drug repurposing can play in lowering the cost and accelerating the development of rare disease treatments. \nAn event unique in its collaborative and multi-stakeholder focus\, we bring patient groups\, researchers and industry professionals together to showcase excellent examples of rare repurposing. \nDrug Repurposing for Rare Diseases sparks cross-sector conversation\, uniting the expertise of diverse groups to inspire meaningful\, patient-centred drug repurposing research for rare diseases. \nClick here for more details
URL:https://www.m4rd.org/event/drug-repurposing-for-rare-diseases-2022/
LOCATION:America Square Conference Centre\, 17 America Square\, London\, EC3N 2LB\, United Kingdom
CATEGORIES:Conference,Drug repurposing,Rare Diseases
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2022/08/Maisha.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221011
DTEND;VALUE=DATE:20221012
DTSTAMP:20260419T064718
CREATED:20220916T112542Z
LAST-MODIFIED:20220916T112542Z
UID:9970-1665446400-1665532799@www.m4rd.org
SUMMARY:Innovation Bootcamp in Rare Diseases 2022
DESCRIPTION:The third edition of the Innovation Bootcamp in Rare Diseases (IBRD2022) congress in Brussel will be held on October 11th 2022. \nThe target audience of this event includes all professionals involved in the prevention\, treatment and diagnosis of rare diseases and orphan drug research and development\, including researchers\, clinicians\, pharma\, policy makers and patient representatives. \nFor more information email Marc Dooms.
URL:https://www.m4rd.org/event/innovation-bootcamp-in-rare-diseases-2022/
LOCATION:Maison de la Poste\, Rue Picard 5/7\, Brussels\, 1000\, Belgium
CATEGORIES:Conference,Rare Diseases
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230228
DTEND;VALUE=DATE:20230301
DTSTAMP:20260419T064718
CREATED:20220916T110923Z
LAST-MODIFIED:20220930T084052Z
UID:9963-1677542400-1677628799@www.m4rd.org
SUMMARY:BPSU Annual Symposium
DESCRIPTION:The BPSU is currently planning to hold its yearly Symposium on rare diseases on 18th October 2022 and are in the process of compiling an agenda for the day\, which will take place at the RCPCH council chambers on 13th October 2022. \nJoin the BPSU\, NHS clinicians\, and patient groups for what is looking to be an informative event which will acknowledge the current work conducted on rare diseases in children and raising awareness of such. \nFor more information email Charlotte Lewis
URL:https://www.m4rd.org/event/bpsu-annual-symposium/
LOCATION:RCPCH Council Chambers\, 5-11 Theobald's Road\, London\, WC1X 8SH\, United Kingdom
CATEGORIES:BPSU,Conference,Networking,Patient advocacy
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ORGANIZER;CN="BPSU":MAILTO:enquiries@rcpch.ac.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230306T180000
DTEND;TZID=Europe/London:20230306T193000
DTSTAMP:20260419T064718
CREATED:20230206T113734Z
LAST-MODIFIED:20230206T114132Z
UID:10437-1678125600-1678131000@www.m4rd.org
SUMMARY:Reframing Rare Disease
DESCRIPTION:It may be impossible for all doctors to have knowledge of more than 7\,000 recognised rare diseases. However\, it is feasible for all future and current medical professionals to learn when to suspect a rare disease\, to appreciate that rare diseases are collectively common and to recognise the exceptional challenges faced by those affected. \nAt this FREE event\, you can expect to learn about rare disease from those with lived experience and from those working in this area in healthcare. Join Medics 4 Rare Diseases (M4RD) and the Clare College Medical and Veterinary Society in equipping medical students and doctors with the knowledge and tools they need to #DareToThinkRare. \nPerfect for medical professionals and students wanting to learn more about and get involved in Rare Diseases. \nBook Now 
URL:https://www.m4rd.org/event/reframing-rare-disease/
LOCATION:Clare College Medical and Veterinary Society
CATEGORIES:Conference,Lectures,M4RD,Rare Diseases
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2023/02/Cambridge-Twitter-Post.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230325
DTEND;VALUE=DATE:20230327
DTSTAMP:20260419T064718
CREATED:20230303T100326Z
LAST-MODIFIED:20230303T100326Z
UID:10732-1679702400-1679875199@www.m4rd.org
SUMMARY:SFGH Global Health Conference
