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DTSTART;TZID=Europe/London:20210421T110000
DTEND;TZID=Europe/London:20210421T123000
DTSTAMP:20260530T024724
CREATED:20210416T095021Z
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UID:7836-1619002800-1619008200@www.m4rd.org
SUMMARY:Ensuring inclusive communications around genetics
DESCRIPTION:Genetics is complex\, and talk of genetics\, and even science\, can turn many people off from engaging with clinicians or self-management of their conditions.\nFindacure is teaming up with charity Breaking Down Barriers to deliver an informative webinar on understanding genetics in the rare disease field. \n  \nThis webinar will:  \n\nHighlight the role of genetics as both a tool to access diagnoses and understanding of rare conditions\, and a barrier to understand and discuss these diseases and their inheritance. \nHighlight case studies of what others in the rare community are doing to support with genetic diagnoses \nSignpost to pre-existing resources that your patient organisation can access
URL:https://www.m4rd.org/event/ensuring-inclusive-communications-around-genetics/
LOCATION:ONLINE
CATEGORIES:Genetics,Rare Diseases,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/04/Genetics-banner-image3.png
ORGANIZER;CN="Findacure":MAILTO:maryrose@findacure.org.uk
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DTSTART;TZID=Europe/London:20210416T080000
DTEND;TZID=Europe/London:20210416T170000
DTSTAMP:20260530T024724
CREATED:20210416T094635Z
LAST-MODIFIED:20210416T094635Z
UID:7833-1618560000-1618592400@www.m4rd.org
SUMMARY:East Paediatric Genomics Forum: Drawing Family Histories like a Pro!
DESCRIPTION:Paediatricians and Neonatologists from East of England and East Midlands are invited to join this event to discuss the taking and drawing of family history with a number of ‘patients’/cases presented by the Clinical Genetics Team. \nDuring this session you will: \n\nHear examples of how to take family history\nView a demonstration of drawing a pedigree\nHave the opportunity to ask questions\n\nJoin the meeting here\, note you will be asked to register:
URL:https://www.m4rd.org/event/east-paediatric-genomics-forum-drawing-family-histories-like-a-pro/
CATEGORIES:Genetics,Research,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/04/Untitled-design-6.png
ORGANIZER;CN="East NHS Genomic Laboratory Hub":MAILTO:Laura.Gallwey@addenbrookes.nhs.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20200128T180000
DTEND;TZID=Europe/London:20200128T193000
DTSTAMP:20260530T024724
CREATED:20200121T173706Z
LAST-MODIFIED:20200121T195956Z
UID:6194-1580234400-1580239800@www.m4rd.org
SUMMARY:Hit and Miss: Genetic diagnosis\, misdiagnosis and learning
DESCRIPTION:A potpourri of genetic diagnosis\, misdiagnosis and learning experiences\nKCL Medical Genetics Society’s second lecture of the year will held by Dr Willie Reardon\, sharing his experience as a Consultant Clinical Geneticist at Great Ormond St Hospital for Children\, Hospital for Sick Children Toronto and Our Lady’s Children’s Hospital.
URL:https://www.m4rd.org/event/hit-and-miss-genetic-diagnosis-misdiagnosis-and-learning/
LOCATION:Kings College London Guys Campus\, New Hunt's House\, London\, SE1 9RT\, United Kingdom
CATEGORIES:Genetics,Lectures
ORGANIZER;CN="KCL Medical Genetics Society":MAILTO:kclmedgensoc@gmail.com
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