BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Medics For Rare Disease - ECPv6.15.18//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Medics For Rare Disease
X-ORIGINAL-URL:https://www.m4rd.org
X-WR-CALDESC:Events for Medics For Rare Disease
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20170101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=UTC:20190119T093000
DTEND;TZID=UTC:20190119T160000
DTSTAMP:20260405T191717
CREATED:20181119T095405Z
LAST-MODIFIED:20200122T122036Z
UID:3371-1547890200-1547913600@www.m4rd.org
SUMMARY:Information Day On Fibromuscular Dysplasia (FMD)
DESCRIPTION:Fibromuscular Dysplasia (FMD) is evolving from a rare disease of renal arteries accounting for a minority of cases of secondary hypertension in young women\, to a ‘systemic’ vascular disease which can also affect cervico-cephalic\, coronary\, and iliac arteries.\nThis patient information day will aim to explain what FMD is\, challenge previous misconceptions about FMD and highlight the latest work being undertaken by registries and research. \nCome and hear from expert international guest speakers such as Prof Alexandre Persu (lead for European FMD registry) and Prof David Adlam (UK expert in spontaneous coronary artery dissection (SCAD))\, as well as celebrity chef and FMD/ SCAD sufferer\, Sally Bee. This day will be of interest to clinicians\, patients and carers alike. Any further information\, contact tina.chrysochou@srft.nhs.uk or @FmdsUk \nPatients with FMD in any arterial bed can be uploaded to FMD RADAR. \nPlease refer to the Agenda for further information.
URL:https://www.m4rd.org/event/information-day-on-fibromuscular-dysplasia/
CATEGORIES:Conference,Patient Information Day
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2018/10/Information-Day-On-Fibromuscular-Dysplasia.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20181203T180000
DTEND;TZID=UTC:20181203T200000
DTSTAMP:20260405T191717
CREATED:20181119T095120Z
LAST-MODIFIED:20200122T063113Z
UID:3369-1543860000-1543867200@www.m4rd.org
SUMMARY:Prospects For New Treatments In Rare Diseases
DESCRIPTION:Dr Melita Irving\, Consultant Geneticist\, President of The Genetics Section of The Royal Society of Medicine and long-term friend of M4RD…is hosting this evening lecture organised by the awesome King’s College Medical Genetics Society. Rare Diseases is an exciting field to be working in these days as new treatments are emerging for previously untreatable conditions. Come along and find out more! \nKeep up to date about this event and lots of others organised by KCL Medical Genetics Society on their Facebook page.
URL:https://www.m4rd.org/event/prospects-for-new-treatments-in-rare-diseases/
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2018/10/Prospects-For-New-Treatments-In-Rare-Diseases.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20181201
DTEND;VALUE=DATE:20181202
DTSTAMP:20260405T191717
CREATED:20181119T095907Z
LAST-MODIFIED:20200123T003318Z
UID:3378-1543622400-1543708799@www.m4rd.org
SUMMARY:Rare Disease Day 2019
DESCRIPTION:It’s 2018 and rare diseases are still not being consistently diagnosed\, treated and supported effectively.\nFree to attend\,  this 2-day festival will shine a light on some successes and innovative solutions that are striving to address this.  RAREfest will raise awareness of rare conditions and bring together all stakeholders in  the rare disease community alongside the general public from across Cambridgeshire and beyond.
URL:https://www.m4rd.org/event/rare-disease-day-2019/
LOCATION:Guildhall Cambridge\, Cambridge\, United Kingdom
CATEGORIES:Conference,Family Day,Lectures,Showcase
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2018/10/Rare-Disease-Day-2019.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20181130T090000
DTEND;TZID=UTC:20181201T100000
DTSTAMP:20260405T191717
CREATED:20181119T094734Z
LAST-MODIFIED:20181119T094734Z
UID:3365-1543568400-1543658400@www.m4rd.org
SUMMARY:Rarefest 2018
DESCRIPTION:It’s 2018 and rare diseases are still not being consistently diagnosed\, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you by Cambridge Rare Disease Network (CRDN).  Free to attend\, this 2-day festival will shine a light on some successes and innovative solutions that are striving to address this. RAREfest will raise awareness of rare conditions and bring together all stakeholders in  the rare disease community alongside the general public from across Cambridgeshire and beyond. We are proud to be supporting RAREfest. For more information visit the event website. #RAREfest18
URL:https://www.m4rd.org/event/rarefest-2018/
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2018/10/Rarefest-2018.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20181128T083000
DTEND;TZID=UTC:20181128T170000
DTSTAMP:20260405T191717
CREATED:20181119T093926Z
LAST-MODIFIED:20181119T093926Z
UID:3362-1543393800-1543424400@www.m4rd.org
SUMMARY:Diagnostic Challenges And Clinical Management Of Dna Repair Disorders
DESCRIPTION:Topics Include: \n\nThe cellular biology of DNA repair disorders\nThe clinical presentation of DNA repair disorders\nUpdated expert guidance on the clinical management of DNA repair disorders\nWhat DNA repair disorders can teach us about the process of ageing\nHow specialist services for DNA repair disorders are structured and how they were established\nWhat it is like to live with a DNA repair disorder\n\nFind out more here
URL:https://www.m4rd.org/event/diagnostic-challenges-and-clinical-management-of-dna-repair-disorders/
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2018/10/Diagnostic-Challenges-And-Clinical-Management-Of-Dna-Repair-Disorders.jpg
END:VEVENT
END:VCALENDAR