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DTSTART;TZID=Europe/London:20211122T123000
DTEND;TZID=Europe/London:20211122T143000
DTSTAMP:20260403T205620
CREATED:20211104T085719Z
LAST-MODIFIED:20211104T085719Z
UID:8546-1637584200-1637591400@www.m4rd.org
SUMMARY:Understanding Health Inequalities Event
DESCRIPTION:Are you affected by a rare condition and from a diverse and marginalised community?\nIf so\, join Breaking Down Barriers for their virtual event\, to help them understand how health inequalities affect you. People diagnosed with a rare condition\, family members\, carers\, and charity representatives are all welcome to come along and offer support. BDB want the conversation to be as open\, accessible and as inclusive as possible. \nWhat will be discussed?\nHealth inequalities are unfair and avoidable differences in health between different groups of people. Breaking Down Barriers and the Department of Health and Social Care are working in partnership to understand more about the health inequalities experienced by people from diverse and marginalised communities who are also affected by a rare condition. We want to listen and learn about people’s lived experiences and identify ways that we can address health inequalities throughout new policies for people with rare conditions that are being developed now. \nHow to get involved\nIf you would like to join us\, please email Kerry.leeson@alstrom.org.uk or call 077161 35940. \nBDB will then send you joining instructions. BDB can also arrange a 1-1 chat before the event if that is helpful. Please let them know if there is anything they can do to support you to take part.
URL:https://www.m4rd.org/event/understanding-health-inequalities-event/
LOCATION:ONLINE
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2021/11/FDRaBAnXIAoOjmV.jpeg
ORGANIZER;CN="Breaking Down Barriers":MAILTO:kerry.leeson@alstrom.org.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211124T120000
DTEND;TZID=Europe/London:20211124T164500
DTSTAMP:20260403T205620
CREATED:20211105T142429Z
LAST-MODIFIED:20211105T142429Z
UID:8556-1637755200-1637772300@www.m4rd.org
SUMMARY:Artificial intelligence in genomic medicine
DESCRIPTION:Join world-renowned experts as they lead exciting discussions exploring the intersection between Artificial Intelligence and Genomic Medicine. Experts leading the panel discussions include Chris Wigley\, CEO of Genomics England\, Professor Pearse Keane\, Professor of Artificial Intelligence Medicine at UCL\, Dr Stephen Kingsmore\, President and CEO of Rady Children’s Institute for Genomic Medicine\, and Professor Mihaela van der Schaar\,Professor of Machine Learning\, Artificial Intelligence and Medicine at the University of Cambridge. \nCPD accredited. \nFree for RSM members.
URL:https://www.m4rd.org/event/artificial-intelligence-in-genomic-medicine/
LOCATION:ONLINE
CATEGORIES:Genomics,Royal Society of Medicine,Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2021/11/unnamed-19.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211129T173000
DTEND;TZID=Europe/London:20211129T183000
DTSTAMP:20260403T205620
CREATED:20211105T142723Z
LAST-MODIFIED:20211105T142723Z
UID:8559-1638207000-1638210600@www.m4rd.org
SUMMARY:The genetics of consanguinity and inherited risk
DESCRIPTION:This webinar aims to explore the issues and management of risks related to endogamy and consanguinity and will highlight new advances in pre-natal screening protocols. Consanguineous marriage is still practiced by over 30% of the world’s population and in some areas\, the prevalence is as high as 60%. Advances in next-generation gene sequencing have led to a better understanding of pre-emptive carrier risk assessments and adult-onset disease risks. \nCPD accredited. \nFree for RSM members.
URL:https://www.m4rd.org/event/the-genetics-of-consanguinity-and-inherited-risk/
LOCATION:ONLINE
CATEGORIES:Genetics,Royal Society of Medicine,Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2021/11/unnamed-20.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211130T190000
DTEND;TZID=Europe/London:20211130T203000
DTSTAMP:20260403T205620
CREATED:20211014T080745Z
LAST-MODIFIED:20211014T080851Z
UID:8488-1638298800-1638304200@www.m4rd.org
SUMMARY:Top tips for managing rare disease in GP
DESCRIPTION:The RCGP Northern Ireland Faculty is delighted to be collaborating with the Northern Ireland Rare Disease Partnership (NIRDP) to host a ‘Top Tips for Managing Rare Disease in GP’ evening. Topics provided aim to help you manage patients with rare disease.\nThe event is hosted by the RCGP Northern Ireland and some aspects may be NI focused\, but we welcome GPs from any nation to join if interested. \nSpeakers include: \n\nDr Caoimhe McKenna\, Clinical Genetic Registrar\nDr Genevieve Allum\, GP\nDr Lucy McKay\, CEO M4RD\nProf AJ McKnighht\, Queens University\, Belfast\n\nFor any queries or further information please contact Fiona Monaghan fiona.monaghan@rcgp.org.uk 
URL:https://www.m4rd.org/event/top-tips-for-managing-rare-disease-in-gp/
LOCATION:ONLINE
CATEGORIES:clinical,General Practice,Rare Diseases
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2021/10/FBfIgNeXoAQmPnI.jpeg
ORGANIZER;CN="Northern Ireland Rare Disease Partnership (NIRDP)":MAILTO:info@nirdp.org.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211208T190000
DTEND;TZID=Europe/London:20211208T203000
DTSTAMP:20260403T205621
CREATED:20211109T091255Z
LAST-MODIFIED:20211202T100002Z
UID:8566-1638990000-1638995400@www.m4rd.org
SUMMARY:Diagnosis and Management of Rare Diseases
DESCRIPTION:This FREE live 90-minute webinar will focus on the diagnosis and management of rare diseases\, in particular haematological conditions.\nThe fundamentals of a rare disease – what is it? Who is affected? What’s impact and challenges when a condition is rare? What do rare conditions have in common? How can clinicians seek help\, advice and alleviate some of the burden of rarity. The webinar will focus on both generic issues relevant to patients and clinicians and also a detailed look at some example haematological conditions. The webinar will include practical examples and case based discussions. \nLearning Outcomes: \n\nAppreciate that rare conditions can impact patients in similar ways\nHow to approach potential rare diseases from a primary care viewpoint\nRelevance of rare diseases to your clinical practice\, how you might recognise them and when to ask for advice/refer\nSpecific haematological learning for example in sickle cell disease and haemophilia\nIdentify resources that can support you and your patient\n\nThere will be plenty of time in this webinar for Q&A. \nSpeakers will include: \nDr Lucy McKay\, CEO of Medics4RareDiseases\nDr William Evans\, Chairman NPUK\nMrs Karen Harrison\, Alex The Leukodystrophy Charity \n 