DESCRIPTION:Students for Global Health is excited to announce that our Annual Global Health Conference which will be held in Manchester over the weekend of March 25th-26th! \nStudents for Global Health is an organisation\, network and community. In our 20 year history\, we have evolved into the leading student voice for health\, representing students who are passionate about creating a fair and just world in which equity in health is a reality for all. \nThis conference is open to all students and graduates with an interest in global health\, as well as international students. This is an excellent opportunity for you to meet with like-minded individuals\, network with professionals in the field\, and gain valuable insights and knowledge on the latest developments in global health. \nWe will have speakers covering topics ranging from deconstructing colonial narratives within medicine and health to adolescent global health. \nThere is also an opportunity for those who have undertaken research or electives abroad to submit and present an abstract on any topic related to global or public health. Link to submit an abstract: https://forms.gle/VaFcSJkpQRovHMuW6 \nTransport and accomodation funding may also be available! For any queries regarding this\, please contact director@studentsforglobalhealth.org \nWe look forward to welcoming you all!
URL:https://www.m4rd.org/event/sfgh-global-health-conference/
LOCATION:Manchester Royal Infirmary
CATEGORIES:Conference,Rare Diseases
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230413
DTEND;VALUE=DATE:20230417
DTSTAMP:20260419T064718
CREATED:20230327T124659Z
LAST-MODIFIED:20230327T124727Z
UID:10774-1681344000-1681689599@www.m4rd.org
SUMMARY:Aims Meeting
DESCRIPTION:AIMS Meeting [Annual International (bio)Medical Students Meeting] is the largest biomedical conference in Europe organized entirely by medical students\, gathering each year over a thousand participants from all the world. \nIt is held annually in Lisboa\, Portugal and is advocated by the Faculty of Medicine of the Lisbon Students’ Local Committee. \nAIMS Meeting highlights the importance of medical education for all students of health sciences through a diverse approach and is a platform to build bridges between biomedical students around the world. \nMarch of 2022 was marked by the one of the more ambitious editions of the AIMS Meeting so far! In 2023\, we are aiming even higher. \nThe registration process for the AIMS Meeting 2023 is now open! \nDon’t miss this oportunity to participate in the largest Biomedical meeting in Europe organized by students! You can attend in person or register to watch online. \nIf you have any questions\, contact us at support@aimsmeeting.org.
URL:https://www.m4rd.org/event/aims-meeting/
CATEGORIES:Conference
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230420
DTEND;VALUE=DATE:20230422
DTSTAMP:20260419T064718
CREATED:20230314T161757Z
LAST-MODIFIED:20230314T161757Z
UID:10751-1681948800-1682121599@www.m4rd.org
SUMMARY:3rd International Conference on Lysosomal Diseases
DESCRIPTION:We are close to our “3rd International Conference on Lysosomal Diseases” which takes place 20-21 April 2023\, in London\, UK. \nThe conference is offering 35% DISCOUNT on registration fee to students and fellows. \nHere is the link for the programme https://med-lysosomal.com/congress-agenda/ \nThe abstract submission is open via the link https://med-lysosomal.com/abstracts/ \nPlease contact Rosemarie to receive the discount code for registration – rosemarie@bioevents-congress.com
URL:https://www.m4rd.org/event/3rd-international-conference-on-lysosomal-diseases/
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2023/03/20-21.4.23-Med-Lysosomal2023-save-the-date.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230420T173000
DTEND;TZID=Europe/London:20230420T190000
DTSTAMP:20260419T064718
CREATED:20230412T091403Z
LAST-MODIFIED:20230412T091403Z
UID:10800-1682011800-1682017200@www.m4rd.org
SUMMARY:LinkAGE Webinar: Repurposing drugs for rare disease
DESCRIPTION:Following on from the first three Genomics Education Programme webinars in the LinkAGE series\, the next talk followed by a live Q&A will be broadcast on Thursday 20 April at 5:30pm. \nIn this pre-recorded webinar\, Dr Hassan Shakeel will describe his work repurposing drugs for rare disease. This culminated in an algorithm that can screen clinically approved drugs for trial use in rare developmental disorders. \nFind out more about the webinar on the GEP event page. Receive a link to watch this exciting talk and join the Q&A by completing the registration form.
