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SUMMARY:Galactic Genomes: Exploring the Universe of Rare Diseases
DESCRIPTION:“May the fourth be with you!” Cambridge University Rare Disease Society and Cambridge University Genomic Medicine Society are co-hosting a stellar event in Cambridge on Saturday 4 May. \nThe day will feature talks from leading researchers\, rare disease patient voices and representation from more than 15 rare disease organisations\, as well as presentations from a research poster competition. Tea\, coffee and lunch will be provided. \nThe event is free to attend with a £5 deposit\, which will be reimbursed on the day with the completion of a feedback form. \nFor full details of the day and to book your place\, please visit the event page.
URL:https://www.m4rd.org/event/12130/
LOCATION:Cambridge University
CATEGORIES:M4RD
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UID:11475-1715760000-1715878800@www.m4rd.org
SUMMARY:ECRD 2024
DESCRIPTION:The 12th European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest\, patient-led\, rare disease policy-shaping event in which collaborative dialogue\, learning and conversation takes place\, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place. \nLeading\, inspiring and engaging all stakeholders to take action\, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with over 1000 stakeholders in the rare disease community – patient advocates\, policy makers\, researchers\, clinicians\, healthcare\nprofessionals\, healthcare industry representatives\, academics\, payers\, regulators and Member State representatives. \nWith the European elections approaching\, at the inception of a new term for the European Parliament and the European Commission\, the 12th ECRD becomes a key driver in shaping policies to address the unique needs of people with rare diseases and their families over the next\nfive years. \nThe ECRD’s value is underscored by its alignment with EURORDIS’ priorities for the EU elections\, evident in its comprehensive six-session agenda.\nWhat sets the ECRD apart is its integration into broader rare disease policy and healthcare ecosystem efforts. Rooted in the recommendations of the Rare 2030 Foresight Study\, the ECRD continues to build on this comprehensive review of the strategy for rare diseases and shape the thinking of policymakers and the community\, encouraging a more streamlined and proactive approach to addressing the unmet needs of people living with rare diseases and the persisting inequalities across Europe. \nSave the Date: 15 – 16 May 2024\, online and at The Square venue in Brussels
URL:https://www.m4rd.org/event/11475/
LOCATION:The Square Venue\, Brussels
CATEGORIES:Conference
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