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DTSTART;TZID=Europe/London:20250716T150000
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DTSTAMP:20260410T042623
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SUMMARY:Introduction to Delphi Studies
DESCRIPTION:Have you ever heard of a Delphi Study and not quite sure what it entails? Or maybe you have never heard of Delphi? This webinar will be providing training on what a Delphi Study is and how they are run. PhD Candidate\, Shams Al-Ani\, studying Pharmaceutical medicine and regulatory affairs at Centre for Pharmaceutical Medicine Research\, King’s College London will be delivering the training through a 45 minute presentation with time for Q+A session afterwards. \nSign up here
URL:https://www.m4rd.org/event/introduction-to-delphi-studies/
LOCATION:ONLINE
CATEGORIES:Conference,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2025/07/Screenshot-2025-07-14-at-15.09.04.png
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DTSTART;TZID=Europe/London:20251106T090000
DTEND;TZID=Europe/London:20251106T170000
DTSTAMP:20260410T042623
CREATED:20250623T123551Z
LAST-MODIFIED:20250623T123744Z
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SUMMARY:RAREsummit25: CamRARE at 10 – Connecting Moments
DESCRIPTION:2025 marks a special milestone — CamRARE’s 10th anniversary. A decade of progress. A future of possibilities. Over the past decade\, we have championed collaboration\, amplified patient voices\, and driven progress in rare disease research\, policy\, and innovation. Through inspiring keynotes\, dynamic discussions and workshops\, and interactive networking opportunities\, we will reflect on the past 10 years of impact while shaping the future of rare disease collaboration. \nWho will you connect with at RAREsummit25?\nBeing connected is critical in rare diseases and RAREsummit25 brings the right people together – thought leaders\, researchers\, healthcare professionals\, industry pioneers\, policy-makers and —most importantly—individuals living with rare conditions and the organisations that support and advocate for them. \nYou can book tickets for the event here
URL:https://www.m4rd.org/event/raresummit25-camrare-at-10-connecting-moments/
LOCATION:Wellcome Genome Campus Conference Centre
CATEGORIES:Conference
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DTSTART;TZID=Europe/London:20260306T120000
DTEND;TZID=Europe/London:20260306T170000
DTSTAMP:20260410T042623
CREATED:20260109T135349Z
LAST-MODIFIED:20260120T094733Z
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SUMMARY:Demystifying the connection between patients and researchers
DESCRIPTION:Co-hosted by Medics for Rare Disease and King’s Health Partners Rare Disease Network \n📅 Date: Friday 6 March 2026 \n⏰ Time: 12:00 – 16:45 \n📍 Location: Great Hall\, King’s College London – Strand Campus\, WC2R 2LS (In-person event) \nAbout the event \nMedics for Rare Disease is pleased to be co-hosting a half-day\, in-person event with the King’s Health Partners Rare Disease Network. \nJoin us for a half‑day event exploring how patients\, researchers\, clinicians and industry partners can work together to drive inclusive\, impactful rare disease research. \nHear real stories\, take part in discussions\, and connect with others working to build equitable research partnerships. \nProgramme highlights\n* Presentations\n* High tea reception with poster displays (more details about Call For Abstracts coming soon)\n* Expert panel discussions. \nWho should attend \nThis event will be of interest to: \nPatients and patient advocates\n* Researchers and clinicians\n* Industry partners\n* Policy makers and research funders\n* Anyone interested in inclusive\, collaborative rare disease research \nRegistration\nBuy your tickets here
URL:https://www.m4rd.org/event/save-the-date-enhancing-inclusivity-in-rare-disease-research/
LOCATION:Kings College London\, Great Hall\, King’s College London – Strand Campus\, London\, London\, WC2R 2LS\, United Kingdom
CATEGORIES:Conference,Health Partnerships,Rare Diseases,Research,workshop
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ORGANIZER;CN="King's Health Partners":MAILTO:jennifer.1.burt@kcl.ac.uk
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260602
DTEND;VALUE=DATE:20260605
DTSTAMP:20260410T042623
CREATED:20260115T095026Z
LAST-MODIFIED:20260115T095318Z
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SUMMARY:European Conference on Rare Diseases & Orphan Products (ECRD 2026)
DESCRIPTION:🗓 Date: 2–4 June 2026\n📍 Location: Prague & Online\n🔗 Register: Sign up here \nJoin EURORDIS‑Rare Diseases Europe for the largest patient‑led rare disease policy event in Europe! Over three days\, patients\, advocates\, clinicians\, researchers\, and policymakers will come together to discuss therapy access\, diagnosis\, care\, innovation\, and more. \nWe’re proud to support EURORDIS in sharing this opportunity and encouraging participation across our networks. \n➡️ Register now: https://www.rare-diseases.eu/register/
URL:https://www.m4rd.org/event/european-conference-on-rare-diseases-orphan-products-ecrd-2026/
LOCATION:O2 universum Congress Centre\, Českomoravská 2345/17\, Libeň\, Prague\, 19000\, Czech Republic
CATEGORIES:Conference,Global Health,HCPs,Networking,Rare Disease
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