BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Medics For Rare Disease - ECPv6.16.2//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://www.m4rd.org
X-WR-CALDESC:Events for Medics For Rare Disease
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/London
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20210328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20211031T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20221030T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20230326T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20231029T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220504
DTEND;VALUE=DATE:20220505
DTSTAMP:20260530T050038
CREATED:20220408T083425Z
LAST-MODIFIED:20220408T083425Z
UID:9272-1651622400-1651708799@www.m4rd.org
SUMMARY:Genomics England Research Summit 2022
DESCRIPTION:The Summit is an exciting one-day event that explores the latest research and technology innovations from Genomics England\, partners and complementary fields.\nThrough talks\, panel discussions\, posters and exhibitions across four themes\, you can take part in a valuable programme tailored to your areas of interest. Make connections\, learn new skills and help to shape the next steps in strengthening the ecosystem that’s turning science into healthcare for everyone. \nThe Summit is both virtual and in-person\, held at the Business Design Centre in Islington\, London\, easily accessed from King’s Cross and St Pancras International stations.
URL:https://www.m4rd.org/event/genomics-england-research-summit-2022/
LOCATION:Business Design Centre\, 52 Upper Street\, London\, N1 0QH\, United Kingdom
CATEGORIES:Conference,Genomics,Networking,Research
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2022/04/bknvflhiuapya6edkdrn.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220504T181500
DTEND;TZID=Europe/London:20220504T201500
DTSTAMP:20260530T050038
CREATED:20220406T082707Z
LAST-MODIFIED:20220406T082707Z
UID:9253-1651688100-1651695300@www.m4rd.org
SUMMARY:Alumni Angles: In conversation with Professor Sir Andrew Pollard
DESCRIPTION:Join QMUL for a special in conversation event with vaccine expert and alumnus Professor Sir Andrew Pollard (Medicine MBBS\, 1989)\, who leads the team behind the Oxford-AstraZeneca vaccine for COVID-19. \nYou will also hear from the Principal\, Professor Colin Bailey CBE\, Professor Sir Mark Caulfield\, Vice-Principal (Health)\, and our chair\, Dr Vanessa Apea\, Consultant Physician in Sexual Health and HIV Medicine at Barts Health NHS Trust. \nThis event will be held in the Perrin Lecture Theatre\, Whitechapel campus and will be live-streamed to an online audience.
URL:https://www.m4rd.org/event/alumni-angles-in-conversation-with-professor-sir-andrew-pollard/
LOCATION:Queen Mary University of London\, Perrin Lecture Theatre\, Blizard Building\, Faculty of Medicine & Dentistry\, 4 Newark Street\, London\, E1 2AT\, United Kingdom
CATEGORIES:COVID-19,Lectures
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2022/04/Professor-Andrew-Pollard-1.jpg
ORGANIZER;CN="Queen Mary Alumni Engagement Team":MAILTO:s.gazi@qmul.ac.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220509T193000
DTEND;TZID=Europe/London:20220509T213000
DTSTAMP:20260530T050038
CREATED:20220407T133529Z
LAST-MODIFIED:20220407T133529Z
UID:9261-1652124600-1652131800@www.m4rd.org
SUMMARY:Not All Genes are Equal (Pint of Science)
DESCRIPTION:Every person has two copies of each gene\, one inherited from each parent. Most genes are the same in all people\, but a small number of them are slightly different. These tiny differences contribute to each person’s unique physical features.\nLet’s explore rare imprinted genes\, a special class where one parental copy is switched off\,  and the life long impact that can have\, and consider what happens when your genes make you slightly more hungry all of the time. \n  \nIs obesity a choice? Led by Dr Giles Yeo\nIt is clear that the cause of obesity is a result of eating more than you burn. It is physics. What is more complex to answer is why some people eat more than others? Differences in our genetic make-up mean some of us are slightly more hungry all the time and so eat more than others. In contrast to the prevailing view\, obesity is not a choice. People with obesity are not bad or lazy; rather\, they are fighting their biology. \nA genetic battle of the sexes and rare imprinting disorders.  Led by Dr Miguel Constância\nImprinted genes are a special class of genes because one of the two parental copies is silenced by epigenetic mechanisms during development. These genes have key roles in how we acquire resources in the womb and throughout life.\nUnlike genetic changes\, epigenetic changes are reversible and do not change your DNA sequence\, but they can change how your body reads a DNA sequence.\nIn this talk we’ll explore what happens when the only active copy of imprinted genes is deleted\, mutated or silenced due to epigenetics and what happens if the silent copy of imprinted genes becomes activated.
