BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Medics For Rare Disease - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Medics For Rare Disease
X-ORIGINAL-URL:https://www.m4rd.org
X-WR-CALDESC:Events for Medics For Rare Disease
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/London
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20210328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20211031T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20221030T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20230326T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20231029T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20240331T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20241027T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20251026T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220707T173000
DTEND;TZID=Europe/London:20220707T183000
DTSTAMP:20260504T051000
CREATED:20220428T122714Z
LAST-MODIFIED:20220428T122714Z
UID:9298-1657215000-1657218600@www.m4rd.org
SUMMARY:Facing up to the genomic gap: Tackling equality and diversity in genomics on
DESCRIPTION:This webinar is part of the popular Genetics of webinar series and will discuss the challenge of equality and diversity in genomic research and clinical settings and strategies to address this. \nGenomic research has traditionally been focused on caucasian populations\, which leads to inherent biases in genomic findings translated into clinical research. Underrepresentation of other populations in genomic datasets and biobanking endeavours leads to genomic medicine services being underutilized and inaccessible to these communities. \nDuring this webinar you will: \n\nUnderstand that genomic data is under-representative of many minority populations which has a direct impact on genomic research\nDevelop an idea of how the scientific community is trying to address this issue\nAppreciate the challenges of ensuring that diverse communities are able to access the genomic medicine service\nDescribe strategies that are being undertaken to try and improve genomic testing provision within diverse communities
URL:https://www.m4rd.org/event/facing-up-to-the-genomic-gap-tackling-equality-and-diversity-in-genomics-on/
LOCATION:LIVE STREAM
CATEGORIES:Genomics,Royal Society of Medicine,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2022/04/Screenshot-2022-04-28-at-13.25.27.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221029T130000
DTEND;TZID=Europe/London:20221029T160000
DTSTAMP:20260504T051000
CREATED:20221004T085820Z
LAST-MODIFIED:20221004T085820Z
UID:10125-1667048400-1667059200@www.m4rd.org
SUMMARY:Patient partnerships: Improving healthcare equality from pandemic to endemic
DESCRIPTION:The purpose of this event is to promote partnerships between patients and the medical profession to pave the way for a better\, more inclusive healthcare system as we rebuild after the pandemic. By strengthening this relationship\, we aim to ensure patients never feel isolated when they are at their most vulnerable. We will discuss real-life examples of partnerships and their successes.\nThere will be a series of presentations and workshops by students and experienced professionals on non-technical aspects of medical practice\, such as political challenges with the public health service and humanitarian values. The event will end with a prize-giving ceremony for the Dr Edwin Doubleday essay award\, which funds medical students aspiring to improve the relationship between patients and the medical profession. \nAims of the event: \n\nTo highlight the role and importance of patient partnerships\nTo educate the medics of tomorrow about non-technical aspects of practice\nTo inspire attendees to improve the relationship between patients and the medical profession\nTo give attendees the chance to improve their presentation and networking skills\n\nThis event is run in association with the University of Manchester Doubleday Centre and the Doubleday Medical Schools Patient Partnership Collaboration. \nStudents are invited to submit an essay using this link below to enter the Doubleday Student Prize.
URL:https://www.m4rd.org/event/patient-partnerships-improving-healthcare-equality-from-pandemic-to-endemic/
LOCATION:LIVE STREAM
CATEGORIES:Medical Students,Patient advocacy,Royal Society of Medicine,workshop
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2022/10/GROUP_ON_DOT.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221208
DTEND;VALUE=DATE:20221209
DTSTAMP:20260504T051000
CREATED:20220930T125101Z
LAST-MODIFIED:20220930T125101Z
UID:10118-1670457600-1670543999@www.m4rd.org
SUMMARY:Advances in renal genetics
DESCRIPTION:Attend this meeting for a comprehensive update on the clinical management of genetic and inherited kidney diseases\, including cystic and basement membrane disorders\, podocytopathies and tubulopathies\, in both children and adults. \nWe will review the evolution of new genomic methodologies\, including how they are informing our knowledge of kidney disease pathogenesis and outcomes\, and their potential impact on patient care in the future. \nAims of the event include: \n\nTo describe recent developments in the management of inherited kidney diseases\nTo consider the present and future impacts of novel genomic approaches in nephrology\nTo explore the development of local and national genetic services in the NHS\n\nBook to attend this event in person or virtually. To view the rates and agenda\, please select your preference below.
