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X-WR-CALDESC:Events for Medics For Rare Disease
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DTSTART;TZID=Europe/London:20191008T100000
DTEND;TZID=Europe/London:20191008T170000
DTSTAMP:20260516T112826
CREATED:20190619T194009Z
LAST-MODIFIED:20190827T142944Z
UID:5250-1570528800-1570554000@www.m4rd.org
SUMMARY:The Manchester Rare Disease Showcase
DESCRIPTION:Findacure’s Rare Disease Showcases are a celebration of innovative rare disease projects across the UK. As a world leader in rare research\, exceptional examples of rare disease practice can be found all over the country. Their touring event series heads to local regions to give them the attention they deserve.\nAttendees can expect: \n\nPresentations from rare experts in Manchester’s local area\, including patients\, support groups\, clinicians and researchers.\nHighlights of excellent progress in academic\, healthcare\, industry and patient advocacy\nTwo lightning talk sessions for delegates to propose and share their own rare stories\nAmple patient group and charity exhibitors from across the UK\nDedicated time to network with North West England’s rare community\n\n  \nFindacure are offering a number of exhibition stands to patient organisations and charities completley free of charge. If you are interested in exhibiting\, please email maryrose@findacure.org.uk.
URL:https://www.m4rd.org/event/the-manchester-rare-disease-showcase/
LOCATION:The Bridgewater Hall\, Lower Mosley Street\, Manchester\, Lancashire\, M2 3WS\, United Kingdom
CATEGORIES:Networking,Showcase
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2019/06/manchester-Findacure-_AG28206-e1560972616183.png
ORGANIZER;CN="Findacure":MAILTO:maryrose@findacure.org.uk
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DTSTART;TZID=Europe/London:20191011T133000
DTEND;TZID=Europe/London:20191011T163000
DTSTAMP:20260516T112826
CREATED:20191002T130612Z
LAST-MODIFIED:20191002T130612Z
UID:5861-1570800600-1570811400@www.m4rd.org
SUMMARY:Rett UK Regional Professionals Day
DESCRIPTION:This is a fantastic opportunity to learn more about this rare and complex disorder in an informal session where you have lots of opportunities to ask questions.\nWith over 30 years’ experience\, Rett UK is the only UK charity providing professional family support services and training for anyone involved in supporting someone with Rett syndrome. \nAimed at SLTs\, OTs\, GPs and carers\, this is a free event where the Rett UK team get the opportunity to educate you on this rare neurological disorder\, to answer questions and to inform you of other future events they will be holding.
URL:https://www.m4rd.org/event/rett-uk-regional-professionals-day/
LOCATION:THE HUB\, Easton Street\, High Wycombe\, Buckinghamshire\, HP11 1NJ\, United Kingdom
CATEGORIES:Networking,Patient Information Day,Rare Diseases
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2019/10/RETT-UK-LOGO.jpg
ORGANIZER;CN="Rett UK":MAILTO:keren.decoito@rettuk.org
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