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X-WR-CALDESC:Events for Medics For Rare Disease
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DTSTART;TZID=Europe/London:20230504T090000
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DTSTAMP:20260529T223346
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UID:10764-1683190800-1683216000@www.m4rd.org
SUMMARY:NHS East Genomics Showcase
DESCRIPTION:On Thursday 4th May 2023 NHS East Genomics will be holding an in-person Showcase event at the Kingsgate Conference Centre\, Peterborough. \nAs well as celebrating successes from their transformation projects across a range of cancers\, rare diseases and conditions\, plus how they are helping to support and develop their local NHS workforce\, delegates will also benefit from networking opportunities through their interactive ‘Marketplace’\, hearing from expert guest speakers – including first-hand patient stories – and learning more about: \nhow they are working with partners to increase awareness of\, and access to genomics and genetic testing\ntheir work to reduce health inequalities and improve equity of access to genomic medicine\nspecific work on a range of cancer and rare disease pathways\nawareness raising\, community engagement\, screening and earlier diagnosis to improve detection rates and patient outcomes\nhow they are representing the public and patient voice\nhow they are supporting their local NHS workforce to embed genomic medicine\nthe road ahead: what’s next for genomics in the region?\nPlease note this event will be in-person only\, with no virtual joining option.
URL:https://www.m4rd.org/event/nhs-east-genomics-showcase/
LOCATION:Kingsgate Conference Centre
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2023/03/genomicsshowcase.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230506
DTEND;VALUE=DATE:20230507
DTSTAMP:20260529T223346
CREATED:20230201T135926Z
LAST-MODIFIED:20230201T140105Z
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SUMMARY:Living Rare Forum
DESCRIPTION:Hosted at the Renaissance Downtown Hotel\, the rare disease community will come together in Washington DC for a day of learning\, networking and fun! Hear real stories from the community and gain practical knowledge to help you live your best life while navigating your rare disease journey. \nThe living rare forum is your opportunity to connect with others in the rare disease community. \nBy attending\, you will have access to: \n\nSessions on valuable topics\, such as: Finding and Living Your New Normal with a Rare Disease\, Drug Development for Rare Diseases\, Rare Breakthroughs: Now and On the Horizon\, and more.\nAn opportunity to connect with fellow community members at the Friday welcome reception and Saturday breakfast.\nHot topic discussion lunch tables.\nEvent swag! Register by April 1st to be guaranteed a t-shirt.\n\nCan’t attend in person? You can also attend virtually! \nTo book or to learn more about this event\, visit their site.
URL:https://www.m4rd.org/event/living-rare-forum/
LOCATION:Renaissance Downtown Hotel\, Washington DC
CATEGORIES:Conference,Networking
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2023/02/unnamed.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230510
DTEND;VALUE=DATE:20230511
DTSTAMP:20260529T223346
CREATED:20230426T091158Z
LAST-MODIFIED:20230426T091522Z
UID:10833-1683676800-1683763199@www.m4rd.org
SUMMARY:Patient Centricity and Engagement
DESCRIPTION:29 Industry Leaders From Pharma\, Advocacy Groups & Patients Themselves Share Their Latest Insights Into Driving Forward Patient Engagement Through Embedded Partnerships In Just One Day! \n\n\nAdvanced\, High-Impact\, Value-Adding Strategies For Patient Centricity\, Engagement & Partnerships \n\n\n\n\nDrive End-To-End Patient Engagement & Break Through Longstanding Barriers To Patient Centricity – Effectively Collaborate With Advocacy Groups & Stakeholders To Focus Around The Patient & Their Needs – Embed D&I At The Heart Of Engagement Strategies – Deliver High-Impact Patient Experiences & Digital & Virtual Engagement \nWebsite
URL:https://www.m4rd.org/event/patient-centricity-and-engagement/
LOCATION:Cheshire
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2023/04/Screenshot-2023-04-26-at-10.11.06.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230512
DTEND;VALUE=DATE:20230520
DTSTAMP:20260529T223346
CREATED:20230327T123738Z
LAST-MODIFIED:20230411T093807Z
UID:10769-1683849600-1684540799@www.m4rd.org
SUMMARY:EDIRA Conference: An Inclusive conference about Inclusion
DESCRIPTION:Theme: Diversity- Dialogue and Development!\nIn May\, the United Nations ‘World Day for Promoting Cultural Diversity for Dialogue and Development’ will be taking place. This day will raise awareness about the essential role that intercultural dialogue has\, in bringing positive change. This theme has underpinned the development of the EDIRA conference.\nThe ultimate aim of the EDIRA project is to co-create an inclusive research framework\, which will provide practical guidance for practitioners. \nEquality\, Diversity and Inclusive Research Association (EDIRA) Conference. \n(Greenwich Mean Time: the conference will be held in English). \nIn person in Cardiff\, Wales on 11.30am 12th May 2023. \nOn-line on 11.30am 19th May 2023. (FREE to members of the Community Network). \n  \nIn-person event: https://www.eventbrite.co.uk/e/edira-conference-in-person-edira-campaign-launch-party-tickets-521189250077 \nOnline event: https://www.eventbrite.co.uk/e/565518319517 \n  \n  \n 
URL:https://www.m4rd.org/event/edira-conference-an-inclusive-conference-about-inclusion/
LOCATION:Edira Conference 2023
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2023/03/ediraconference.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230522T073000
DTEND;TZID=Europe/London:20230522T213000
DTSTAMP:20260529T223346
CREATED:20230504T094649Z
LAST-MODIFIED:20230504T094649Z
UID:10859-1684740600-1684791000@www.m4rd.org
SUMMARY:Pint of Science Festival
DESCRIPTION:Our Rare Mind and Rare Body events for the International Pint of Science Festival are now live! \nJoin us for engaging research talks and interactive activities in the pub with leading Cambridge experts on May 22 and 24. \nTo view the full programme click here
URL:https://www.m4rd.org/event/pint-of-science-festival/
LOCATION:Cheshire
CATEGORIES:Conference
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