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DTSTART;VALUE=DATE:20220909
DTEND;VALUE=DATE:20220912
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SUMMARY:BBS UK Annual Conference 2022
DESCRIPTION:This highly-anticipated event provides the unique opportunity to learn about the latest research\, treatments\, and day to day management of BBS\, network with like-minded professionals and more importantly\, learn from those living with Bardet-Biedl syndrome. \nThe programme is still being finalised but will include:\n* Invaluable personal perspectives of living with BBS\n* An Update on Research and Understanding of BBS from Professor Phil Beales\n* The BBS Registry: Dr Elizabeth Forsythe\n* An update on behavioural research and health and wellbeing research in BBS from Dr Emma McGibbon and Dr Jane Waite\n* Guide Dogs UK: Overview of services \nIt is hoped to have the event CPD accredited and the cost is just £40 for professionals\, which includes refreshments and a luxury buffet lunch. \nFor more information please go to https://bbsuk.org.uk/news-events/bbs-uk-conference/ \nThe professionals booking form can be found here
URL:https://www.m4rd.org/event/bbs-uk-annual-conference-2022/
LOCATION:Hilton Hotel\, Northampton\, 100 Watering Lane\, Collingtree\, NN4 0XW\, United Kingdom
CATEGORIES:Family Day,General Practice,Patient Information Day,Rare Diseases
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2022/06/Conference-Images-Collage.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20190710T133000
DTEND;TZID=Europe/London:20190710T170000
DTSTAMP:20260429T145402
CREATED:20190529T195130Z
LAST-MODIFIED:20190606T210007Z
UID:5054-1562765400-1562778000@www.m4rd.org
SUMMARY:BPSU Tea Party
DESCRIPTION:The British Paediatric Surveillance Unit invites you to this year’s event to enjoy afternoon tea and cakes\, hear young people speak about their experience of living with rare disease and visit informational stands.\nThe BPSU rare disease tea party will bring together stakeholders from across the rare disease community to hear young people and patient advocates speak about their experience of living with rare disease and working in the rare disease field. \nThis event is intended to be an informal networking opportunity with children and young people and carers\, healthcare professionals\, researchers and policy makers.
URL:https://www.m4rd.org/event/bpsu-tea-party/
LOCATION:Royal College of Paediatrics and Child Health\, 5-11 Theobalds Road\, London\, WC1X 8SH\, United Kingdom
CATEGORIES:Child and Young Person,Family Day,Networking,paediatric,Patient Information Day,Rare Diseases
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2019/05/unnamed-2-e1559854793637.jpg
ORGANIZER;CN="BPSU":MAILTO:enquiries@rcpch.ac.uk
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20181201
DTEND;VALUE=DATE:20181202
DTSTAMP:20260429T145402
CREATED:20181119T095907Z
LAST-MODIFIED:20200123T003318Z
UID:3378-1543622400-1543708799@www.m4rd.org
SUMMARY:Rare Disease Day 2019
DESCRIPTION:It’s 2018 and rare diseases are still not being consistently diagnosed\, treated and supported effectively.\nFree to attend\,  this 2-day festival will shine a light on some successes and innovative solutions that are striving to address this.  RAREfest will raise awareness of rare conditions and bring together all stakeholders in  the rare disease community alongside the general public from across Cambridgeshire and beyond.
URL:https://www.m4rd.org/event/rare-disease-day-2019/
LOCATION:Guildhall Cambridge\, Cambridge\, United Kingdom
CATEGORIES:Conference,Family Day,Lectures,Showcase
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2018/10/Rare-Disease-Day-2019.jpeg
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