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X-WR-CALDESC:Events for Medics For Rare Disease
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DTSTART;VALUE=DATE:20221126
DTEND;VALUE=DATE:20221127
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CREATED:20220609T093342Z
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UID:9581-1669420800-1669507199@www.m4rd.org
SUMMARY:RAREfest22: Educate\, Engage\, Empower
DESCRIPTION:FREE to attend\, RAREfest22 is a public-facing\, rare disease inspired festival featuring interactive talks\, demos and exhibits\, film and art showcasing ground-breaking science\, visionary technology and pioneering organisations improving lives and bringing hope to those living with rare conditions.\nAn award-winning festival that is as UNIQUE as the patients it champions. Featuring the brightest minds in rare disease research\, the innovators of life-changing tech\, the pioneers in rare disease medicine\, and the patients whose powerful voices must be heard. For the experts. For the curious. For everyone. For FREE. \nCambridge Rare Disease Network is a platform for change. It is the infrastructure that unites patients\, advocates\, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience\, and working together\, the journey toward s better diagnosis\, treatment and support for patients and their families is smoother and more certain. \nBook now
URL:https://www.m4rd.org/event/rarefest22-educate-engage-empower/
LOCATION:The Guildhall\, Market Square\, Cambridge\, CB2 3QB
CATEGORIES:exhibition,Festival,Genetics,Genomics,Networking,Patient advocacy,Rare Diseases
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ORGANIZER;CN="CRDN":MAILTO:jo@camraredisease.org
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DTSTART;VALUE=DATE:20221208
DTEND;VALUE=DATE:20221209
DTSTAMP:20260425T134027
CREATED:20220930T125101Z
LAST-MODIFIED:20220930T125101Z
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SUMMARY:Advances in renal genetics
DESCRIPTION:Attend this meeting for a comprehensive update on the clinical management of genetic and inherited kidney diseases\, including cystic and basement membrane disorders\, podocytopathies and tubulopathies\, in both children and adults. \nWe will review the evolution of new genomic methodologies\, including how they are informing our knowledge of kidney disease pathogenesis and outcomes\, and their potential impact on patient care in the future. \nAims of the event include: \n\nTo describe recent developments in the management of inherited kidney diseases\nTo consider the present and future impacts of novel genomic approaches in nephrology\nTo explore the development of local and national genetic services in the NHS\n\nBook to attend this event in person or virtually. To view the rates and agenda\, please select your preference below.
URL:https://www.m4rd.org/event/advances-in-renal-genetics/
LOCATION:Royal Society of Medicine\, 1 Wimpole Street\, London\, W1G 0AE\, United Kingdom
CATEGORIES:Genetics,Royal Society of Medicine
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DTSTART;TZID=Europe/London:20230623T150000
DTEND;TZID=Europe/London:20230623T170000
DTSTAMP:20260425T134027
CREATED:20230615T132335Z
LAST-MODIFIED:20230615T132335Z
UID:11045-1687532400-1687539600@www.m4rd.org
SUMMARY:Journal Club: On the 12th Day of Christmas\, a statistician said to me...
DESCRIPTION:The month’s leading up to Christmas are a magical time for medical research. The impending holiday season creates a dynamic upsurge in productivity\, with researchers finding time to finish off statistical analyses\, draft manuscripts and respond to reviewers comments. This activity leads to a plethora of submissions to journals such as The BMJ in December\, so that researches can finish the year with a sense of academic achievement and enjoy the festivities with their loves ones. \nIn this talk\, Professor Richard Riley will discuss 12 of the most common issues enountered during a  statistical peer review at The BMJ\, as identified by a survey of our statistical editors. \nThe topics will be presented with real examples and the talk is aimed as a broad audience\, aiming to shine a Christmas star towards better statistical practice. \nYou can register for the event Here \n 
URL:https://www.m4rd.org/event/journal-club-on-the-12th-day-of-christmas-a-statistician-said-to-me/
LOCATION:ONLINE
CATEGORIES:Conference,Genetics
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