URL:https://www.m4rd.org/event/advances-in-renal-genetics/
LOCATION:Royal Society of Medicine\, 1 Wimpole Street\, London\, W1G 0AE\, United Kingdom
CATEGORIES:Genetics,Royal Society of Medicine
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2022/09/Screenshot-2022-09-30-at-13.45.26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230215T123000
DTEND;TZID=Europe/London:20230215T180000
DTSTAMP:20260504T051000
CREATED:20220812T120200Z
LAST-MODIFIED:20221028T104855Z
UID:9811-1676464200-1676484000@www.m4rd.org
SUMMARY:The Unusual Suspects: rare disease in everyday medicine
DESCRIPTION:We are delighted to announce our 10th annual symposium and\, for the first time since 2020\, it’s returning live and in-person!\nSAVE THE DATE… Join us on Wednesday 15th February 2023 at 1 Wimpole Street for M4RD’s annual symposium ‘The Unusual Suspects: rare disease in everyday medicine’. \nThe Unusual Suspects has been a popular event in the rare disease calendar for many years\, allowing healthcare professionals at all levels\, trainees and students to come together to learn more about the importance of understanding rare diseases as a whole\, with a large focus on improving awareness and management and the lived patient experience. \nFollowing our online symposiums in 2021 and 2022\, we are excited to be back in London hosting this event from the home of the Royal Society of Medicine\, in the Wheatley Room.  The theme this year will be on mental health and will follow the launch of our new MH module being launched on M4RD Learn in 2023. \nThis is the only medical meeting of its type in the UK that brings together stakeholders from across all sectors and rare diseases in order to teach those who don’t yet know much about rare disease. We will hear from patients\, parents\, advocates and clinicians. \nThis event will also be available to live stream if you are unable to join us in person. \nClick here for more details\, including our programme and how to register.
URL:https://www.m4rd.org/event/the-unusual-suspects-rare-disease-in-everyday-medicine-2/
LOCATION:Royal Society of Medicine\, 1 Wimpole Street\, London\, W1G 0AE\, United Kingdom
CATEGORIES:M4RD,Royal Society of Medicine
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2022/08/Wednesday-15th-February-2023.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20240221T120000
DTEND;TZID=Europe/London:20240221T180000
DTSTAMP:20260504T051000
CREATED:20230925T102622Z
LAST-MODIFIED:20240216T113842Z
UID:11299-1708516800-1708538400@www.m4rd.org
SUMMARY:The Unusual Suspects: Rare Disease in Everyday Medicine 2024
DESCRIPTION:The aim of the meeting is to inform doctors that rare diseases are collectively common and relevant to every medical career.  Very different rare diseases face similar challenges\, including navigating healthcare which can be alleviated by a medical profession that understands what living with a rare disease means to a patient and their larger community. \nThe focus for this year’s event will be communication and inclusivity in rare disease. The majority of people living with rare conditions will never receive a disease-modifying treatment or benefit from a specialist service. Often a system built on evidence-based medicine doesn’t work for patients who have little evidence about their condition. This can leave their clinicians feeling helpless and the patient feeling isolated. \nThis session will help participants build on their listening and communication skills for the benefit of people living with untreatable long-term conditions. \nThe speakers confirmed for the event are: \n▪ Dr Lisa Kauffmann\, Consultant community paediatrician & Associate Medical Director at children’s community health services\, Manchester Local Care Organisation\n▪ Jono Lancaster\, Author of ‘Not All Heroes Wear Capes’\n▪ Hope Russell-Winter\, Ambassador for M4RD and Runner-up on The Voice UK\n▪ Kevin Ward\, NHS Healthcare Improvement Scotland WMTY movement\n▪Kerry Leeson\, CEO\, Breaking Down Barriers\n▪Aisha Seedat\, M4RD Patient Ambassador and her sister Saffiya Seedat who is an ardent advocate for individuals with rare diseases\n▪Leisha Devisetti – The winner of the Student Voice Prize 2023
URL:https://www.m4rd.org/event/the-unusual-suspects-rare-disease-in-everyday-medicine-3/
LOCATION:The Royal Society of Medicine
CATEGORIES:Royal Society of Medicine,Student Voice Prize
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2023/09/INSTAGRAM_POST_START_M4RD_UNUSUAL_SUSPECTS_2024_1080px_START_THE_COUNTDOWN.png
END:VEVENT
END:VCALENDAR