URL:https://www.m4rd.org/event/rare-blood-diseases/
LOCATION:ONLINE
CATEGORIES:Blood,clinical,RCGP,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/11/RCGP-event-1920-x-1080-px.png
ORGANIZER;CN="Royal College of General Practioners":MAILTO:info@rcgp.org.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211214T110000
DTEND;TZID=Europe/London:20211214T123000
DTSTAMP:20260403T205621
CREATED:20211119T093833Z
LAST-MODIFIED:20211119T093833Z
UID:8625-1639479600-1639485000@www.m4rd.org
SUMMARY:Maximising engagement with healthcare professionals
DESCRIPTION:Join this webinar to explore the practical things patient groups can do to make sure they are engaging with HCPs in the most beneficial way.\nMost rare diseases are not concentrated in one area or country and do not affect one singular body system\, which makes finding healthcare professionals (HCPs) or specialists who understand them a real challenge for patients and patient organisations. Yet\, it is often a top strategic priority for patient organisations to find and engage with these professionals to drive faster diagnoses\, better understanding of and research into rare conditions. \nThis can be a real challenge when most HCPs have a very limited knowledge of rare conditions. HCPs often look straight to google for their research where they can be met with misinformation and do not always find the patient organisations that are the real experts straight away. Thus\, it falls onto the shoulders of these patient organisations to make themselves more visible and receptive to engagement with healthcare professionals. Whether at a basic operational level\, an organisational level\, through external collaborations or even by working with the organisations such as the NHS and NICE. \n\n\n\n\nThis webinar will:  \n\n\n\n\n\n\n\n\n\n\n\n\n\nExplore the different levels on which patient organisations can base their engagement with medical professionals\nCover the practical things patients can do (no matter what size or capacity) to engage efficiently and sustainably with HCPs\nHighlight case studies from across the rare space of what different patient groups are doing\n\nPlease note: This is the first in a series of two webinars which will explore engagement with HCPs. \n\n\n\n\n 
URL:https://www.m4rd.org/event/maximising-engagement-with-healthcare-professionals/
CATEGORIES:Patient advocacy,Rare Diseases,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/11/unnamed-13.png
ORGANIZER;CN="Findacure":MAILTO:maryrose@findacure.org.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220201
DTEND;VALUE=DATE:20220204
DTSTAMP:20260403T205621
CREATED:20211103T132333Z
LAST-MODIFIED:20211103T132333Z
UID:8540-1643673600-1643932799@www.m4rd.org
SUMMARY:The International Rare Disease Showcase
DESCRIPTION:The International Rare Disease Showcase is a virtual event like no other\, bringing everyone together including\, patient groups\, researchers\, medical professionals\, industry representatives and of course patients themselves.\nHere’s what to expect:  \n\nThree days of interactive sessions led by global experts and advocates\nConversations on policy\, patient advocacy\, access and approval\, new technologies\, research and data collection with an international focus!\nPanel discussions and breakout rooms where attendees will be able to interact with speakers and other attendees\nA worldwide\, diverse and multi-stakeholder audience\nPatient group and industry virtual exhibition booths and dedicated patient group poster zone\nAll material will be available to view on-demand for 21 days after the event
URL:https://www.m4rd.org/event/the-international-rare-disease-showcase/
LOCATION:ONLINE
CATEGORIES:Conference,Networking,Rare Diseases,Showcase
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/11/unnamed-12.png
ORGANIZER;CN="Findacure":MAILTO:maryrose@findacure.org.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220201T183000
DTEND;TZID=Europe/London:20220201T200000
DTSTAMP:20260403T205621
CREATED:20211006T143630Z
LAST-MODIFIED:20211006T143630Z
UID:8475-1643740200-1643745600@www.m4rd.org
SUMMARY:Lessons learned from the COVID-19 pandemic: Diagnostic delay in rare disease
DESCRIPTION:This time last year it became clear to the rare disease community that the COVID-19 pandemic was having a disproportionate and often devastating effect on all aspects of the lives of those living with rare conditions.\nTo remediate this\, a large group of UK-based and cross-sector stakeholders\, known as ARDEnt\, assembled to ensure the capture and analysis of what was truly happening to the fragile rare disease infrastructure.\nJointly organised with ARDEnt\, this webinar will examine how the diagnostic process in rare diseases was affected by the response to the COVID-19 pandemic. \nThe journey to a rare diagnosis is already recognised as a long and arduous process and has been coined the ‘Diagnostic Odyssey’. The ARDEnt team found that diagnostic delay has been further exacerbated during the pandemic and the consequences of this will be felt for years to come as the population of people living with an undiagnosed rare disease will have grown bigger in 2020.  \nRead Making The Unseen Seen: Rare disease and lessons learned from the pandemic report to find out more on this episode\, the series\, and the ARDEnt Team’s research. \nCPD learning applied. \nThis webinar is part of the ‘Lessons learned from the COVID-19 pandemic’ series\, a series that will cover all themes outlined in the Making The Unseen Seen report\, from diagnostic delay in episode 1\, to health and social care in episode 2\, clinical trials and drug development in episode 3\, and concluding with the UK Rare Diseases Framework and action plans in episode 4. \nThis webinar is available for on-demand viewing. The webinar recording will be available for registered delegates up to 30 days after the live webinar broadcast via Zoom. The link will be sent 24 hours after the webinar takes place. 
