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SUMMARY:11th European Conference on Rare Disease & Orphan Products (ECRD)
DESCRIPTION:The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest\, patient-led rare disease event in which collaborative dialogue\, learning and conversation takes place\, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place. \nECRD 2022 will take place online on 27 June -1 July. \nLeading\, inspiring and engaging all stakeholders to take action\, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with over 1500 stakeholders in the rare disease community – patient advocates\, policy makers\, researchers\, clinicians\, healthcare professionals\, healthcare industry representatives\, academics\, payers\, regulators and Member State representatives. \nThis 11th edition follows a pivotal two-year Rare 2030 Foresight Study\, supported by the European Parliament and European Commission\, that guided a large-scale and multi-stakeholder reflection on rare disease policy in Europe through 2030. \nThe concluding recommendation of Rare2030 was the need for a new European policy framework on rare diseases with measurable and actionable goals. Current actions at Member State level alone\, or legislative changes in specific areas are not enough. We need a new European collective strategy for rare diseases to bring Member States’ commitment to rare diseases under a common umbrella and mark a step forward in the post-COVID world. \nThis ECRD will be a critical opportunity for all stakeholders to consider how to transform this exhaustive review of the strategy on rare diseases into a proposal of concrete actions ultimately creating the ecosystem required to address the unmet needs and persisting inequalities across Europe.
URL:https://www.m4rd.org/event/11th-european-conference-on-rare-disease-orphan-products-ecrd/
LOCATION:ONLINE
CATEGORIES:Conference,Lectures,Networking,Rare Diseases
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DTSTART;VALUE=DATE:20220714
DTEND;VALUE=DATE:20220715
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SUMMARY:Showcase of Genomics across North Thames
DESCRIPTION:Join the North Thames Genomic Medicine Service showcase to find out how genomic medicine is transforming healthcare in their region. \nGenomic medicine is coming into every-day-practice for multi-disciplinary healthcare professionals across the NHS\, improving how we diagnose and treat patients of all ages with cancer and rare or inherited diseases.\nIn North London\, Essex and Hertfordshire\, the North Thames Genomic Medicine Service is delivering new genomic tests and redesigning pathways with clinical services to bring the benefits of genomics to patients across the region. \nIn this one day showcase you can find out how genomic medicine is changing healthcare in the region\, and hear about the new pathways now in place across many services.
URL:https://www.m4rd.org/event/showcase-of-genomics-across-north-thames/
LOCATION:UCL\, Gower Street\, London\, WC1E 6XA\, United Kingdom
CATEGORIES:Genomics,Lectures
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