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X-WR-CALDESC:Events for Medics For Rare Disease
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DTSTART;VALUE=DATE:20220201
DTEND;VALUE=DATE:20220204
DTSTAMP:20260515T123644
CREATED:20211103T132333Z
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UID:8540-1643673600-1643932799@www.m4rd.org
SUMMARY:The International Rare Disease Showcase
DESCRIPTION:The International Rare Disease Showcase is a virtual event like no other\, bringing everyone together including\, patient groups\, researchers\, medical professionals\, industry representatives and of course patients themselves.\nHere’s what to expect:  \n\nThree days of interactive sessions led by global experts and advocates\nConversations on policy\, patient advocacy\, access and approval\, new technologies\, research and data collection with an international focus!\nPanel discussions and breakout rooms where attendees will be able to interact with speakers and other attendees\nA worldwide\, diverse and multi-stakeholder audience\nPatient group and industry virtual exhibition booths and dedicated patient group poster zone\nAll material will be available to view on-demand for 21 days after the event
URL:https://www.m4rd.org/event/the-international-rare-disease-showcase/
LOCATION:ONLINE
CATEGORIES:Conference,Networking,Rare Diseases,Showcase
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/11/unnamed-12.png
ORGANIZER;CN="Findacure":MAILTO:maryrose@findacure.org.uk
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DTSTART;TZID=Europe/London:20220209T180000
DTEND;TZID=Europe/London:20220209T200000
DTSTAMP:20260515T123644
CREATED:20210820T112939Z
LAST-MODIFIED:20210923T113010Z
UID:8341-1644429600-1644436800@www.m4rd.org
SUMMARY:The Unusual Suspects: rare disease in everyday medicine
DESCRIPTION:The Unusual Suspects: Rare disease in everyday medicine is returning to The Royal Society of Medicine on 9th February!\nThe M4RD Annual Symposium has been a popular event in the rare disease calendar for many years\, allowing healthcare professionals at all levels\, trainees and students to come together to learn more about the importance of understanding rare diseases as a whole\, with a large focus on improving awareness and management. \nFollowing the success of last year’s online event\, we will be live streaming from 1 Wimpole Street. \nThis is the only medical meeting of its type in the UK that brings together stakeholders from across all sectors and rare diseases in order to teach those who don’t yet know much about rare disease.We will be hearing from patients\, parents\, advocates and clinicians. \nBOOK NOW
URL:https://www.m4rd.org/event/the-unusual-suspects-rare-disease-in-everyday-medicine/
LOCATION:LIVE STREAM
CATEGORIES:Conference,Networking,Rare Diseases,Webinar
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DTSTART;TZID=Europe/London:20220228T183000
DTEND;TZID=Europe/London:20220228T200000
DTSTAMP:20260515T123644
CREATED:20220201T112556Z
LAST-MODIFIED:20220201T112556Z
UID:9074-1646073000-1646078400@www.m4rd.org
SUMMARY:Beyond the Student Voice Prize: Continuing your involvement in rare disease
DESCRIPTION:Learn how you can further your interest and get more involved in the world of rare diseases to benefit both yourself and the rare community\n\n\n\n\n\n\n\nThe Student Voice Prize is delighted to invite you to our virtual rare disease day event ‘Beyond the Student Voice Prize;’ an opportunity to connect with peers and patient group leaders to learn more about the rare community and how you can get further involved.  \nThe event will be an informal opportunity for you to meet new people and share your experiences of the rare disease community and entering the Student Voice Prize. You’ll also learn how you can build on your current knowledge to drive your personal and professional development whilst helping those in the rare disease community. \nWho is this event for?  \n\nPrevious entrants of the Student Voice Prize\nMedical students interested in learning more about rare conditions and getting involved in the community\nRare disease patient group leaders who have been involved in the Student Voice Prize in the past\nRare Disease patient group leaders who haven’t been involved in the Student Voice Prize in the past- all are welcome!\n\nWhy should you attend?  \n\nRare diseases are collectively common\, meaning you are likely to come across them in one form or other in your medical career. Learning about them early can better prepare you as a future clinician and can ensure better outcomes for individuals diagnosed and living with rare conditions.\nRare diseases are gaining increasing momentum as pressing health priorities worldwide\, compounded by advances such as the first-ever UN Resolution on persons with rare diseases and the new UK Rare Diseases Framework. There has never been a better time to get involved with the rare disease community to help create change\, raise awareness and drive your own personal development.\n\nThe Student Voice Prize is much more than just a competition. It has proven itself to be a gateway for many medical students\, nurses and scientists who want to engage with patients from across the medical spectrum\, particularly in rare disease. This is your chance to go beyond and become an advocate for a large\, but poorly represented community and help make a real difference in the lives of rare disease patients and their families.
URL:https://www.m4rd.org/event/beyond-the-student-voice-prize-continuing-your-involvement-in-rare-disease/
LOCATION:ONLINE
CATEGORIES:Networking,Rare Diseases,Student Voice Prize,Webinar
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