URL:https://www.m4rd.org/event/lessons-learned-from-the-covid-19-pandemic-diagnostic-delay-in-rare-disease/
LOCATION:ONLINE
CATEGORIES:COVID-19,Rare Diseases,Royal Society of Medicine,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/10/Untitled-design-26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220208T183000
DTEND;TZID=Europe/London:20220208T200000
DTSTAMP:20260403T205621
CREATED:20211006T143558Z
LAST-MODIFIED:20211006T143558Z
UID:8478-1644345000-1644350400@www.m4rd.org
SUMMARY:Lessons learned from the COVID-19 pandemic: Rare disease health and social care coordination
DESCRIPTION:During times of global disruption\, it is often those who are already disadvantaged that are disproportionately affected. Theme 2 of the ARDEnt report highlights this impact on those with rare conditions.\nJointly organised with ARDEnt\, this webinar will examine how the reduction to healthcare\, social services and SEND (special educational needs and disabilities) education has had a devastating impact that will be felt long after COVID-19 restrictions are lifted.\nAs the world begins to find its new normal we must ensure we are “making the unseen seen”. \nRead Making The Unseen Seen: Rare disease and lessons learned from the pandemic report to find out more on this episode\, the series\, and the ARDEnt Team’s research. \nCPD learning applied. \nThis webinar is part of the ‘Lessons learned from the COVID-19 pandemic’ series\, a series that will cover all themes outlined in the Making The Unseen Seen report\, from diagnostic delay in episode 1\, to health and social care in episode 2\, clinical trials and drug development in episode 3\, and concluding with the UK Rare Diseases Framework and action plans in episode 4. \nThis webinar is available for on-demand viewing. The webinar recording will be available for registered delegates up to 30 days after the live webinar broadcast via Zoom. The link will be sent 24 hours after the webinar takes place. 
URL:https://www.m4rd.org/event/lessons-learned-from-the-covid-19-pandemic-rare-disease-health-and-social-care-coordination/
LOCATION:ONLINE
CATEGORIES:COVID-19,Rare Diseases,Royal Society of Medicine,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/10/Untitled-design-26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220209T180000
DTEND;TZID=Europe/London:20220209T200000
DTSTAMP:20260403T205621
CREATED:20210820T112939Z
LAST-MODIFIED:20210923T113010Z
UID:8341-1644429600-1644436800@www.m4rd.org
SUMMARY:The Unusual Suspects: rare disease in everyday medicine
DESCRIPTION:The Unusual Suspects: Rare disease in everyday medicine is returning to The Royal Society of Medicine on 9th February!\nThe M4RD Annual Symposium has been a popular event in the rare disease calendar for many years\, allowing healthcare professionals at all levels\, trainees and students to come together to learn more about the importance of understanding rare diseases as a whole\, with a large focus on improving awareness and management. \nFollowing the success of last year’s online event\, we will be live streaming from 1 Wimpole Street. \nThis is the only medical meeting of its type in the UK that brings together stakeholders from across all sectors and rare diseases in order to teach those who don’t yet know much about rare disease.We will be hearing from patients\, parents\, advocates and clinicians. \nBOOK NOW
URL:https://www.m4rd.org/event/the-unusual-suspects-rare-disease-in-everyday-medicine/
LOCATION:LIVE STREAM
CATEGORIES:Conference,Networking,Rare Diseases,Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2021/08/M4RD2020-114-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220215T180000
DTEND;TZID=Europe/London:20220215T203000
DTSTAMP:20260403T205621
CREATED:20211006T143455Z
LAST-MODIFIED:20211006T143455Z
UID:8480-1644948000-1644957000@www.m4rd.org
SUMMARY:Lessons learned from the COVID-19 pandemic: Clinical trials and drug development in rare disease
DESCRIPTION:This episode refers to theme 3 in the Making The Unseen Seen: Rare disease and lessons learned from the pandemic report and will discuss how safety considerations\, travel restrictions\, shielding\, trial-sites being repurposed to COVID-19 wards\, research staff either being called to the front- line or called to replace others who were\, have compounded the already fragile world of clinical development for rare diseases.\nRead Making The Unseen Seen: Rare disease and lessons learned from the pandemic report to find out more on this episode\, the series\, and the ARDEnt Team’s research. \nCPD learning applied. \nThis webinar is part of the ‘Lessons learned from the COVID-19 pandemic’ series\, a series that will cover all themes outlined in the Making The Unseen Seen report\, from diagnostic delay in episode 1 to health and social care in episode 2\, clinical trials and drug development in episode 3\, and concluding with the UK Rare Diseases Framework and action plans in episode 4. \nThis webinar is available for on-demand viewing. The webinar recording will be available for registered delegates up to 30 days after the live webinar broadcast via Zoom. The link will be sent 24 hours after the webinar takes place.
