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X-WR-CALDESC:Events for Medics For Rare Disease
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DTSTART;TZID=Europe/London:20190508T084500
DTEND;TZID=Europe/London:20190508T170000
DTSTAMP:20260404T014431
CREATED:20190320T133540Z
LAST-MODIFIED:20200122T091342Z
UID:4529-1557305100-1557334800@www.m4rd.org
SUMMARY:Rare diseases and the Kidney
DESCRIPTION:Hear expert nephrologists from clinical and academic fields present the latest updates and developments in a variety of rare disease areas.\nThe meeting will be of relevance to medical student\, trainees and consultants as it provides a unique opportunity to keep up to date with latest clinical developments\, opportunities and research being conducted\, plus MDT and patient partnerships for these conditions. \nRates start from only £20! \nMeeting topics: \n\nExpert overview of a number of rare diseases affecting the kidney\nBest medical management and potential treatments\nLatest research\, developments and opportunities for future research using the RADAR network\n\nFor more information and to book tickets\, visit the RSM Website.
URL:https://www.m4rd.org/event/rare-diseases-and-the-kidney/
LOCATION:Royal Society of Medicine\, 1 Wimpole Street\, London\, W1G 0AE\, United Kingdom
CATEGORIES:Conference,Lectures,Nephrology,Rare Diseases
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2019/03/kidney_RSM.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20190318T180000
DTEND;TZID=Europe/London:20190318T200000
DTSTAMP:20260404T014431
CREATED:20190304T153448Z
LAST-MODIFIED:20200123T043900Z
UID:4496-1552932000-1552939200@www.m4rd.org
SUMMARY:A Talk On Haemophilia
DESCRIPTION:KCL MedGenSoc presents: A Talk on Haemophilia\nWe are honoured to be hosting no less than two guest speakers for this event; \n\nKCH Haematology Consultant Dr Catherine Rea\, who specialises in clotting disorders\nYouTuber Luke Pembroke\, who himself suffers from Haemophilia\n\nRefreshments will be served before and after the talk. \nA sign up for a certificate of attendance will be available at the end of the lecture. \nAs always\, external staff and students are more than welcome to attend\, but purchase a free Eventbrite ticket at least 24 hours before the event \nThis talk is in association with Medics 4 Rare Diseases and sponsored by the MDU.
URL:https://www.m4rd.org/event/a-talk-on-haemophilia/
LOCATION:New Hunt’s House Library\, Guy's Campus\, London
CATEGORIES:Lectures
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190228
DTEND;VALUE=DATE:20190301
DTSTAMP:20260404T014431
CREATED:20190126T110741Z
LAST-MODIFIED:20200123T153111Z
UID:4219-1551312000-1551398399@www.m4rd.org
SUMMARY:Rare Disease Day 2019
DESCRIPTION:28 February 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities.\n\nMedics 4 Rare Diseases would love to know how you’re raising awareness on Rare Disease day. Tell us in the comments below or Tweet using @M4RareDiseases and #RareDiseaseDay.
URL:https://www.m4rd.org/event/rare-disease-day-2019-2/
CATEGORIES:Patient Information Day
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2019/01/Twitter-banner.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20190220T123000
DTEND;TZID=UTC:20190220T180000
DTSTAMP:20260404T014431
CREATED:20181119T102224Z
LAST-MODIFIED:20200122T104848Z
UID:3387-1550665800-1550685600@www.m4rd.org
SUMMARY:The Unusual Suspects: Rare Diseases In Everyday Medical Care
DESCRIPTION:This is an RSM and Medics 4 Rare Diseases joint event where clinicians at all stages of their training\, will be informed about why rare diseases are important to everyday medicine.\nDelegates will get the opportunity to explore how generalists can approach patients with rare diseases\, and become advocates for them. Hear a real patient experience who has two rare diseases – one of which was diagnosed during an OSCE. And learn about the role genomics plays in everyday medicine. \nTopics include:\n\nHow rare diseases are relevant to every doctor’s career in medicine\nThe challenges shared by patients with rare diseases and explore how doctors can help them with these\nThe role of genomics in everyday medicine\nHow the work of Medics 4 Rare Diseases and the RSM Genetics Section play a role in rare disease education\n\n3 CPD Points awarded \nKey Speaker: Dr Ellen Thomas\, Clinical Lead for NHS Genomic Medicine at Genomics England \nView the full agenda \nRates\nRSM member: £15 \nNon member: £25 \nRegistration starts at 12.30 and the event begins at 1pm. \n\nPlease note: The RSM site is currently down for maintenance and reopens 10th February. Please use the form below to reserve your tickets. To book via the RSM site from 10th February\, click here.\nLoading…
URL:https://www.m4rd.org/event/the-unusual-suspects-rare-diseases-in-everyday-medical-care/
LOCATION:Royal Society of Medicine\, 1 Wimpole Street\, London\, W1G 0AE\, United Kingdom
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2018/10/M4RD-Annual-Symposium.jpeg
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BEGIN:VEVENT
DTSTART;TZID=UTC:20190119T093000
DTEND;TZID=UTC:20190119T160000
DTSTAMP:20260404T014431
CREATED:20181119T095405Z
LAST-MODIFIED:20200122T122036Z
UID:3371-1547890200-1547913600@www.m4rd.org
SUMMARY:Information Day On Fibromuscular Dysplasia (FMD)
DESCRIPTION:Fibromuscular Dysplasia (FMD) is evolving from a rare disease of renal arteries accounting for a minority of cases of secondary hypertension in young women\, to a ‘systemic’ vascular disease which can also affect cervico-cephalic\, coronary\, and iliac arteries.\nThis patient information day will aim to explain what FMD is\, challenge previous misconceptions about FMD and highlight the latest work being undertaken by registries and research. \nCome and hear from expert international guest speakers such as Prof Alexandre Persu (lead for European FMD registry) and Prof David Adlam (UK expert in spontaneous coronary artery dissection (SCAD))\, as well as celebrity chef and FMD/ SCAD sufferer\, Sally Bee. This day will be of interest to clinicians\, patients and carers alike. Any further information\, contact tina.chrysochou@srft.nhs.uk or @FmdsUk \nPatients with FMD in any arterial bed can be uploaded to FMD RADAR. \nPlease refer to the Agenda for further information.
