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X-WR-CALDESC:Events for Medics For Rare Disease
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DTSTART;TZID=Europe/London:20190610T083000
DTEND;TZID=Europe/London:20190610T173000
DTSTAMP:20260509T150121
CREATED:20190403T170403Z
LAST-MODIFIED:20200123T142811Z
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SUMMARY:Epigenetics: The Emerging Key Player in Medicine
DESCRIPTION:Epigenetics is emerging as a key player in medicine. \nWell-known experts in the epigenetics world such as; Professor Wolf Reik\, Professor Stephan Beck\, Professor Sir Adrian Bird\, and Dr Nessa Carey will come together and give awe-inspiring talks across the epigenetics spectrum\, from its role in cancer to mental health\, the relevance to primary care and preventative medicine\, to rare diseases and what we can learn from these. \nWe will hear from those at the cutting edge of the epigenetics revolution and provide valuable insights into health\, disease and new treatments. \nEarly Bird pricing available until 19 April 2019 – RSM Students £25\n \nBOOK NOW \nMeeting topics\n\nUnderstanding epigenetics and the role of chemical modifications to DNA in shaping health and disease\nExploring our increasing appreciation of the impact of epigenetics upon a diverse range of biological processes and diseases\, from cancer to mental health\nRecognising the increasing importance of developing an understanding of epigenetics in clinical practice\nDiscussing the role of epigenetics in developmental programming and the bridge between nature and nurture
URL:https://www.m4rd.org/event/epigenetics-the-emerging-key-player-in-medicine/
LOCATION:Royal Society of Medicine\, 1 Wimpole Street\, London\, W1G 0AE\, United Kingdom
CATEGORIES:Conference,Epigenetics,Lectures
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DTSTART;TZID=Europe/London:20190524T093000
DTEND;TZID=Europe/London:20190524T160000
DTSTAMP:20260509T150121
CREATED:20190429T185458Z
LAST-MODIFIED:20190520T150646Z
UID:4798-1558690200-1558713600@www.m4rd.org
SUMMARY:PKU: A Heads Up
DESCRIPTION:Leading experts will explore the pathophysiology of PKU\, the impact of high phenylalanine levels on the brain of adult patients and the effect of PKU and aging.\nPhenylketonuria (PKU) is an inherited disorder that increases the levels of phenylalanine in the blood. Without treatment\, children develop permanent intellectual disabilities. Seizures\, delayed development\, behavioural problems and psychiatric disorders are also common. \nThis day will explore: \n\nPsychological disorders and mental health\nNeurological deterioration\nBone health\nPremature aging\nNutritional complications\n\nFor more information and to book tickets email keeley.crompton@srft.nhs.uk
URL:https://www.m4rd.org/event/pku-a-heads-up/
LOCATION:Salford Royal Hospitals NHS Foundation Trust\, Stott Lane\, Salford\, Manchester\, M6 8HD\, United Kingdom
CATEGORIES:Conference,Lectures,Rare Diseases
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2019/04/PKU-e1558364786805.png
ORGANIZER;CN="Salford Royal NHS Foundation Trust":MAILTO:Keeley.Crompton@srft.nhs.uk
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DTSTART;TZID=Europe/London:20190508T084500
DTEND;TZID=Europe/London:20190508T170000
DTSTAMP:20260509T150121
CREATED:20190320T133540Z
LAST-MODIFIED:20200122T091342Z
UID:4529-1557305100-1557334800@www.m4rd.org
SUMMARY:Rare diseases and the Kidney
DESCRIPTION:Hear expert nephrologists from clinical and academic fields present the latest updates and developments in a variety of rare disease areas.\nThe meeting will be of relevance to medical student\, trainees and consultants as it provides a unique opportunity to keep up to date with latest clinical developments\, opportunities and research being conducted\, plus MDT and patient partnerships for these conditions. \nRates start from only £20! \nMeeting topics: \n\nExpert overview of a number of rare diseases affecting the kidney\nBest medical management and potential treatments\nLatest research\, developments and opportunities for future research using the RADAR network\n\nFor more information and to book tickets\, visit the RSM Website.
URL:https://www.m4rd.org/event/rare-diseases-and-the-kidney/
LOCATION:Royal Society of Medicine\, 1 Wimpole Street\, London\, W1G 0AE\, United Kingdom
CATEGORIES:Conference,Lectures,Nephrology,Rare Diseases
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2019/03/kidney_RSM.jpg
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DTSTART;TZID=Europe/London:20190318T180000
DTEND;TZID=Europe/London:20190318T200000
DTSTAMP:20260509T150121
CREATED:20190304T153448Z
LAST-MODIFIED:20200123T043900Z
UID:4496-1552932000-1552939200@www.m4rd.org
SUMMARY:A Talk On Haemophilia
DESCRIPTION:KCL MedGenSoc presents: A Talk on Haemophilia\nWe are honoured to be hosting no less than two guest speakers for this event; \n\nKCH Haematology Consultant Dr Catherine Rea\, who specialises in clotting disorders\nYouTuber Luke Pembroke\, who himself suffers from Haemophilia\n\nRefreshments will be served before and after the talk. \nA sign up for a certificate of attendance will be available at the end of the lecture. \nAs always\, external staff and students are more than welcome to attend\, but purchase a free Eventbrite ticket at least 24 hours before the event \nThis talk is in association with Medics 4 Rare Diseases and sponsored by the MDU.
URL:https://www.m4rd.org/event/a-talk-on-haemophilia/
LOCATION:New Hunt’s House Library\, Guy's Campus\, London
CATEGORIES:Lectures
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DTSTART;VALUE=DATE:20181201
DTEND;VALUE=DATE:20181202
DTSTAMP:20260509T150121
CREATED:20181119T095907Z
LAST-MODIFIED:20200123T003318Z
UID:3378-1543622400-1543708799@www.m4rd.org
SUMMARY:Rare Disease Day 2019
DESCRIPTION:It’s 2018 and rare diseases are still not being consistently diagnosed\, treated and supported effectively.\nFree to attend\,  this 2-day festival will shine a light on some successes and innovative solutions that are striving to address this.  RAREfest will raise awareness of rare conditions and bring together all stakeholders in  the rare disease community alongside the general public from across Cambridgeshire and beyond.
URL:https://www.m4rd.org/event/rare-disease-day-2019/
LOCATION:Guildhall Cambridge\, Cambridge\, United Kingdom
CATEGORIES:Conference,Family Day,Lectures,Showcase
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2018/10/Rare-Disease-Day-2019.jpeg
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