URL:https://www.m4rd.org/event/lessons-learned-from-the-covid-19-pandemic-clinical-trials-and-drug-development-in-rare-disease/
LOCATION:ONLINE
CATEGORIES:COVID-19,Rare Diseases,Royal Society of Medicine,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/10/Untitled-design-26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220222T180000
DTEND;TZID=Europe/London:20220222T203000
DTSTAMP:20260403T205621
CREATED:20211006T143422Z
LAST-MODIFIED:20211006T143422Z
UID:8482-1645552800-1645561800@www.m4rd.org
SUMMARY:Lessons learned from the COVID-19 pandemic: Looking to the future with The UK Rare Diseases Framework
DESCRIPTION:Jointly organised with ARDEnt\, this webinar will discuss the recommendations the ARDEnt team is using to help inform how the UK is going to deliver its objectives set out in the UK Rare Diseases Framework\, published in January 2021.\nThe webinar panel includes members of ARDEnt and those responsible for overseeing the impact of the Framework in the UK.\nRead about these recommendations in the Making The Unseen Seen: Rare disease and lessons learned from the pandemic report to find out more on this episode\, the series\, and the ARDEnt Team’s research. \nCPD learning applied. \nThis webinar is part of the ‘Lessons learned from the COVID-19 pandemic’ series\, a series that will cover all themes outlined in the Making The Unseen Seen report\, from diagnostic delay in episode 1 to health and social care in episode 2\, clinical trials and drug development in episode 3\, and concluding with the UK Rare Diseases Framework and action plans in episode 4. \nThis webinar is available for on-demand viewing. The webinar recording will be available for registered delegates up to 30 days after the live webinar broadcast via Zoom. The link will be sent 24 hours after the webinar takes place. 
URL:https://www.m4rd.org/event/lessons-learned-from-the-covid-19-pandemic-looking-to-the-future-with-the-uk-rare-diseases-framework/
LOCATION:ONLINE
CATEGORIES:COVID-19,Rare Diseases,Royal Society of Medicine,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2021/10/Untitled-design-26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220228T183000
DTEND;TZID=Europe/London:20220228T200000
DTSTAMP:20260403T205621
CREATED:20220201T112556Z
LAST-MODIFIED:20220201T112556Z
UID:9074-1646073000-1646078400@www.m4rd.org
SUMMARY:Beyond the Student Voice Prize: Continuing your involvement in rare disease
DESCRIPTION:Learn how you can further your interest and get more involved in the world of rare diseases to benefit both yourself and the rare community\n\n\n\n\n\n\n\nThe Student Voice Prize is delighted to invite you to our virtual rare disease day event ‘Beyond the Student Voice Prize;’ an opportunity to connect with peers and patient group leaders to learn more about the rare community and how you can get further involved.  \nThe event will be an informal opportunity for you to meet new people and share your experiences of the rare disease community and entering the Student Voice Prize. You’ll also learn how you can build on your current knowledge to drive your personal and professional development whilst helping those in the rare disease community. \nWho is this event for?  \n\nPrevious entrants of the Student Voice Prize\nMedical students interested in learning more about rare conditions and getting involved in the community\nRare disease patient group leaders who have been involved in the Student Voice Prize in the past\nRare Disease patient group leaders who haven’t been involved in the Student Voice Prize in the past- all are welcome!\n\nWhy should you attend?  \n\nRare diseases are collectively common\, meaning you are likely to come across them in one form or other in your medical career. Learning about them early can better prepare you as a future clinician and can ensure better outcomes for individuals diagnosed and living with rare conditions.\nRare diseases are gaining increasing momentum as pressing health priorities worldwide\, compounded by advances such as the first-ever UN Resolution on persons with rare diseases and the new UK Rare Diseases Framework. There has never been a better time to get involved with the rare disease community to help create change\, raise awareness and drive your own personal development.\n\nThe Student Voice Prize is much more than just a competition. It has proven itself to be a gateway for many medical students\, nurses and scientists who want to engage with patients from across the medical spectrum\, particularly in rare disease. This is your chance to go beyond and become an advocate for a large\, but poorly represented community and help make a real difference in the lives of rare disease patients and their families.
URL:https://www.m4rd.org/event/beyond-the-student-voice-prize-continuing-your-involvement-in-rare-disease/
LOCATION:ONLINE
CATEGORIES:Networking,Rare Diseases,Student Voice Prize,Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2022/02/https-cdn.evbuc_.com-images-217863169-365425818333-1-original.20220125-112138.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220504
DTEND;VALUE=DATE:20220505
DTSTAMP:20260403T205621
CREATED:20220408T083425Z
LAST-MODIFIED:20220408T083425Z
UID:9272-1651622400-1651708799@www.m4rd.org
SUMMARY:Genomics England Research Summit 2022
DESCRIPTION:The Summit is an exciting one-day event that explores the latest research and technology innovations from Genomics England\, partners and complementary fields.\nThrough talks\, panel discussions\, posters and exhibitions across four themes\, you can take part in a valuable programme tailored to your areas of interest. Make connections\, learn new skills and help to shape the next steps in strengthening the ecosystem that’s turning science into healthcare for everyone. \nThe Summit is both virtual and in-person\, held at the Business Design Centre in Islington\, London\, easily accessed from King’s Cross and St Pancras International stations.
URL:https://www.m4rd.org/event/genomics-england-research-summit-2022/
LOCATION:Business Design Centre\, 52 Upper Street\, London\, N1 0QH\, United Kingdom
CATEGORIES:Conference,Genomics,Networking,Research
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2022/04/bknvflhiuapya6edkdrn.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220504T181500
DTEND;TZID=Europe/London:20220504T201500
DTSTAMP:20260403T205621
CREATED:20220406T082707Z
LAST-MODIFIED:20220406T082707Z
UID:9253-1651688100-1651695300@www.m4rd.org
SUMMARY:Alumni Angles: In conversation with Professor Sir Andrew Pollard
DESCRIPTION:Join QMUL for a special in conversation event with vaccine expert and alumnus Professor Sir Andrew Pollard (Medicine MBBS\, 1989)\, who leads the team behind the Oxford-AstraZeneca vaccine for COVID-19. \nYou will also hear from the Principal\, Professor Colin Bailey CBE\, Professor Sir Mark Caulfield\, Vice-Principal (Health)\, and our chair\, Dr Vanessa Apea\, Consultant Physician in Sexual Health and HIV Medicine at Barts Health NHS Trust. \nThis event will be held in the Perrin Lecture Theatre\, Whitechapel campus and will be live-streamed to an online audience.
