BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Medics For Rare Disease - ECPv6.15.18//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Medics For Rare Disease
X-ORIGINAL-URL:https://www.m4rd.org
X-WR-CALDESC:Events for Medics For Rare Disease
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/London
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20180325T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20181028T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20190331T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20191027T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20200329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20201025T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20191003T090000
DTEND;TZID=Europe/London:20191004T133000
DTSTAMP:20260405T133517
CREATED:20190822T091840Z
LAST-MODIFIED:20190822T091954Z
UID:5756-1570093200-1570195800@www.m4rd.org
SUMMARY:Pompe Preceptorship
DESCRIPTION:Pompe Preceptorship\, hosted by Mark Holland from the Metabolic Unit\, Manchester\nTopics to be included: \n\nBiochemistry & Genetics of Pompe Disease\nInfantile & Adult Pompe Disease\nMetabolic Myopathy\nBenefits of exercise in Pompe Disease\nNutrition in Pompe Disease\nRespiratory function\nPalliative care\nResearch in Pompe\nFuture of Gene Therapy\nAGSD – Patient Society\nPatient’s Experience of living with the condition\n\nThis event is open to all medical staff but places are limited.  Funding for this event is available. \nFor further information and to request a registration form please contact:\nKaren Wynne\, Mark Holland Metabolic Unit\, Email: karen.wynne@srft.nhs.uk \nTelephone: 0161 206 4365
URL:https://www.m4rd.org/event/pompe-preceptorship/
LOCATION:Mercure Hotel Manchester\, Manchester Piccadilly\, Manchester\, M139WU\, United Kingdom
CATEGORIES:Conference,Lectures,Rare Diseases
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2019/05/dna-1811955_1920-1-e1566465568611.jpg
ORGANIZER;CN="Salford Royal NHS Foundation Trust":MAILTO:Keeley.Crompton@srft.nhs.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20191008T084500
DTEND;TZID=Europe/London:20191008T163000
DTSTAMP:20260405T133517
CREATED:20190810T142807Z
LAST-MODIFIED:20190816T122908Z
UID:5652-1570524300-1570552200@www.m4rd.org
SUMMARY:The 33rd symposium: Cystic fibrosis in children and adults
DESCRIPTION:Learn from specialists which children with symptoms need to be seen earlier and how to deal with health issues such as visual problems and poor dental hygiene. Explore unusual paediatric presentations that do not have a clear pathway to diagnosis and need multidisciplinary management.\nThis is a joint event with the Odontology Section and therefore the programme will highlight key areas such as tooth decay in children and acute dental problems. \nTopics include: \n\nHow to identify key pointers to diagnosis\nCurrent best practice\nHow to manage unusual paediatric presentations\nThe value of effective communication between specialities
URL:https://www.m4rd.org/event/the-33rd-symposium-cystic-fibrosis-in-children-and-adults/
LOCATION:Royal Society of Medicine\, 1 Wimpole Street\, London\, W1G 0AE\, United Kingdom
CATEGORIES:Conference,Lectures
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2019/08/unnamed-3.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20191008T100000
DTEND;TZID=Europe/London:20191008T170000
DTSTAMP:20260405T133517
CREATED:20190619T194009Z
LAST-MODIFIED:20190827T142944Z
UID:5250-1570528800-1570554000@www.m4rd.org
SUMMARY:The Manchester Rare Disease Showcase
DESCRIPTION:Findacure’s Rare Disease Showcases are a celebration of innovative rare disease projects across the UK. As a world leader in rare research\, exceptional examples of rare disease practice can be found all over the country. Their touring event series heads to local regions to give them the attention they deserve.\nAttendees can expect: \n\nPresentations from rare experts in Manchester’s local area\, including patients\, support groups\, clinicians and researchers.\nHighlights of excellent progress in academic\, healthcare\, industry and patient advocacy\nTwo lightning talk sessions for delegates to propose and share their own rare stories\nAmple patient group and charity exhibitors from across the UK\nDedicated time to network with North West England’s rare community\n\n  \nFindacure are offering a number of exhibition stands to patient organisations and charities completley free of charge. If you are interested in exhibiting\, please email maryrose@findacure.org.uk.
URL:https://www.m4rd.org/event/the-manchester-rare-disease-showcase/
LOCATION:The Bridgewater Hall\, Lower Mosley Street\, Manchester\, Lancashire\, M2 3WS\, United Kingdom
CATEGORIES:Networking,Showcase
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2019/06/manchester-Findacure-_AG28206-e1560972616183.png
ORGANIZER;CN="Findacure":MAILTO:maryrose@findacure.org.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20191011T133000
DTEND;TZID=Europe/London:20191011T163000
DTSTAMP:20260405T133517
CREATED:20191002T130612Z
LAST-MODIFIED:20191002T130612Z
UID:5861-1570800600-1570811400@www.m4rd.org
SUMMARY:Rett UK Regional Professionals Day
DESCRIPTION:This is a fantastic opportunity to learn more about this rare and complex disorder in an informal session where you have lots of opportunities to ask questions.\nWith over 30 years’ experience\, Rett UK is the only UK charity providing professional family support services and training for anyone involved in supporting someone with Rett syndrome. \nAimed at SLTs\, OTs\, GPs and carers\, this is a free event where the Rett UK team get the opportunity to educate you on this rare neurological disorder\, to answer questions and to inform you of other future events they will be holding.
URL:https://www.m4rd.org/event/rett-uk-regional-professionals-day/
LOCATION:THE HUB\, Easton Street\, High Wycombe\, Buckinghamshire\, HP11 1NJ\, United Kingdom
CATEGORIES:Networking,Patient Information Day,Rare Diseases
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2019/10/RETT-UK-LOGO.jpg
ORGANIZER;CN="Rett UK":MAILTO:keren.decoito@rettuk.org
END:VEVENT
END:VCALENDAR