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UID:13753-1762174800-1762178400@www.m4rd.org
SUMMARY:King's Health Partners Rare Disease Grand Round: Hepatobiliary disease
DESCRIPTION:Join the upcoming Rare Disease Grand Round\, hosted by the King’s Health Partners Rare Disease Network—bringing together researchers and clinicians across the region to foster collaboration\, share insights\, and advance rare disease research. \nThis session will focus on hepatobiliary disease\, featuring expert talks on cutting-edge research: \nMind over MASLD: Unravelling brain dysfunction in steatotic liver disease – Dr Anna Hadjihambi\, Group Lead\, UKRI Future Leaders Fellow\, King’s College London \nPresentation by Prof Philip Newsome\, Professor of Hepatology and Director of The Roger Williams Institute of Liver Studies – title to be announced \nThe event will be chaired by Dr Cristina Dias\, Chair of the KHP Rare Disease Network\, Clinical Reader in Genomics and Neurodevelopment at King’s College London\, and Consultant in Clinical Genetics and Genomics at Guy’s and St Thomas’ NHS Foundation Trust. \nWhy attend? Connect with the King’s Health Partners research and clinical community\, hear from leading experts\, and explore the latest developments in rare disease research. \nRecording available later on the KHP Learning Hub.
URL:https://www.m4rd.org/event/kings-health-partners-rare-disease-grand-round-hepatobiliary-disease/
LOCATION:ONLINE
CATEGORIES:Genomics,HCPs,Lectures,Rare Diseases,Research,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2025/10/KHP.png
ORGANIZER;CN="King's Health Partners":MAILTO:jennifer.1.burt@kcl.ac.uk
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DTSTART;TZID=Europe/London:20260227T120000
DTEND;TZID=Europe/London:20260227T140000
DTSTAMP:20260504T042703
CREATED:20260129T141824Z
LAST-MODIFIED:20260129T141824Z
UID:14772-1772193600-1772200800@www.m4rd.org
SUMMARY:More Than You Can Imagine: Genomics and Rare Disease
DESCRIPTION:Join Central and South Genomics for an insightful webinar in recognition of Rare Disease Day\, where they will bring together patients\, healthcare professionals\, and researchers to explore the latest in patient advocacy\, genomics and rare disease. This event is for everyone\, whether you’re from a healthcare background\, have been affected by a rare disease\, or are just keen to learn more. \nThis session will cover key topics\, including:\n* Understanding rare diseases and genomics – How advances in genetics are shaping diagnosis and treatment.\n* History of rare disease – How rare disease diagnosis has changed through time.\n* Patient experiences – Real-life stories that highlight the journey from diagnosis to treatment.\n* Support networks & advocacy – Connecting patients with resources for ongoing care. \nYou’ll hear from a range of experts\, from clinicians to charity representatives and patient advocates.  \nIf you have any queries\, please contact Vicki.Geddes@uhb.nhs.uk
URL:https://www.m4rd.org/event/more-than-you-can-imagine-genomics-and-rare-disease-2/
LOCATION:ONLINE
CATEGORIES:Genomics,Networking,Patient Engagement,Policy & Advocacy,Public health,Rare Disease
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