URL:https://www.m4rd.org/event/linkage-webinar-repurposing-drugs-for-rare-disease/
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2023/04/Screenshot-2023-04-12-at-09.58.16-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230429T090000
DTEND;TZID=Europe/London:20230429T163000
DTSTAMP:20260419T064718
CREATED:20230425T135606Z
LAST-MODIFIED:20230425T135606Z
UID:10828-1682758800-1682785800@www.m4rd.org
SUMMARY:Women in Healthcare: 3rd Annual Conference: Beyond the Ward
DESCRIPTION:Some more info we share for advertising:\nAre you a medical student or doctor who is interested in exploring unconventional career paths in medicine? Then we have the perfect event for you! BL Women In Healthcare proudly presents our 3rd Annual Conference: Beyond the Ward. \nThis year’s conference will take place online on Saturday\, 29th April 2023\, from 9.00am to 4.30pm. You will have the opportunity to hear from inspiring speakers who have pursued various career paths in medicine\, including MedTech\, humanitarian medicine\, expedition medicine\, medical education\, and more. We will also be holding interactive workshops geared towards portfolio building. \nThe conference is open to all\, so don’t miss out on this amazing opportunity to learn about exciting new career paths and network with like-minded individuals. \nSome of the highlights of the conference include speakers talking about their experiences in MedTech and AI\, the NHS Clinical Entrepreneurship Programme\, MSF (Doctors Without Borders)\, expedition medicine\, workshops about the Specialised Foundation Programme and leadership in medical school\, and so much more. \nAll ticket proceeds will be going to a local charity supporting women. Tickets are available here: https://www.qmsu.org/ents/event/18671/ \n\n \nThis event is definitely not one to miss! 
URL:https://www.m4rd.org/event/women-in-healthcare-3rd-annual-conference-beyond-the-ward/
LOCATION:ONLINE
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2023/04/women-in-healthcare.jpeg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230506
DTEND;VALUE=DATE:20230507
DTSTAMP:20260419T064718
CREATED:20230201T135926Z
LAST-MODIFIED:20230201T140105Z
UID:10403-1683331200-1683417599@www.m4rd.org
SUMMARY:Living Rare Forum
DESCRIPTION:Hosted at the Renaissance Downtown Hotel\, the rare disease community will come together in Washington DC for a day of learning\, networking and fun! Hear real stories from the community and gain practical knowledge to help you live your best life while navigating your rare disease journey. \nThe living rare forum is your opportunity to connect with others in the rare disease community. \nBy attending\, you will have access to: \n\nSessions on valuable topics\, such as: Finding and Living Your New Normal with a Rare Disease\, Drug Development for Rare Diseases\, Rare Breakthroughs: Now and On the Horizon\, and more.\nAn opportunity to connect with fellow community members at the Friday welcome reception and Saturday breakfast.\nHot topic discussion lunch tables.\nEvent swag! Register by April 1st to be guaranteed a t-shirt.\n\nCan’t attend in person? You can also attend virtually! \nTo book or to learn more about this event\, visit their site.