URL:https://www.m4rd.org/event/information-day-on-fibromuscular-dysplasia/
CATEGORIES:Conference,Patient Information Day
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2018/10/Information-Day-On-Fibromuscular-Dysplasia.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20181203T180000
DTEND;TZID=UTC:20181203T200000
DTSTAMP:20260404T014431
CREATED:20181119T095120Z
LAST-MODIFIED:20200122T063113Z
UID:3369-1543860000-1543867200@www.m4rd.org
SUMMARY:Prospects For New Treatments In Rare Diseases
DESCRIPTION:Dr Melita Irving\, Consultant Geneticist\, President of The Genetics Section of The Royal Society of Medicine and long-term friend of M4RD…is hosting this evening lecture organised by the awesome King’s College Medical Genetics Society. Rare Diseases is an exciting field to be working in these days as new treatments are emerging for previously untreatable conditions. Come along and find out more! \nKeep up to date about this event and lots of others organised by KCL Medical Genetics Society on their Facebook page.
URL:https://www.m4rd.org/event/prospects-for-new-treatments-in-rare-diseases/
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2018/10/Prospects-For-New-Treatments-In-Rare-Diseases.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20181201
DTEND;VALUE=DATE:20181202
DTSTAMP:20260404T014431
CREATED:20181119T095907Z
LAST-MODIFIED:20200123T003318Z
UID:3378-1543622400-1543708799@www.m4rd.org
SUMMARY:Rare Disease Day 2019
DESCRIPTION:It’s 2018 and rare diseases are still not being consistently diagnosed\, treated and supported effectively.\nFree to attend\,  this 2-day festival will shine a light on some successes and innovative solutions that are striving to address this.  RAREfest will raise awareness of rare conditions and bring together all stakeholders in  the rare disease community alongside the general public from across Cambridgeshire and beyond.
URL:https://www.m4rd.org/event/rare-disease-day-2019/
LOCATION:Guildhall Cambridge\, Cambridge\, United Kingdom
CATEGORIES:Conference,Family Day,Lectures,Showcase
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2018/10/Rare-Disease-Day-2019.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20181130T090000
DTEND;TZID=UTC:20181201T100000
DTSTAMP:20260404T014431
CREATED:20181119T094734Z
LAST-MODIFIED:20181119T094734Z
UID:3365-1543568400-1543658400@www.m4rd.org
SUMMARY:Rarefest 2018
DESCRIPTION:It’s 2018 and rare diseases are still not being consistently diagnosed\, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you by Cambridge Rare Disease Network (CRDN).  Free to attend\, this 2-day festival will shine a light on some successes and innovative solutions that are striving to address this. RAREfest will raise awareness of rare conditions and bring together all stakeholders in  the rare disease community alongside the general public from across Cambridgeshire and beyond. We are proud to be supporting RAREfest. For more information visit the event website. #RAREfest18
URL:https://www.m4rd.org/event/rarefest-2018/
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2018/10/Rarefest-2018.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20181128T083000
DTEND;TZID=UTC:20181128T170000
DTSTAMP:20260404T014431
CREATED:20181119T093926Z
LAST-MODIFIED:20181119T093926Z
UID:3362-1543393800-1543424400@www.m4rd.org
SUMMARY:Diagnostic Challenges And Clinical Management Of Dna Repair Disorders
DESCRIPTION:Topics Include: \n\nThe cellular biology of DNA repair disorders\nThe clinical presentation of DNA repair disorders\nUpdated expert guidance on the clinical management of DNA repair disorders\nWhat DNA repair disorders can teach us about the process of ageing\nHow specialist services for DNA repair disorders are structured and how they were established\nWhat it is like to live with a DNA repair disorder\n\nFind out more here
URL:https://www.m4rd.org/event/diagnostic-challenges-and-clinical-management-of-dna-repair-disorders/
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2018/10/Diagnostic-Challenges-And-Clinical-Management-Of-Dna-Repair-Disorders.jpg
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