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X-WR-CALNAME:Medics For Rare Disease
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X-WR-CALDESC:Events for Medics For Rare Disease
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DTSTART;TZID=Europe/London:20241122T080000
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DTSTAMP:20260429T064022
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UID:12381-1732262400-1732381200@www.m4rd.org
SUMMARY:Rare Fest 2024
DESCRIPTION:RAREfest24 \nA festival as unique as you are. For curious minds of all ages\, for FREE.\nFri 22 November – Launch Evening ‘Strictly Rare’\nAn evening of music\, performance\, comedy\, talks and innovative research inspired art to challenge perceptions\, dispel myths and imagine the possible. \nSat 23 November – Interactive Exhibition\nImmerse yourself in a bustling marketplace of hands-on exhibits\, interactive talks\, films\, and stunning research-inspired art.  Discover the latest in innovative science and technology and meet leading researchers\, tech start-ups\, treatment pioneers and individuals with rare conditions. Educational fun for the whole family.
URL:https://www.m4rd.org/event/rare-fest-2024/
CATEGORIES:Conference,exhibition
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2024/10/camrare.jpeg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20221126
DTEND;VALUE=DATE:20221127
DTSTAMP:20260429T064022
CREATED:20220609T093342Z
LAST-MODIFIED:20220609T093342Z
UID:9581-1669420800-1669507199@www.m4rd.org
SUMMARY:RAREfest22: Educate\, Engage\, Empower
DESCRIPTION:FREE to attend\, RAREfest22 is a public-facing\, rare disease inspired festival featuring interactive talks\, demos and exhibits\, film and art showcasing ground-breaking science\, visionary technology and pioneering organisations improving lives and bringing hope to those living with rare conditions.\nAn award-winning festival that is as UNIQUE as the patients it champions. Featuring the brightest minds in rare disease research\, the innovators of life-changing tech\, the pioneers in rare disease medicine\, and the patients whose powerful voices must be heard. For the experts. For the curious. For everyone. For FREE. \nCambridge Rare Disease Network is a platform for change. It is the infrastructure that unites patients\, advocates\, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience\, and working together\, the journey toward s better diagnosis\, treatment and support for patients and their families is smoother and more certain. \nBook now
URL:https://www.m4rd.org/event/rarefest22-educate-engage-empower/
LOCATION:The Guildhall\, Market Square\, Cambridge\, CB2 3QB
CATEGORIES:exhibition,Festival,Genetics,Genomics,Networking,Patient advocacy,Rare Diseases
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ORGANIZER;CN="CRDN":MAILTO:jo@camraredisease.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20201127
DTEND;VALUE=DATE:20201129
DTSTAMP:20260429T064022
CREATED:20200320T150136Z
LAST-MODIFIED:20200320T150302Z
UID:6597-1606435200-1606607999@www.m4rd.org
SUMMARY:RareFest20
DESCRIPTION:FREE to attend\, RAREfest20 is a full day Cambridge Rare Disease Network festival featuring interactive hands-on exhibits showcasing cool science\, visionary technology\, and pioneering organisations improving lives and bringing hope to those affected by rare diseases.  \nAlongside the exhibition there’ll be inspiring talks from experts and powerful patient voices\, rare disease inspired art and films.
URL:https://www.m4rd.org/event/rarefest20/
LOCATION:Guildhall Cambridge\, Cambridge\, United Kingdom
CATEGORIES:Conference,exhibition,Networking,Rare Diseases
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ORGANIZER;CN="CRDN":MAILTO:jo@camraredisease.org
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DTSTART;TZID=Europe/London:20191101T180000
DTEND;TZID=Europe/London:20191101T210000
DTSTAMP:20260429T064022
CREATED:20190922T122007Z
LAST-MODIFIED:20191008T153121Z
UID:5824-1572631200-1572642000@www.m4rd.org
SUMMARY:A Puff of Smoke Book Launch and Exhibition
DESCRIPTION:A Puff of Smoke is a graphic memoir about what it is like to grow up with an illness that no one can diagnose.\nSarah Lippett spent eleven years suffering with symptoms from an unknown condition\, until she was diagnosed with the rare disease Moyamoya at the age of 17. \nFor the month of November(1st – 29th November) an exhibition will be held at The Centre For Better Health that will explore the wider themes of the memoir. \nJoin Sarah to celebrate the launch of the A Puff of Smoke on the 1st of November 6-9pm at The Centre for Better Health in London. Copies of the book will be available for purchase. \nDrinks will be available and everyone is welcome! \nConfirm your attendance on Evenbrite for the chance to WIN a FREE signed copy of A Puff of Smoke.
URL:https://www.m4rd.org/event/a-puff-of-smoke-book-launch-and-exhibition/
LOCATION:The Centre for Better Health\, 1A Darnley Road\, London\, E9 6QH\, United Kingdom
CATEGORIES:book launch,exhibition,Rare Diseases
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