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X-WR-CALNAME:Medics For Rare Disease
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X-WR-CALDESC:Events for Medics For Rare Disease
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DTSTART;VALUE=DATE:20221010
DTEND;VALUE=DATE:20221011
DTSTAMP:20260529T233119
CREATED:20220812T121726Z
LAST-MODIFIED:20220812T121726Z
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SUMMARY:Drug Repurposing for Rare Diseases 2022
DESCRIPTION:We are delighted to announce Beacon’s ninth annual Drug Repurposing for Rare Diseases Conference and\, for the first time since 2020\, it’s returning live and in-person! \nThis annual conference\, Drug Repurposing for Rare Diseases\, highlights the role that drug repurposing can play in lowering the cost and accelerating the development of rare disease treatments. \nAn event unique in its collaborative and multi-stakeholder focus\, we bring patient groups\, researchers and industry professionals together to showcase excellent examples of rare repurposing. \nDrug Repurposing for Rare Diseases sparks cross-sector conversation\, uniting the expertise of diverse groups to inspire meaningful\, patient-centred drug repurposing research for rare diseases. \nClick here for more details
URL:https://www.m4rd.org/event/drug-repurposing-for-rare-diseases-2022/
LOCATION:America Square Conference Centre\, 17 America Square\, London\, EC3N 2LB\, United Kingdom
CATEGORIES:Conference,Drug repurposing,Rare Diseases
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20221011
DTEND;VALUE=DATE:20221012
DTSTAMP:20260529T233119
CREATED:20220916T112542Z
LAST-MODIFIED:20220916T112542Z
UID:9970-1665446400-1665532799@www.m4rd.org
SUMMARY:Innovation Bootcamp in Rare Diseases 2022
DESCRIPTION:The third edition of the Innovation Bootcamp in Rare Diseases (IBRD2022) congress in Brussel will be held on October 11th 2022. \nThe target audience of this event includes all professionals involved in the prevention\, treatment and diagnosis of rare diseases and orphan drug research and development\, including researchers\, clinicians\, pharma\, policy makers and patient representatives. \nFor more information email Marc Dooms.
URL:https://www.m4rd.org/event/innovation-bootcamp-in-rare-diseases-2022/
LOCATION:Maison de la Poste\, Rue Picard 5/7\, Brussels\, 1000\, Belgium
CATEGORIES:Conference,Rare Diseases
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DTSTART;TZID=Europe/London:20221020T180000
DTEND;TZID=Europe/London:20221020T193000
DTSTAMP:20260529T233119
CREATED:20220930T083524Z
LAST-MODIFIED:20220930T083524Z
UID:10112-1666288800-1666294200@www.m4rd.org
SUMMARY:Young People’s Genomics Café
DESCRIPTION:Are you a young person interested in finding out more about genomics and health\, or affected by a rare or genetic condition? \nChromosomes!\nDr Andrew Fry\, Clinical Senior Lecturer in Medical Genetics\, Cardiff University \nAn Introduction to Pharmacogenomics\nSophie Harding\, Pharmacogenomics Lead\, Royal Pharmaceutical Society of GB \nMedics4Rare Diseases\nLucy McKay\, CEO Medics4RareDiseases \nEveryone is welcome to this FREE online event. \nRegister for Virtual Café: https://tinyurl.com/34ehzs74
URL:https://www.m4rd.org/event/young-peoples-genomics-cafe/
LOCATION:LIVE STREAM
CATEGORIES:Child and Young Person,Genetics,Genomics,Rare Diseases,Webinar
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DTSTART;TZID=Europe/London:20221021T090000
DTEND;TZID=Europe/London:20221021T130000
DTSTAMP:20260529T233119
CREATED:20220928T100847Z
LAST-MODIFIED:20220928T101534Z
UID:10084-1666342800-1666357200@www.m4rd.org
SUMMARY:Hypermobility spectrum disorders(HSD) and Hypermobile Ehlers-Danlos syndrome (hED)
DESCRIPTION:Training for Health Professionals on hypermobility spectrum disorders(HSD) and Hypermobile Ehlers-Danlos syndrome (hEDS) \nThe online course includes presentations and interactive case-based sessions for Health Professionals and those who wish to gain further knowledge and advance their clinical practice in assessing and management children and adults with Hypermobility Spectrum Disorders\, Hypermobile Ehlers Danlos Syndromes and associated conditions.
URL:https://www.m4rd.org/event/training-for-health-professionals-hsd-heds/
LOCATION:LIVE STREAM
CATEGORIES:HCPs,Rare Diseases
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221029T130000
DTEND;TZID=Europe/London:20221029T160000
DTSTAMP:20260529T233119
CREATED:20221004T085820Z
LAST-MODIFIED:20221004T085820Z
UID:10125-1667048400-1667059200@www.m4rd.org
SUMMARY:Patient partnerships: Improving healthcare equality from pandemic to endemic
DESCRIPTION:The purpose of this event is to promote partnerships between patients and the medical profession to pave the way for a better\, more inclusive healthcare system as we rebuild after the pandemic. By strengthening this relationship\, we aim to ensure patients never feel isolated when they are at their most vulnerable. We will discuss real-life examples of partnerships and their successes.\nThere will be a series of presentations and workshops by students and experienced professionals on non-technical aspects of medical practice\, such as political challenges with the public health service and humanitarian values. The event will end with a prize-giving ceremony for the Dr Edwin Doubleday essay award\, which funds medical students aspiring to improve the relationship between patients and the medical profession. \nAims of the event: \n\nTo highlight the role and importance of patient partnerships\nTo educate the medics of tomorrow about non-technical aspects of practice\nTo inspire attendees to improve the relationship between patients and the medical profession\nTo give attendees the chance to improve their presentation and networking skills\n\nThis event is run in association with the University of Manchester Doubleday Centre and the Doubleday Medical Schools Patient Partnership Collaboration. \nStudents are invited to submit an essay using this link below to enter the Doubleday Student Prize.
URL:https://www.m4rd.org/event/patient-partnerships-improving-healthcare-equality-from-pandemic-to-endemic/
LOCATION:LIVE STREAM
CATEGORIES:Medical Students,Patient advocacy,Royal Society of Medicine,workshop
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