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X-WR-CALDESC:Events for Medics For Rare Disease
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DTSTART;TZID=Europe/London:20190923T083000
DTEND;TZID=Europe/London:20190923T173000
DTSTAMP:20260430T003108
CREATED:20190606T205158Z
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UID:5167-1569227400-1569259800@www.m4rd.org
SUMMARY:RAREsummit19
DESCRIPTION:RAREsummit19 is a 1 day summit focusing on patient-centricity in rare disease progress.\nWe’ll be highlighting exemplars of patient\, patient advocacy groups and carers involvement in the development of drugs\, healthcare and assistive technologies. Join us at the Wellcome Genome Campus: a hub of life-changing science. We think it’s the perfect venue to make progress for rare diseases. \nEarly bird tickets available.  Tiered pricing.
URL:https://www.m4rd.org/event/raresummit19/
LOCATION:Wellcome Genome Campus Conference Centre
CATEGORIES:Conference,Lectures,Networking,Rare Diseases
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2019/06/RS19-logo-800px-horz.png
ORGANIZER;CN="CRDN":MAILTO:jo@camraredisease.org
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DTSTART;TZID=Europe/London:20190904T180000
DTEND;TZID=Europe/London:20190904T200000
DTSTAMP:20260430T003108
CREATED:20190816T124209Z
LAST-MODIFIED:20190816T124209Z
UID:5724-1567620000-1567627200@www.m4rd.org
SUMMARY:Everything You Wanted to Know about Genomics but Were Afraid to Ask
DESCRIPTION:The event is produced by the Progress Educational Trust (PET)\, in partnership with Health Education England and its Genomics Education Programme. \nIt will be co-chaired by Sarah Norcross and Dr Anneke Seller\, with speakers including Elizabeth Alexander\, Professor Jill Clayton-Smith\, Dr Simon Ramsden and Sabine Starr. \nIn the PET tradition\, much of this event’s running time will be devoted to letting the audience put questions and comments to the speakers. \nThe event is taking place during NHS England’s Health and Care Innovation Expo\, which is being held at a nearby venue. But attendance is open to everyone\, regardless of whether or not you are registered to attend the Expo.
URL:https://www.m4rd.org/event/everything-you-wanted-to-know-about-genomics-but-were-afraid-to-ask/
LOCATION:Manchester’s Science and Industry Museum\, Science and Industry Museum (Garratt Suite) Liverpool Road\, Manchester\, M3 4FP\, United Kingdom
CATEGORIES:Networking,Showcase
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ORGANIZER;CN="Progress Educational Trust (PET)":MAILTO:admin@progress.org.uk
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20190808T184500
DTEND;TZID=Europe/London:20190808T210000
DTSTAMP:20260430T003108
CREATED:20190619T182057Z
LAST-MODIFIED:20190619T183518Z
UID:5238-1565289900-1565298000@www.m4rd.org
SUMMARY:The Cambridge Rare Disease Showcase
DESCRIPTION:Findacure’s  Rare Disease Showcases are a celebration of innovative rare disease projects across the UK. As a world leader in rare research\, exceptional examples of rare disease practice can be found all over the country. Their touring event series heads to local regions to give them the attention they deserve.\nAttendees can expect: \n\nQuick-fire lightning talks proposed and delivered by registered delegates\nHighlights of developments in the East of England\nOpportunities to build relationships with passionate and dedicated members from all sectors of the rare disease community\nChances to make connections with representatives of Cambridge Biomedical Campus and Cambridge University\nDelicious canapes and refreshments\n\nUpon registration\, all delegates will have the opportunity to propose a five-minute talk to be presented at the showcase. If you have a story to tell\, an innovative new idea or a project to share – now’s your chance! \nAttendance is free to patients patient groups and students\, £10 for academics and clinicians\, and £20 for industry.
URL:https://www.m4rd.org/event/the-cambridge-rare-disease-showcase/
LOCATION:Espresso Library\, 210 East Road\, Cambridge\, Cambridgeshire\, CB1 1BG\, United Kingdom
CATEGORIES:Networking,Showcase
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ORGANIZER;CN="Findacure":MAILTO:maryrose@findacure.org.uk
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20190710T133000
DTEND;TZID=Europe/London:20190710T170000
DTSTAMP:20260430T003108
CREATED:20190529T195130Z
LAST-MODIFIED:20190606T210007Z
UID:5054-1562765400-1562778000@www.m4rd.org
SUMMARY:BPSU Tea Party
DESCRIPTION:The British Paediatric Surveillance Unit invites you to this year’s event to enjoy afternoon tea and cakes\, hear young people speak about their experience of living with rare disease and visit informational stands.\nThe BPSU rare disease tea party will bring together stakeholders from across the rare disease community to hear young people and patient advocates speak about their experience of living with rare disease and working in the rare disease field. \nThis event is intended to be an informal networking opportunity with children and young people and carers\, healthcare professionals\, researchers and policy makers.
URL:https://www.m4rd.org/event/bpsu-tea-party/
LOCATION:Royal College of Paediatrics and Child Health\, 5-11 Theobalds Road\, London\, WC1X 8SH\, United Kingdom
CATEGORIES:Child and Young Person,Family Day,Networking,paediatric,Patient Information Day,Rare Diseases
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ORGANIZER;CN="BPSU":MAILTO:enquiries@rcpch.ac.uk
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