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DTSTAMP:20260411T000319
CREATED:20210220T125554Z
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SUMMARY:Refsum Disease from an Ophthalmology Perspective
DESCRIPTION:Dr. Bart Leroy\, MD\, PhD will present the Ophthalmology side of Refsum Disease and the benefits of early diagnosis by clinicians\nAdult Refsum Disease is a genetic disorder impacting the metabolism of phytanic acid. The key symptoms are Retinitis Pigmentosa\, loss of smell\, hearing loss\, numbness\, balance issues\, itchy skin\, shortened fingers and toes. It is one of the few causes of Retinitis Pigmentosa that has a proven dietary therapy to slow vision and hearing loss. Therefore\, early diagnosis is critical. \n  \nRegister NOW for this FREE online event \n 
URL:https://www.m4rd.org/event/refsum-disease-from-an-ophthalmology-perspective/
LOCATION:ONLINE
CATEGORIES:Lectures,Ophthalmology,Rare Diseases
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2021/02/d703b7_8d1e2155accc49a0a38cfbee716839b5mv2.jpg
ORGANIZER;CN="Global DARE Foundation":MAILTO:info@GlobalDAREFoundation.org
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