URL:https://www.m4rd.org/event/alumni-angles-in-conversation-with-professor-sir-andrew-pollard/
LOCATION:Queen Mary University of London\, Perrin Lecture Theatre\, Blizard Building\, Faculty of Medicine & Dentistry\, 4 Newark Street\, London\, E1 2AT\, United Kingdom
CATEGORIES:COVID-19,Lectures
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2022/04/Professor-Andrew-Pollard-1.jpg
ORGANIZER;CN="Queen Mary Alumni Engagement Team":MAILTO:s.gazi@qmul.ac.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220509T193000
DTEND;TZID=Europe/London:20220509T213000
DTSTAMP:20260403T205621
CREATED:20220407T133529Z
LAST-MODIFIED:20220407T133529Z
UID:9261-1652124600-1652131800@www.m4rd.org
SUMMARY:Not All Genes are Equal (Pint of Science)
DESCRIPTION:Every person has two copies of each gene\, one inherited from each parent. Most genes are the same in all people\, but a small number of them are slightly different. These tiny differences contribute to each person’s unique physical features.\nLet’s explore rare imprinted genes\, a special class where one parental copy is switched off\,  and the life long impact that can have\, and consider what happens when your genes make you slightly more hungry all of the time. \n  \nIs obesity a choice? Led by Dr Giles Yeo\nIt is clear that the cause of obesity is a result of eating more than you burn. It is physics. What is more complex to answer is why some people eat more than others? Differences in our genetic make-up mean some of us are slightly more hungry all the time and so eat more than others. In contrast to the prevailing view\, obesity is not a choice. People with obesity are not bad or lazy; rather\, they are fighting their biology. \nA genetic battle of the sexes and rare imprinting disorders.  Led by Dr Miguel Constância\nImprinted genes are a special class of genes because one of the two parental copies is silenced by epigenetic mechanisms during development. These genes have key roles in how we acquire resources in the womb and throughout life.\nUnlike genetic changes\, epigenetic changes are reversible and do not change your DNA sequence\, but they can change how your body reads a DNA sequence.\nIn this talk we’ll explore what happens when the only active copy of imprinted genes is deleted\, mutated or silenced due to epigenetics and what happens if the silent copy of imprinted genes becomes activated.
URL:https://www.m4rd.org/event/not-all-genes-are-equal-pint-of-science/
LOCATION:Espresso Library\, 210 East Road\, Cambridge\, Cambridgeshire\, CB1 1BG\, United Kingdom
CATEGORIES:Festival
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2022/04/1649058865449.jpeg
ORGANIZER;CN="CRDN":MAILTO:jo@camraredisease.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220510T193000
DTEND;TZID=Europe/London:20220510T213000
DTSTAMP:20260403T205621
CREATED:20220407T134132Z
LAST-MODIFIED:20220407T134132Z
UID:9265-1652211000-1652218200@www.m4rd.org
SUMMARY:Curing with Kindness: Rare Childhood Brain Tumours (Pint of Science)
DESCRIPTION:Researchers developing new treatments for children with rare brain tumours know that it’s not a case of treating children like tiny adults and that surviving the disease isn’t enough.\nReducing the damage done by treatments is just as important to the survivor. Discover how researchers are minimising damage and why they think studying rare children’s tumours is vital to our wider understanding. \n  \nAre rare tumours worth studying? with Sigourney Bell\nWhy is it important that we study paediatric tumours and how are they different to adult cancers? What does the future look like for rare paediatric brain tumours and how can we work towards a better future for these children? \nCuring with Kindness – New therapies for curable rare brain tumours with Dr Jessica Taylor\nI work at CRUK Cambridge Institute finding new therapies for children with a rare\, yet curable brain tumour. However\, a cure isn’t enough for these children. After surgery\, radiation and aggressive chemotherapy mean that they suffer from a multitude of different side-effects\, both short-term and long lasting. We aim to find cures that focus not only on surviving cancer\, but on the survivor.
URL:https://www.m4rd.org/event/curing-with-kindness-rare-childhood-brain-tumours-pint-of-science/
LOCATION:Espresso Library\, 210 East Road\, Cambridge\, Cambridgeshire\, CB1 1BG\, United Kingdom
CATEGORIES:Festival
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ORGANIZER;CN="CRDN":MAILTO:jo@camraredisease.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220517
DTEND;VALUE=DATE:20220520
DTSTAMP:20260403T205621
CREATED:20220408T090704Z
LAST-MODIFIED:20220408T090704Z
UID:9276-1652745600-1653004799@www.m4rd.org
SUMMARY:Online workshop: Understanding access and reimbursement
DESCRIPTION:Getting wider access to drugs for as many patients a possible is a clear priority in the drug development process\, especially for patient groups who are working to secure research into and treatments for their rare conditions.\nHowever\, understanding how to secure access to newly developed treatments is an often-neglected challenge. The processes involved in securing reimbursement can be intimidating to patient groups and act as a real barrier to engagement.  \nThis workshop will outline the basics of access and reimbursement: what it means\, when it happens\, and who is involved. It will also explore the key ways in which patient groups can contribute to the process and what should they be prepared for. Attendees will leave feeling more confident in what the access and reimbursement process involves and where they can add value. \nDay one: Access and reimbursement 101\, back to basics\nDay two: Understanding the NICE appraisal process\nDay three: where can patient groups get involved?