URL:https://www.m4rd.org/event/not-all-genes-are-equal-pint-of-science/
LOCATION:Espresso Library\, 210 East Road\, Cambridge\, Cambridgeshire\, CB1 1BG\, United Kingdom
CATEGORIES:Festival
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2022/04/1649058865449.jpeg
ORGANIZER;CN="CRDN":MAILTO:jo@camraredisease.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220510T193000
DTEND;TZID=Europe/London:20220510T213000
DTSTAMP:20260530T050038
CREATED:20220407T134132Z
LAST-MODIFIED:20220407T134132Z
UID:9265-1652211000-1652218200@www.m4rd.org
SUMMARY:Curing with Kindness: Rare Childhood Brain Tumours (Pint of Science)
DESCRIPTION:Researchers developing new treatments for children with rare brain tumours know that it’s not a case of treating children like tiny adults and that surviving the disease isn’t enough.\nReducing the damage done by treatments is just as important to the survivor. Discover how researchers are minimising damage and why they think studying rare children’s tumours is vital to our wider understanding. \n  \nAre rare tumours worth studying? with Sigourney Bell\nWhy is it important that we study paediatric tumours and how are they different to adult cancers? What does the future look like for rare paediatric brain tumours and how can we work towards a better future for these children? \nCuring with Kindness – New therapies for curable rare brain tumours with Dr Jessica Taylor\nI work at CRUK Cambridge Institute finding new therapies for children with a rare\, yet curable brain tumour. However\, a cure isn’t enough for these children. After surgery\, radiation and aggressive chemotherapy mean that they suffer from a multitude of different side-effects\, both short-term and long lasting. We aim to find cures that focus not only on surviving cancer\, but on the survivor.
URL:https://www.m4rd.org/event/curing-with-kindness-rare-childhood-brain-tumours-pint-of-science/
LOCATION:Espresso Library\, 210 East Road\, Cambridge\, Cambridgeshire\, CB1 1BG\, United Kingdom
CATEGORIES:Festival
ATTACH;FMTTYPE=image/svg+xml:https://www.m4rd.org/wp-content/uploads/2022/04/logo-3.svg
ORGANIZER;CN="CRDN":MAILTO:jo@camraredisease.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220517
DTEND;VALUE=DATE:20220520
DTSTAMP:20260530T050038
CREATED:20220408T090704Z
LAST-MODIFIED:20220408T090704Z
UID:9276-1652745600-1653004799@www.m4rd.org
SUMMARY:Online workshop: Understanding access and reimbursement
DESCRIPTION:Getting wider access to drugs for as many patients a possible is a clear priority in the drug development process\, especially for patient groups who are working to secure research into and treatments for their rare conditions.\nHowever\, understanding how to secure access to newly developed treatments is an often-neglected challenge. The processes involved in securing reimbursement can be intimidating to patient groups and act as a real barrier to engagement.  \nThis workshop will outline the basics of access and reimbursement: what it means\, when it happens\, and who is involved. It will also explore the key ways in which patient groups can contribute to the process and what should they be prepared for. Attendees will leave feeling more confident in what the access and reimbursement process involves and where they can add value. \nDay one: Access and reimbursement 101\, back to basics\nDay two: Understanding the NICE appraisal process\nDay three: where can patient groups get involved?
URL:https://www.m4rd.org/event/online-workshop-understanding-access-and-reimbursement/
LOCATION:ONLINE
CATEGORIES:Patient Information Day,Rare Diseases,Webinar
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2022/04/Asset-8-e1649337904516.png
END:VEVENT
END:VCALENDAR