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X-WR-CALDESC:Events for Medics For Rare Disease
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DTSTART;TZID=Europe/London:20191101T180000
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LAST-MODIFIED:20191008T153121Z
UID:5824-1572631200-1572642000@www.m4rd.org
SUMMARY:A Puff of Smoke Book Launch and Exhibition
DESCRIPTION:A Puff of Smoke is a graphic memoir about what it is like to grow up with an illness that no one can diagnose.\nSarah Lippett spent eleven years suffering with symptoms from an unknown condition\, until she was diagnosed with the rare disease Moyamoya at the age of 17. \nFor the month of November(1st – 29th November) an exhibition will be held at The Centre For Better Health that will explore the wider themes of the memoir. \nJoin Sarah to celebrate the launch of the A Puff of Smoke on the 1st of November 6-9pm at The Centre for Better Health in London. Copies of the book will be available for purchase. \nDrinks will be available and everyone is welcome! \nConfirm your attendance on Evenbrite for the chance to WIN a FREE signed copy of A Puff of Smoke.
URL:https://www.m4rd.org/event/a-puff-of-smoke-book-launch-and-exhibition/
LOCATION:The Centre for Better Health\, 1A Darnley Road\, London\, E9 6QH\, United Kingdom
CATEGORIES:book launch,exhibition,Rare Diseases
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DTSTART;TZID=Europe/London:20191122T083000
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DTSTAMP:20260405T064813
CREATED:20190810T141747Z
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UID:5650-1574411400-1574442000@www.m4rd.org
SUMMARY:Direct-to-consumer genetic testing: Health and ancestry
DESCRIPTION:The direct to consumer genetic testing is on the rise worldwide\, and while these tests provide people access to their genetic information without necessarily involving a healthcare provider\, the patients search for their doctors’ advice on the results.\nFrom genealogy to health\, healthcare providers are expected to be able to respond to the patients’ questions and be well informed of the benefits and risks of genetic testing direct to the public. \nThrough multidisciplinary lectures from renowned specialists as well as lively panel discussions\, this event will give you a comprehensive view of the tests available and their implications. The meeting will close with a rerun of the dynamic 2018 Varsity debate on the subject and votes from the audience. \nMeeting topics: \n– The genetic tests on offer\, both for health and for ancestry.\n– Insight into the implications of DTC genetic testing.\n– Understand the potential impact of DTC in liver cirrhosis\n– Discuss the ethical concerns and challenges posed by DTC\n– Know the precision of ancestral DNA testing\n– Understand the impact of ancestral testing on populations \nEarly bird pricing available until 18 August 2019
URL:https://www.m4rd.org/event/direct-to-consumer-genetic-testing-health-and-ancestry/
LOCATION:Royal Society of Medicine\, 1 Wimpole Street\, London\, W1G 0AE\, United Kingdom
CATEGORIES:Lectures
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DTSTART;TZID=Europe/London:20191122T133000
DTEND;TZID=Europe/London:20191122T143000
DTSTAMP:20260405T064813
CREATED:20190922T123925Z
LAST-MODIFIED:20191008T153342Z
UID:5830-1574429400-1574433000@www.m4rd.org
SUMMARY:A Puff of Smoke Talk and Workshop w/ author and artist Sarah Lippett
DESCRIPTION:A Puff of Smoke (published by Jonathan Cape 7th November) is a graphic memoir about what it is like to grow up with an illness that no one can diagnose.\nSarah Lippett spent eleven years suffering with symptoms from an unknown condition\, until she was diagnosed with the rare disease Moyamoya at the age of 17. \nFor the month of November(1st – 29th November) an exhibition will be held at The Centre For Better Health that will explore the wider themes of the memoir. \nJoin Sarah as she talks through the process of revisiting her past and piecing it back together as a graphic memoir. The talk will be followed by a short workshop where participants are invited to create sequential narratives based on their own lived experiences. No drawing experience necesssary.  Book your place now.
URL:https://www.m4rd.org/event/a-puff-of-smoke-talk-and-workshop-w-author-and-artist-sarah-lippett/
LOCATION:The Centre for Better Health\, 1A Darnley Road\, London\, E9 6QH\, United Kingdom
CATEGORIES:Rare Diseases,workshop
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