URL:https://www.m4rd.org/event/online-workshop-understanding-access-and-reimbursement/
LOCATION:ONLINE
CATEGORIES:Patient Information Day,Rare Diseases,Webinar
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220608T140000
DTEND;TZID=Europe/London:20220608T153000
DTSTAMP:20260403T205621
CREATED:20220524T133648Z
LAST-MODIFIED:20220524T133648Z
UID:9518-1654696800-1654702200@www.m4rd.org
SUMMARY:Understanding Rare Disease: Communicating with Patients
DESCRIPTION:Sign up to learn about the role of communication in rare disease from those affected directly\, in an interactive FREE virtual event!\nAbout this event\nThe event will kick off with a session from our guest speaker\, who will explore the value of effective and sensitive communication skills when it comes to handling complex conditions\, such as rare disease. Attendees will then have the chance to speak directly with some of the I am Number 17 campaign changemakers and hear first-hand about how their diagnostic odysseys came to an end\, through perseverance and working together with the help of their HCP/Consultants. \nWhat will you get from attending this event?\n• Gain experience from communicating directly with those affected by rare disease \n• Improve your understanding of rare disease and how to react when faced with a potential rare disease \n• Develop your communication skills (notability how to share sensitive information and break bad news) \n• Gain a certificate of attendance to exhibit your enhanced learning \nWe hope that learning from real-life examples will provide you with tangible learnings to take along your medical careers and ultimately equip you to Find the 1 in 17 in the future… \nAll medical students are welcome to attend the event! \nPlease note this event may be beneficial for students preparing for upcoming OSCE examinations. \nWe look forward to seeing you there and learning together! \nThis event is initiated and funded by Takeda UK\, run together with Medics4RareDisease.
URL:https://www.m4rd.org/event/understanding-rare-disease-communicating-with-patients/
CATEGORIES:Medical Students,Rare Diseases,Webinar,workshop
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2022/05/https-cdn.evbuc_.com-images-283451039-908956374363-1-original.20220512-111502.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220613T173000
DTEND;TZID=Europe/London:20220613T183000
DTSTAMP:20260403T205621
CREATED:20220504T084323Z
LAST-MODIFIED:20220504T084323Z
UID:9302-1655141400-1655145000@www.m4rd.org
SUMMARY:The genetics of intellectual disability: Episode 15
DESCRIPTION:This webinar is part of the popular Genetics of webinar series and will provide an interesting update on the genetic origins of intellectual disability\, as well as explore what challenges remain in this area. \nOur speakers will explore what research is required after a genetic diagnosis of intellectual disability and what families would value the most from the diagnostic experience. This webinar is also a special chance to discuss what the experience of receiving a genetic diagnosis is like for patients and their families. \nDuring this webinar you will: \n\nUnderstand what we do know about the genetic origin of intellectual disabilities\nAppreciate the challenges and opportunities in research in this field\nRecognise how post-diagnostic research is important in order to understand the different ways people experience intellectual disability\nValue the insights gained from those who have received a genetic diagnosis of intellectual disability \n\nThis meeting is in association with the RSM Intellectual Disability Section. \nThe genetics of… series has been developed following feedback from delegates. Presented by the Medical Genetics section of the Royal Society of Medicine\, this series of talks will focus on the role of genetics in different areas of health and wellbeing.
URL:https://www.m4rd.org/event/the-genetics-of-intellectual-disability-episode-15/
LOCATION:LIVE STREAM
CATEGORIES:Genetics,Rare Diseases,Royal Society of Medicine,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2022/05/Screenshot-2022-05-04-at-09.38.35.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220617
DTEND;VALUE=DATE:20220618
DTSTAMP:20260403T205621
CREATED:20220406T083528Z
LAST-MODIFIED:20220406T083528Z
UID:9258-1655424000-1655510399@www.m4rd.org
SUMMARY:Hypermobility syndrome: A practical guide to assessment\, management and care
DESCRIPTION:Join the RSM at this multidisciplinary event which will provide a valuable overview and a broader understanding of hypermobility syndrome and the care of these patients. \nExperts in their field will present a series of talks that will inform delegates about practical guides for the assessment and management of this condition and will explore how community care can make a difference. \nKey speakers include: Professor Lara Bloom\, Academic Affiliate Professor of Practice in Patient Engagement and Global Collaboration\, Penn State College of Medicine and CEO of The Ehlers-Danlos Society\, Dr James Kustow\, Consultant Psychiatrist and Medical Director\, The Groves\, Dr Jane Simmonds\, Co-deputy Director of Education and MSc Advanced Paediatric Physiotherapist\, and many more. \n  \nBook in-person event here \nBook live stream here
URL:https://www.m4rd.org/event/hypermobility-syndrome-a-practical-guide-to-assessment-management-and-care/
LOCATION:Royal Society of Medicine\, 1 Wimpole Street\, London\, W1G 0AE\, United Kingdom
CATEGORIES:Rare Diseases,Royal Society of Medicine
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2022/04/unnamed-25.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220627
DTEND;VALUE=DATE:20220702
DTSTAMP:20260403T205621
CREATED:20220315T114405Z
LAST-MODIFIED:20220315T114405Z
UID:9161-1656288000-1656719999@www.m4rd.org
SUMMARY:11th European Conference on Rare Disease & Orphan Products (ECRD)
DESCRIPTION:The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest\, patient-led rare disease event in which collaborative dialogue\, learning and conversation takes place\, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place. \nECRD 2022 will take place online on 27 June -1 July. \nLeading\, inspiring and engaging all stakeholders to take action\, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with over 1500 stakeholders in the rare disease community – patient advocates\, policy makers\, researchers\, clinicians\, healthcare professionals\, healthcare industry representatives\, academics\, payers\, regulators and Member State representatives. \nThis 11th edition follows a pivotal two-year Rare 2030 Foresight Study\, supported by the European Parliament and European Commission\, that guided a large-scale and multi-stakeholder reflection on rare disease policy in Europe through 2030. \nThe concluding recommendation of Rare2030 was the need for a new European policy framework on rare diseases with measurable and actionable goals. Current actions at Member State level alone\, or legislative changes in specific areas are not enough. We need a new European collective strategy for rare diseases to bring Member States’ commitment to rare diseases under a common umbrella and mark a step forward in the post-COVID world. \nThis ECRD will be a critical opportunity for all stakeholders to consider how to transform this exhaustive review of the strategy on rare diseases into a proposal of concrete actions ultimately creating the ecosystem required to address the unmet needs and persisting inequalities across Europe.
