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SUMMARY:Rare diseases in primary care - the needles in the haystack (but there are a lot of needles!)
DESCRIPTION:Dr Will Evans will explain how rare diseases are not only relevant to general practice but how GPs are best placed to holistically support people with rare diseases and their families.\nBarts & The London Rare Disease Society are very excited to be joined by Dr Will Evans\, a GP in Leeds\, an academic in the PRISM group at the University of Nottingham and the clinical lead at Mendelian\, a health technology company using data driven approaches to shorten the diagnostic odyssey for rare disease patients. \nWill’s interests are in personalised medicine\, the adoption of genomic technologies in primary care and improving the diagnosis and care of rare disease patients. Will’s eldest son has an ultra-rare disease\, Niemann-Pick disease\, type C\, and is the chairman of the board of trustees of the national charity NPUK. \n  \nComplete this form to book your place
URL:https://www.m4rd.org/event/rare-diseases-in-primary-care-the-needles-in-the-haystack-but-there-are-a-lot-of-needles/
LOCATION:ONLINE
CATEGORIES:Rare Diseases,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/02/1.png
ORGANIZER;CN="Barts & The London Rare Disease Society":MAILTO:s4rd@bartslondon.com
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DTSTART;TZID=Europe/London:20210322T171500
DTEND;TZID=Europe/London:20210322T180000
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SUMMARY:Inaugural Rare Disease Nurse Network Webinar
DESCRIPTION:Are you a nurse/allied health professional working or interested in rare diseases?\nRDNN are building a community to support each other\, share stories and learn from their peers to improve the care they offer to rare disease patients and their families. \nJoin them for their first webinar\, featuring Liz Morris\, Lead Specialist Nurse in the Lysosomal Disorders Service at Addenbrookes Hospital\, Cambridge. Liz will be discussing the process of setting up and running Commissioned Services in Rare Disease\, covering the trials\, tribulations\, pitfalls and benefits. \nIf you are interested in Rare Disease services\, setting up Commissioned Services or are working in the Rare Disease environment\, this webinar is for you. Can’t make the live event\, not to worry\, if you register RDNN will share a recording on their website – www.RDNN.org and let you know when it is live. \nConnect on Twitter: #@NurseRare
URL:https://www.m4rd.org/event/inaugural-rare-disease-nurse-network-webinar/
LOCATION:ONLINE
CATEGORIES:Rare Diseases,Webinar
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ORGANIZER;CN="Rare Disease Nurse Network":MAILTO:Helena.baker@rdnn.org.uk
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