URL:https://www.m4rd.org/event/living-rare-forum/
LOCATION:Renaissance Downtown Hotel\, Washington DC
CATEGORIES:Conference,Networking
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230510
DTEND;VALUE=DATE:20230511
DTSTAMP:20260419T064718
CREATED:20230426T091158Z
LAST-MODIFIED:20230426T091522Z
UID:10833-1683676800-1683763199@www.m4rd.org
SUMMARY:Patient Centricity and Engagement
DESCRIPTION:29 Industry Leaders From Pharma\, Advocacy Groups & Patients Themselves Share Their Latest Insights Into Driving Forward Patient Engagement Through Embedded Partnerships In Just One Day! \n\n\nAdvanced\, High-Impact\, Value-Adding Strategies For Patient Centricity\, Engagement & Partnerships \n\n\n\n\nDrive End-To-End Patient Engagement & Break Through Longstanding Barriers To Patient Centricity – Effectively Collaborate With Advocacy Groups & Stakeholders To Focus Around The Patient & Their Needs – Embed D&I At The Heart Of Engagement Strategies – Deliver High-Impact Patient Experiences & Digital & Virtual Engagement \nWebsite
URL:https://www.m4rd.org/event/patient-centricity-and-engagement/
CATEGORIES:Conference
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230512
DTEND;VALUE=DATE:20230520
DTSTAMP:20260419T064718
CREATED:20230327T123738Z
LAST-MODIFIED:20230411T093807Z
UID:10769-1683849600-1684540799@www.m4rd.org
SUMMARY:EDIRA Conference: An Inclusive conference about Inclusion
DESCRIPTION:Theme: Diversity- Dialogue and Development!\nIn May\, the United Nations ‘World Day for Promoting Cultural Diversity for Dialogue and Development’ will be taking place. This day will raise awareness about the essential role that intercultural dialogue has\, in bringing positive change. This theme has underpinned the development of the EDIRA conference.\nThe ultimate aim of the EDIRA project is to co-create an inclusive research framework\, which will provide practical guidance for practitioners. \nEquality\, Diversity and Inclusive Research Association (EDIRA) Conference. \n(Greenwich Mean Time: the conference will be held in English). \nIn person in Cardiff\, Wales on 11.30am 12th May 2023. \nOn-line on 11.30am 19th May 2023. (FREE to members of the Community Network). \n  \nIn-person event: https://www.eventbrite.co.uk/e/edira-conference-in-person-edira-campaign-launch-party-tickets-521189250077 \nOnline event: https://www.eventbrite.co.uk/e/565518319517 \n  \n  \n 
URL:https://www.m4rd.org/event/edira-conference-an-inclusive-conference-about-inclusion/
LOCATION:Edira Conference 2023
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2023/03/ediraconference.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230522T073000
DTEND;TZID=Europe/London:20230522T213000
DTSTAMP:20260419T064718
CREATED:20230504T094649Z
LAST-MODIFIED:20230504T094649Z
UID:10859-1684740600-1684791000@www.m4rd.org
SUMMARY:Pint of Science Festival
DESCRIPTION:Our Rare Mind and Rare Body events for the International Pint of Science Festival are now live! \nJoin us for engaging research talks and interactive activities in the pub with leading Cambridge experts on May 22 and 24. \nTo view the full programme click here
URL:https://www.m4rd.org/event/pint-of-science-festival/
CATEGORIES:Conference
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230623T150000
DTEND;TZID=Europe/London:20230623T170000
DTSTAMP:20260419T064718
CREATED:20230615T132335Z
LAST-MODIFIED:20230615T132335Z
UID:11045-1687532400-1687539600@www.m4rd.org
SUMMARY:Journal Club: On the 12th Day of Christmas\, a statistician said to me...
DESCRIPTION:The month’s leading up to Christmas are a magical time for medical research. The impending holiday season creates a dynamic upsurge in productivity\, with researchers finding time to finish off statistical analyses\, draft manuscripts and respond to reviewers comments. This activity leads to a plethora of submissions to journals such as The BMJ in December\, so that researches can finish the year with a sense of academic achievement and enjoy the festivities with their loves ones. \nIn this talk\, Professor Richard Riley will discuss 12 of the most common issues enountered during a  statistical peer review at The BMJ\, as identified by a survey of our statistical editors. \nThe topics will be presented with real examples and the talk is aimed as a broad audience\, aiming to shine a Christmas star towards better statistical practice. \nYou can register for the event Here \n 
URL:https://www.m4rd.org/event/journal-club-on-the-12th-day-of-christmas-a-statistician-said-to-me/
LOCATION:ONLINE
CATEGORIES:Conference,Genetics
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END:VEVENT
END:VCALENDAR