URL:https://www.m4rd.org/event/11th-european-conference-on-rare-disease-orphan-products-ecrd/
LOCATION:ONLINE
CATEGORIES:Conference,Lectures,Networking,Rare Diseases
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2022/03/Word-Cloud_What-does-ECRD-mean-to-you.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220707T173000
DTEND;TZID=Europe/London:20220707T183000
DTSTAMP:20260403T205621
CREATED:20220428T122714Z
LAST-MODIFIED:20220428T122714Z
UID:9298-1657215000-1657218600@www.m4rd.org
SUMMARY:Facing up to the genomic gap: Tackling equality and diversity in genomics on
DESCRIPTION:This webinar is part of the popular Genetics of webinar series and will discuss the challenge of equality and diversity in genomic research and clinical settings and strategies to address this. \nGenomic research has traditionally been focused on caucasian populations\, which leads to inherent biases in genomic findings translated into clinical research. Underrepresentation of other populations in genomic datasets and biobanking endeavours leads to genomic medicine services being underutilized and inaccessible to these communities. \nDuring this webinar you will: \n\nUnderstand that genomic data is under-representative of many minority populations which has a direct impact on genomic research\nDevelop an idea of how the scientific community is trying to address this issue\nAppreciate the challenges of ensuring that diverse communities are able to access the genomic medicine service\nDescribe strategies that are being undertaken to try and improve genomic testing provision within diverse communities
URL:https://www.m4rd.org/event/facing-up-to-the-genomic-gap-tackling-equality-and-diversity-in-genomics-on/
LOCATION:LIVE STREAM
CATEGORIES:Genomics,Royal Society of Medicine,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2022/04/Screenshot-2022-04-28-at-13.25.27.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220714
DTEND;VALUE=DATE:20220715
DTSTAMP:20260403T205621
CREATED:20220630T103933Z
LAST-MODIFIED:20220630T103933Z
UID:9705-1657756800-1657843199@www.m4rd.org
SUMMARY:Showcase of Genomics across North Thames
DESCRIPTION:Join the North Thames Genomic Medicine Service showcase to find out how genomic medicine is transforming healthcare in their region. \nGenomic medicine is coming into every-day-practice for multi-disciplinary healthcare professionals across the NHS\, improving how we diagnose and treat patients of all ages with cancer and rare or inherited diseases.\nIn North London\, Essex and Hertfordshire\, the North Thames Genomic Medicine Service is delivering new genomic tests and redesigning pathways with clinical services to bring the benefits of genomics to patients across the region. \nIn this one day showcase you can find out how genomic medicine is changing healthcare in the region\, and hear about the new pathways now in place across many services.
URL:https://www.m4rd.org/event/showcase-of-genomics-across-north-thames/
LOCATION:UCL\, Gower Street\, London\, WC1E 6XA\, United Kingdom
CATEGORIES:Genomics,Lectures
ATTACH;FMTTYPE=image/webp:https://www.m4rd.org/wp-content/uploads/2022/06/https-cdn.evbuc_.com-images-286166509-349767685317-1-original.20220517-130451.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220909
DTEND;VALUE=DATE:20220912
DTSTAMP:20260403T205621
CREATED:20220624T103702Z
LAST-MODIFIED:20220624T103702Z
UID:9694-1662681600-1662940799@www.m4rd.org
SUMMARY:BBS UK Annual Conference 2022
DESCRIPTION:This highly-anticipated event provides the unique opportunity to learn about the latest research\, treatments\, and day to day management of BBS\, network with like-minded professionals and more importantly\, learn from those living with Bardet-Biedl syndrome. \nThe programme is still being finalised but will include:\n* Invaluable personal perspectives of living with BBS\n* An Update on Research and Understanding of BBS from Professor Phil Beales\n* The BBS Registry: Dr Elizabeth Forsythe\n* An update on behavioural research and health and wellbeing research in BBS from Dr Emma McGibbon and Dr Jane Waite\n* Guide Dogs UK: Overview of services \nIt is hoped to have the event CPD accredited and the cost is just £40 for professionals\, which includes refreshments and a luxury buffet lunch. \nFor more information please go to https://bbsuk.org.uk/news-events/bbs-uk-conference/ \nThe professionals booking form can be found here
URL:https://www.m4rd.org/event/bbs-uk-annual-conference-2022/
LOCATION:Hilton Hotel\, Northampton\, 100 Watering Lane\, Collingtree\, NN4 0XW\, United Kingdom
CATEGORIES:Family Day,General Practice,Patient Information Day,Rare Diseases
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221010
DTEND;VALUE=DATE:20221011
DTSTAMP:20260403T205621
CREATED:20220812T121726Z
LAST-MODIFIED:20220812T121726Z
UID:9815-1665360000-1665446399@www.m4rd.org
SUMMARY:Drug Repurposing for Rare Diseases 2022
DESCRIPTION:We are delighted to announce Beacon’s ninth annual Drug Repurposing for Rare Diseases Conference and\, for the first time since 2020\, it’s returning live and in-person! \nThis annual conference\, Drug Repurposing for Rare Diseases\, highlights the role that drug repurposing can play in lowering the cost and accelerating the development of rare disease treatments. \nAn event unique in its collaborative and multi-stakeholder focus\, we bring patient groups\, researchers and industry professionals together to showcase excellent examples of rare repurposing. \nDrug Repurposing for Rare Diseases sparks cross-sector conversation\, uniting the expertise of diverse groups to inspire meaningful\, patient-centred drug repurposing research for rare diseases. \nClick here for more details
URL:https://www.m4rd.org/event/drug-repurposing-for-rare-diseases-2022/
LOCATION:America Square Conference Centre\, 17 America Square\, London\, EC3N 2LB\, United Kingdom
CATEGORIES:Conference,Drug repurposing,Rare Diseases
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2022/08/Maisha.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221011
DTEND;VALUE=DATE:20221012
DTSTAMP:20260403T205621
CREATED:20220916T112542Z
LAST-MODIFIED:20220916T112542Z
UID:9970-1665446400-1665532799@www.m4rd.org
SUMMARY:Innovation Bootcamp in Rare Diseases 2022
DESCRIPTION:The third edition of the Innovation Bootcamp in Rare Diseases (IBRD2022) congress in Brussel will be held on October 11th 2022. \nThe target audience of this event includes all professionals involved in the prevention\, treatment and diagnosis of rare diseases and orphan drug research and development\, including researchers\, clinicians\, pharma\, policy makers and patient representatives. \nFor more information email Marc Dooms.
