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X-WR-CALNAME:Medics For Rare Disease
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X-WR-CALDESC:Events for Medics For Rare Disease
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DTSTART;TZID=Europe/London:20190610T083000
DTEND;TZID=Europe/London:20190610T173000
DTSTAMP:20260429T124634
CREATED:20190403T170403Z
LAST-MODIFIED:20200123T142811Z
UID:4624-1560155400-1560187800@www.m4rd.org
SUMMARY:Epigenetics: The Emerging Key Player in Medicine
DESCRIPTION:Epigenetics is emerging as a key player in medicine. \nWell-known experts in the epigenetics world such as; Professor Wolf Reik\, Professor Stephan Beck\, Professor Sir Adrian Bird\, and Dr Nessa Carey will come together and give awe-inspiring talks across the epigenetics spectrum\, from its role in cancer to mental health\, the relevance to primary care and preventative medicine\, to rare diseases and what we can learn from these. \nWe will hear from those at the cutting edge of the epigenetics revolution and provide valuable insights into health\, disease and new treatments. \nEarly Bird pricing available until 19 April 2019 – RSM Students £25\n \nBOOK NOW \nMeeting topics\n\nUnderstanding epigenetics and the role of chemical modifications to DNA in shaping health and disease\nExploring our increasing appreciation of the impact of epigenetics upon a diverse range of biological processes and diseases\, from cancer to mental health\nRecognising the increasing importance of developing an understanding of epigenetics in clinical practice\nDiscussing the role of epigenetics in developmental programming and the bridge between nature and nurture
URL:https://www.m4rd.org/event/epigenetics-the-emerging-key-player-in-medicine/
LOCATION:Royal Society of Medicine\, 1 Wimpole Street\, London\, W1G 0AE\, United Kingdom
CATEGORIES:Conference,Epigenetics,Lectures
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20190524T093000
DTEND;TZID=Europe/London:20190524T160000
DTSTAMP:20260429T124634
CREATED:20190429T185458Z
LAST-MODIFIED:20190520T150646Z
UID:4798-1558690200-1558713600@www.m4rd.org
SUMMARY:PKU: A Heads Up
DESCRIPTION:Leading experts will explore the pathophysiology of PKU\, the impact of high phenylalanine levels on the brain of adult patients and the effect of PKU and aging.\nPhenylketonuria (PKU) is an inherited disorder that increases the levels of phenylalanine in the blood. Without treatment\, children develop permanent intellectual disabilities. Seizures\, delayed development\, behavioural problems and psychiatric disorders are also common. \nThis day will explore: \n\nPsychological disorders and mental health\nNeurological deterioration\nBone health\nPremature aging\nNutritional complications\n\nFor more information and to book tickets email keeley.crompton@srft.nhs.uk
URL:https://www.m4rd.org/event/pku-a-heads-up/
LOCATION:Salford Royal Hospitals NHS Foundation Trust\, Stott Lane\, Salford\, Manchester\, M6 8HD\, United Kingdom
CATEGORIES:Conference,Lectures,Rare Diseases
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2019/04/PKU-e1558364786805.png
ORGANIZER;CN="Salford Royal NHS Foundation Trust":MAILTO:Keeley.Crompton@srft.nhs.uk
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20190508T084500
DTEND;TZID=Europe/London:20190508T170000
DTSTAMP:20260429T124634
CREATED:20190320T133540Z
LAST-MODIFIED:20200122T091342Z
UID:4529-1557305100-1557334800@www.m4rd.org
SUMMARY:Rare diseases and the Kidney
DESCRIPTION:Hear expert nephrologists from clinical and academic fields present the latest updates and developments in a variety of rare disease areas.\nThe meeting will be of relevance to medical student\, trainees and consultants as it provides a unique opportunity to keep up to date with latest clinical developments\, opportunities and research being conducted\, plus MDT and patient partnerships for these conditions. \nRates start from only £20! \nMeeting topics: \n\nExpert overview of a number of rare diseases affecting the kidney\nBest medical management and potential treatments\nLatest research\, developments and opportunities for future research using the RADAR network\n\nFor more information and to book tickets\, visit the RSM Website.
