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X-WR-CALDESC:Events for Medics For Rare Disease
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DTSTART;VALUE=DATE:20211018
DTEND;VALUE=DATE:20211020
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CREATED:20210907T122346Z
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UID:8371-1634515200-1634687999@www.m4rd.org
SUMMARY:NORD Breakthrough Summit
DESCRIPTION:NORD Rare Diseases and Orphan Products Breakthrough Summit is back on 18 & 19 October 2021 offering a two-day virtual programme.\nThe summit will discuss the latest updates on: \n\nrare disease diagnosis and research\ngenetics and genomics\ndrug development and patient engagement\nFDA oversight\n\nA limited number of free passes may be available to patient advocates\, students and patients.  Click here to apply.
URL:https://www.m4rd.org/event/nord-breakthrough-summit/
LOCATION:ONLINE
CATEGORIES:Conference,Genetics,Genomics,Networking,Rare Diseases,Research,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/09/Screenshot-2021-09-07-at-13.16.58.png
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DTSTART;TZID=Europe/London:20210708T100000
DTEND;TZID=Europe/London:20210708T120000
DTSTAMP:20260530T024649
CREATED:20210705T191725Z
LAST-MODIFIED:20210705T191725Z
UID:8246-1625738400-1625745600@www.m4rd.org
SUMMARY:Public Dialogue on Whole Genome Sequencing for Newborn Screening
DESCRIPTION:An online event to find out about a nationwide public dialogue on the implications of using whole genome sequencing for newborn screening.\n\n\n\n\n\n\n\nOne hundred and thirty members of the public from around the UK have taken part in a dialogue about the implications for the NHS and society of using whole genome sequencing for newborn screening. The dialogue was commissioned by Genomics England and the UK National Screening Committee\, co-funded and supported by UKRI’s Sciencewise programme. Come and hear what the dialogue has told us about the attitudes\, aspirations and concerns of the public about genomics and newborn screening. What are the values and principles that inform these views? How do we trade off potential harms with potential benefits for the child\, the parents\, the wider family\, the NHS and society more broadly? What might a newborn screening programme using genomics look like? What safeguards and information are needed?
URL:https://www.m4rd.org/event/public-dialogue-on-whole-genome-sequencing-for-newborn-screening/
LOCATION:ONLINE
CATEGORIES:Conference,Genetics,Genomics,Public health,Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2021/07/BCFE2D38-DFB4-4457-A7A7-718DDE97F926.jpeg
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DTSTART;TZID=Europe/London:20210325T123000
DTEND;TZID=Europe/London:20210325T133000
DTSTAMP:20260530T024649
CREATED:20210319T154435Z
LAST-MODIFIED:20210319T154435Z
UID:7797-1616675400-1616679000@www.m4rd.org
SUMMARY:East Paediatric Genomics Forum
DESCRIPTION:Paediatricians and Neonatologists from East of England and East Midlands please join to learn more about the Genomic Medicine Service and the testing services the East Genomics Laboratory Hub provides. \nDuring this first session you will: \n\nGain an overview of the Genomic Medicine Service\nUnderstand how to order a test from the test directory\nMeet scientists from the East Genomics Laboratory Hub\n\nJoin the meeting here – you will be asked to register. \nThe East NHS Genomics Lab Hub are looking for your input to shape these sessions going forward so please let them know if you have anything in particular you would like to share or discuss.
URL:https://www.m4rd.org/event/east-paediatric-genomics-forum/
LOCATION:ONLINE
CATEGORIES:Genomics,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/03/Genomics.png
ORGANIZER;CN="East NHS Genomic Laboratory Hub":MAILTO:Laura.Gallwey@addenbrookes.nhs.uk
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DTSTART;TZID=Europe/London:20201203T170000
DTEND;TZID=Europe/London:20201203T180000
DTSTAMP:20260530T024649
CREATED:20201009T083655Z
LAST-MODIFIED:20201009T083655Z
UID:7212-1607014800-1607018400@www.m4rd.org
SUMMARY:The genomic revolution: A practical guide to what you can’t afford not to know - Part 1
DESCRIPTION:This exciting 3-part webinar series sees representatives from NHS England give an up-to-date outline of the changes in genomic infrastructure which will transform the provision of genomic testing in the NHS.\nIn this first webinar\, top speakers will help clinicians understand how the increasing availability of state of the art genomic testing in the NHS will impact their day to day clinical practice. \nWebinar topics include: \n\nDiscuss recent advances in genomic testing and how they have been integrated into clinical testing pathways within the NHS\nUnderstand how genomic tests are generated\nFamiliarise yourself with the process of the clinical interpretation of genomic results
URL:https://www.m4rd.org/event/the-genomic-revolution-a-practical-guide-to-what-you-cant-afford-not-to-know-part-1/
CATEGORIES:Genomics,Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2019/08/genomics-e1565959314340.jpg
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