URL:https://www.m4rd.org/event/innovation-bootcamp-in-rare-diseases-2022/
LOCATION:Maison de la Poste\, Rue Picard 5/7\, Brussels\, 1000\, Belgium
CATEGORIES:Conference,Rare Diseases
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221020T180000
DTEND;TZID=Europe/London:20221020T193000
DTSTAMP:20260403T205621
CREATED:20220930T083524Z
LAST-MODIFIED:20220930T083524Z
UID:10112-1666288800-1666294200@www.m4rd.org
SUMMARY:Young People’s Genomics Café
DESCRIPTION:Are you a young person interested in finding out more about genomics and health\, or affected by a rare or genetic condition? \nChromosomes!\nDr Andrew Fry\, Clinical Senior Lecturer in Medical Genetics\, Cardiff University \nAn Introduction to Pharmacogenomics\nSophie Harding\, Pharmacogenomics Lead\, Royal Pharmaceutical Society of GB \nMedics4Rare Diseases\nLucy McKay\, CEO Medics4RareDiseases \nEveryone is welcome to this FREE online event. \nRegister for Virtual Café: https://tinyurl.com/34ehzs74
URL:https://www.m4rd.org/event/young-peoples-genomics-cafe/
LOCATION:LIVE STREAM
CATEGORIES:Child and Young Person,Genetics,Genomics,Rare Diseases,Webinar
ATTACH;FMTTYPE=image/webp:https://www.m4rd.org/wp-content/uploads/2022/09/https-cdn.evbuc_.com-images-353431989-221628550545-1-original.20220913-144210.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221021T090000
DTEND;TZID=Europe/London:20221021T130000
DTSTAMP:20260403T205621
CREATED:20220928T100847Z
LAST-MODIFIED:20220928T101534Z
UID:10084-1666342800-1666357200@www.m4rd.org
SUMMARY:Hypermobility spectrum disorders(HSD) and Hypermobile Ehlers-Danlos syndrome (hED)
DESCRIPTION:Training for Health Professionals on hypermobility spectrum disorders(HSD) and Hypermobile Ehlers-Danlos syndrome (hEDS) \nThe online course includes presentations and interactive case-based sessions for Health Professionals and those who wish to gain further knowledge and advance their clinical practice in assessing and management children and adults with Hypermobility Spectrum Disorders\, Hypermobile Ehlers Danlos Syndromes and associated conditions.
URL:https://www.m4rd.org/event/training-for-health-professionals-hsd-heds/
LOCATION:LIVE STREAM
CATEGORIES:HCPs,Rare Diseases
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221029T130000
DTEND;TZID=Europe/London:20221029T160000
DTSTAMP:20260403T205621
CREATED:20221004T085820Z
LAST-MODIFIED:20221004T085820Z
UID:10125-1667048400-1667059200@www.m4rd.org
SUMMARY:Patient partnerships: Improving healthcare equality from pandemic to endemic
DESCRIPTION:The purpose of this event is to promote partnerships between patients and the medical profession to pave the way for a better\, more inclusive healthcare system as we rebuild after the pandemic. By strengthening this relationship\, we aim to ensure patients never feel isolated when they are at their most vulnerable. We will discuss real-life examples of partnerships and their successes.\nThere will be a series of presentations and workshops by students and experienced professionals on non-technical aspects of medical practice\, such as political challenges with the public health service and humanitarian values. The event will end with a prize-giving ceremony for the Dr Edwin Doubleday essay award\, which funds medical students aspiring to improve the relationship between patients and the medical profession. \nAims of the event: \n\nTo highlight the role and importance of patient partnerships\nTo educate the medics of tomorrow about non-technical aspects of practice\nTo inspire attendees to improve the relationship between patients and the medical profession\nTo give attendees the chance to improve their presentation and networking skills\n\nThis event is run in association with the University of Manchester Doubleday Centre and the Doubleday Medical Schools Patient Partnership Collaboration. \nStudents are invited to submit an essay using this link below to enter the Doubleday Student Prize.
URL:https://www.m4rd.org/event/patient-partnerships-improving-healthcare-equality-from-pandemic-to-endemic/
LOCATION:LIVE STREAM
CATEGORIES:Medical Students,Patient advocacy,Royal Society of Medicine,workshop
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END:VEVENT
END:VCALENDAR