URL:https://www.m4rd.org/event/rare-diseases-and-the-kidney/
LOCATION:Royal Society of Medicine\, 1 Wimpole Street\, London\, W1G 0AE\, United Kingdom
CATEGORIES:Conference,Lectures,Nephrology,Rare Diseases
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2019/03/kidney_RSM.jpg
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BEGIN:VEVENT
DTSTART;TZID=UTC:20190220T123000
DTEND;TZID=UTC:20190220T180000
DTSTAMP:20260429T124634
CREATED:20181119T102224Z
LAST-MODIFIED:20200122T104848Z
UID:3387-1550665800-1550685600@www.m4rd.org
SUMMARY:The Unusual Suspects: Rare Diseases In Everyday Medical Care
DESCRIPTION:This is an RSM and Medics 4 Rare Diseases joint event where clinicians at all stages of their training\, will be informed about why rare diseases are important to everyday medicine.\nDelegates will get the opportunity to explore how generalists can approach patients with rare diseases\, and become advocates for them. Hear a real patient experience who has two rare diseases – one of which was diagnosed during an OSCE. And learn about the role genomics plays in everyday medicine. \nTopics include:\n\nHow rare diseases are relevant to every doctor’s career in medicine\nThe challenges shared by patients with rare diseases and explore how doctors can help them with these\nThe role of genomics in everyday medicine\nHow the work of Medics 4 Rare Diseases and the RSM Genetics Section play a role in rare disease education\n\n3 CPD Points awarded \nKey Speaker: Dr Ellen Thomas\, Clinical Lead for NHS Genomic Medicine at Genomics England \nView the full agenda \nRates\nRSM member: £15 \nNon member: £25 \nRegistration starts at 12.30 and the event begins at 1pm. \n\nPlease note: The RSM site is currently down for maintenance and reopens 10th February. Please use the form below to reserve your tickets. To book via the RSM site from 10th February\, click here.\nLoading…
URL:https://www.m4rd.org/event/the-unusual-suspects-rare-diseases-in-everyday-medical-care/
LOCATION:Royal Society of Medicine\, 1 Wimpole Street\, London\, W1G 0AE\, United Kingdom
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2018/10/M4RD-Annual-Symposium.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20190119T093000
DTEND;TZID=UTC:20190119T160000
DTSTAMP:20260429T124634
CREATED:20181119T095405Z
LAST-MODIFIED:20200122T122036Z
UID:3371-1547890200-1547913600@www.m4rd.org
SUMMARY:Information Day On Fibromuscular Dysplasia (FMD)
DESCRIPTION:Fibromuscular Dysplasia (FMD) is evolving from a rare disease of renal arteries accounting for a minority of cases of secondary hypertension in young women\, to a ‘systemic’ vascular disease which can also affect cervico-cephalic\, coronary\, and iliac arteries.\nThis patient information day will aim to explain what FMD is\, challenge previous misconceptions about FMD and highlight the latest work being undertaken by registries and research. \nCome and hear from expert international guest speakers such as Prof Alexandre Persu (lead for European FMD registry) and Prof David Adlam (UK expert in spontaneous coronary artery dissection (SCAD))\, as well as celebrity chef and FMD/ SCAD sufferer\, Sally Bee. This day will be of interest to clinicians\, patients and carers alike. Any further information\, contact tina.chrysochou@srft.nhs.uk or @FmdsUk \nPatients with FMD in any arterial bed can be uploaded to FMD RADAR. \nPlease refer to the Agenda for further information.
URL:https://www.m4rd.org/event/information-day-on-fibromuscular-dysplasia/
CATEGORIES:Conference,Patient Information Day
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2018/10/Information-Day-On-Fibromuscular-Dysplasia.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20181201
DTEND;VALUE=DATE:20181202
DTSTAMP:20260429T124634
CREATED:20181119T095907Z
LAST-MODIFIED:20200123T003318Z
UID:3378-1543622400-1543708799@www.m4rd.org
SUMMARY:Rare Disease Day 2019
DESCRIPTION:It’s 2018 and rare diseases are still not being consistently diagnosed\, treated and supported effectively.\nFree to attend\,  this 2-day festival will shine a light on some successes and innovative solutions that are striving to address this.  RAREfest will raise awareness of rare conditions and bring together all stakeholders in  the rare disease community alongside the general public from across Cambridgeshire and beyond.
URL:https://www.m4rd.org/event/rare-disease-day-2019/
LOCATION:Guildhall Cambridge\, Cambridge\, United Kingdom
CATEGORIES:Conference,Family Day,Lectures,Showcase
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2018/10/Rare-Disease-Day-2019.jpeg
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