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X-WR-CALNAME:Medics For Rare Disease
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X-WR-CALDESC:Events for Medics For Rare Disease
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SUMMARY:Lessons learned from the COVID-19 pandemic: Diagnostic delay in rare disease
DESCRIPTION:This time last year it became clear to the rare disease community that the COVID-19 pandemic was having a disproportionate and often devastating effect on all aspects of the lives of those living with rare conditions.\nTo remediate this\, a large group of UK-based and cross-sector stakeholders\, known as ARDEnt\, assembled to ensure the capture and analysis of what was truly happening to the fragile rare disease infrastructure.\nJointly organised with ARDEnt\, this webinar will examine how the diagnostic process in rare diseases was affected by the response to the COVID-19 pandemic. \nThe journey to a rare diagnosis is already recognised as a long and arduous process and has been coined the ‘Diagnostic Odyssey’. The ARDEnt team found that diagnostic delay has been further exacerbated during the pandemic and the consequences of this will be felt for years to come as the population of people living with an undiagnosed rare disease will have grown bigger in 2020.  \nRead Making The Unseen Seen: Rare disease and lessons learned from the pandemic report to find out more on this episode\, the series\, and the ARDEnt Team’s research. \nCPD learning applied. \nThis webinar is part of the ‘Lessons learned from the COVID-19 pandemic’ series\, a series that will cover all themes outlined in the Making The Unseen Seen report\, from diagnostic delay in episode 1\, to health and social care in episode 2\, clinical trials and drug development in episode 3\, and concluding with the UK Rare Diseases Framework and action plans in episode 4. \nThis webinar is available for on-demand viewing. The webinar recording will be available for registered delegates up to 30 days after the live webinar broadcast via Zoom. The link will be sent 24 hours after the webinar takes place. 
URL:https://www.m4rd.org/event/lessons-learned-from-the-covid-19-pandemic-diagnostic-delay-in-rare-disease/
LOCATION:ONLINE
CATEGORIES:COVID-19,Rare Diseases,Royal Society of Medicine,Webinar
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211129T173000
DTEND;TZID=Europe/London:20211129T183000
DTSTAMP:20260521T205545
CREATED:20211105T142723Z
LAST-MODIFIED:20211105T142723Z
UID:8559-1638207000-1638210600@www.m4rd.org
SUMMARY:The genetics of consanguinity and inherited risk
DESCRIPTION:This webinar aims to explore the issues and management of risks related to endogamy and consanguinity and will highlight new advances in pre-natal screening protocols. Consanguineous marriage is still practiced by over 30% of the world’s population and in some areas\, the prevalence is as high as 60%. Advances in next-generation gene sequencing have led to a better understanding of pre-emptive carrier risk assessments and adult-onset disease risks. \nCPD accredited. \nFree for RSM members.
URL:https://www.m4rd.org/event/the-genetics-of-consanguinity-and-inherited-risk/
LOCATION:ONLINE
CATEGORIES:Genetics,Royal Society of Medicine,Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2021/11/unnamed-20.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211124T120000
DTEND;TZID=Europe/London:20211124T164500
DTSTAMP:20260521T205545
CREATED:20211105T142429Z
LAST-MODIFIED:20211105T142429Z
UID:8556-1637755200-1637772300@www.m4rd.org
SUMMARY:Artificial intelligence in genomic medicine
DESCRIPTION:Join world-renowned experts as they lead exciting discussions exploring the intersection between Artificial Intelligence and Genomic Medicine. Experts leading the panel discussions include Chris Wigley\, CEO of Genomics England\, Professor Pearse Keane\, Professor of Artificial Intelligence Medicine at UCL\, Dr Stephen Kingsmore\, President and CEO of Rady Children’s Institute for Genomic Medicine\, and Professor Mihaela van der Schaar\,Professor of Machine Learning\, Artificial Intelligence and Medicine at the University of Cambridge. \nCPD accredited. \nFree for RSM members.
URL:https://www.m4rd.org/event/artificial-intelligence-in-genomic-medicine/
LOCATION:ONLINE
CATEGORIES:Genomics,Royal Society of Medicine,Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2021/11/unnamed-19.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211111T180000
DTEND;TZID=Europe/London:20211111T194500
DTSTAMP:20260521T205545
CREATED:20211105T142052Z
LAST-MODIFIED:20211105T142121Z
UID:8551-1636653600-1636659900@www.m4rd.org
SUMMARY:Genomic ophthalmology: Diagnostics and therapeutics
DESCRIPTION:This webinar will provide insights and updates on ophthalmic genetics to ophthalmologists. Specialist speakers will educate delegates on how to order genetic testing\, how whole genome sequencing will improve patient care\, and will discuss the genetic therapies in development including limitations and new technology. \nCPD accredited. \nFree for RSM members.
URL:https://www.m4rd.org/event/genomic-ophthalmology-diagnostics-and-therapeutics/
LOCATION:ONLINE
CATEGORIES:Ophthalmology,Royal Society of Medicine,Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2021/11/unnamed-18.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211020T140000
DTEND;TZID=Europe/London:20211020T163000
DTSTAMP:20260521T205545
CREATED:20210930T132522Z
LAST-MODIFIED:20210930T132522Z
UID:8462-1634738400-1634747400@www.m4rd.org
SUMMARY:Learning together: The importance of patient partnership
DESCRIPTION:Join the RSM to reflect on the principles of patient partnership and patient care in this afternoon prize meeting.  \nDr Bola Owolabi\, Director – Health Inequalities NHS England and NHS Improvement\,  will deliver the keynote lecture\, exploring the importance of patient partnership in the training of our future doctors. Medical students will have the opportunity to deliver a presentation on their reflections of the impact of the pandemic on themselves\, other healthcare professionals and patients.
URL:https://www.m4rd.org/event/learning-together-the-importance-of-patient-partnership/
LOCATION:ONLINE
CATEGORIES:Royal Society of Medicine,Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2021/09/unnamed-17.jpg
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