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DTSTART;TZID=Europe/London:20250223T093000
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DTSTAMP:20260508T213214
CREATED:20250128T104648Z
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UID:12784-1740303000-1740330000@www.m4rd.org
SUMMARY:Connecting the Dots: Oxford University Student Rare Disease Conference 2025
DESCRIPTION:The Oxford Rare Disease Society (OxRare) and the Sherrington Society are excited to welcome you to “Connecting the Dots” – our first Oxford University Student Rare Disease Conference\, taking place Sunday 23rd February\, 9:30–17:00 at Magdalen College\, Oxford. We’re supported by Medics for Rare Disease and our kind sponsors. \nJoin us for this exciting opportunity to hear from expert speakers at the frontiers of genomics and medical research\, amplify Rare Disease patient voices\, forge new collaborations\, and learn how we can make a positive difference as the doctors and science professionals of tomorrow. \nCall for posters! Students and early career researchers are invited to submit a poster presentation\, with chance to win prizes! Submit your abstracts here: https://forms.gle/D7VBjtYKbQagQmk97 \nIn-person ticket includes FREE tea\, coffee\, delicious lunch and networking drinks. We just ask that you complete the feedback form to receive your Certificate of Attendance and part-reimbursement of the ticket cost. The event is FREE to attend for individuals with lived experience of rare disease. \nNB: Livestream tickets are intended for those joining virtually from outside of Oxford. Those in Oxford are highly encouraged to attend in person to enjoy free refreshments and the opportunity to speak to Rare Disease patient representatives. \nAny questions you can email Linda/Kevin at oxfordrarediseasesoc@gmail.com or Cat/Jake at magdsherringtonsociety@gmail.com. \nGetting here: \nThe closest entry to the Grove Auditorium is through the entrance on Longwall Street (step-free access). Alternatively\, if you enter via the Porters’ Lodge on the main High Street (non step-free)\, they can help to direct you to the Auditorium.\nBy Public Transport: From Oxford Railway Station\, Magdalen College is ~20 min walk\, ~20 min by bus\, and 10 min by taxi. The nearest bus stop for the college is High Street (2 min walk)\, served by buses from the Railway station and by the Oxford Tube.\nBy Car: You may wish to use one of the Park & Rides. The fare includes parking for 16 hours and bus travel into Oxford City Centre https://www.oxford.gov.uk/park-ride
URL:https://www.m4rd.org/event/connecting-the-dots-oxford-university-student-rare-disease-conference-2025/
LOCATION:Magdalen College\, University of Oxford
CATEGORIES:Conference,M4RD
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DTSTART;TZID=Europe/London:20250225T190000
DTEND;TZID=Europe/London:20250225T210000
DTSTAMP:20260508T213214
CREATED:20250121T164111Z
LAST-MODIFIED:20250123T111643Z
UID:12739-1740510000-1740517200@www.m4rd.org
SUMMARY:Rare Disease 101 for Rare Disease Day 2025!
DESCRIPTION:Medics for Rare Disease: Rare Disease 101 for Rare Disease Day 2025! \nJoin us this Rare Disease Day for an engaging and impactful Rare Disease 101 online training session\, reimagined with updated content and a fresh new look ✨. \nRare disease affects 350 million people worldwide\, yet remains underrepresented in medical education. This session is designed to bridge that gap by approaching rare disease as a single discipline\, highlighting the common challenges experienced by impacted people and discussing how to make a difference 💡. \nWhy attend? \n🧠 Gain insights into the fundamentals of rare disease and learn how every healthcare professional can make a difference.\n💬 Hear from the winner of the Student Voice Prize 2024 – more details to be revealed!\n👂 Listen to powerful reflections from a lived-experience advocate\, offering invaluable understanding of what it’s like to navigate the healthcare system with a rare condition. \nThis session is perfect for doctors\, nurses\, and other healthcare professionals\, but it’s open to everyone worldwide\, so don’t miss the opportunity to expand your knowledge and be part of the global conversation on rare disease. 🌍 \n➡️ Secure your spot today! The first 25 sign-ups will receive a NEW rebranded Medics for Rare Disease pin badge – perfect for showing others that you’re Rare Aware! \nMedics for Rare Disease understands that some people may experience barriers to paid attendance. We have therefore reserved a number of FREE general admission tickets. Email helen@m4rd.org to receive the relevant promo code. \nFind out more about Medics for Rare Disease at m4rd.org and take our free e-learning modules at learn.m4rd.org! 🎓
URL:https://www.m4rd.org/event/rare-disease-101-for-rare-disease-day-2025/
LOCATION:ONLINE
CATEGORIES:Webinar
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DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250301
DTSTAMP:20260508T213214
CREATED:20250122T102638Z
LAST-MODIFIED:20250122T102638Z
UID:12753-1740700800-1740787199@www.m4rd.org
SUMMARY:#ShowYourStripes for Rare Disease Day 2025
DESCRIPTION:Calling all healthcare professionals… dig out your stripey socks and get ready to ‘show your stripes’ as we approach Rare Disease Day on 28th February. Medics for Rare Disease is asking clinicians\, allied healthcare professionals and healthcare students to join forces\, to help drive rare disease awareness in the run up to the big day! \nStripey socks and selfies \nGetting involved is easy. Just wear some stripey socks and post a selfie on Instagram or LinkedIn with the hashtag #ShowYourStripes and tag @MedicsForRare. All tagged photos will be uploaded to an online gallery that will remain a visual show of support to those people living with rare conditions. Not on social media? No problem\, just email your pictures to hello@m4rd.org. \nShow off those stripes all week! \nFriday 28th is Rare Disease Day but we encourage you to show your stripes on whatever shifts you may be working that week\, from Monday 24th February! Team pictures and creative selfies are welcome and there will be awards for the most impressive images. For inspiration\, check out last year’s gallery here. \nAwareness is Key \nRare diseases are individually rare but collectively common\, affecting 3.5 million people in the UK. Patients with rare disease face similar challenges\, waiting an average of 5 years to reach diagnosis. Raising healthcare professional awareness about rare disease is key to a timely diagnosis and better outcomes.  \nWhy the stripes? \nThe zebra was adopted as a symbol of the rare disease community. This is thanks to the now archaic medical adage ‘when you hear hooves\, think horse not zebra’\, that still impacts clinical decision-making today. \nShow your support\, #ShowYourStripes!
URL:https://www.m4rd.org/event/showyourstripes-for-rare-disease-day-2025/
LOCATION:ONLINE
CATEGORIES:M4RD,Rare Diseases
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DTSTART;TZID=Europe/London:20250228T120000
DTEND;TZID=Europe/London:20250228T143000
DTSTAMP:20260508T213214
CREATED:20250224T132103Z
LAST-MODIFIED:20250224T132103Z
UID:12855-1740744000-1740753000@www.m4rd.org
SUMMARY:More Than You Can Imagine: Genomics and Rare Disease
DESCRIPTION:Join Central and South Genomics for an insightful webinar in recognition of Rare Disease Day\, where we bring together patients\, healthcare professionals\, and researchers to explore the latest in patient advocacy\, genomics and rare disease. This event is for everyone\, whether you’re from a healthcare background\, have been affected by a rare disease\, or are just keen to learn more. \nThis session will cover key topics\, including: \nUnderstanding rare diseases and genomics – How advances in genetics are shaping diagnosis and treatment.\nEquity & diversity in research – Addressing challenges in representation and access to care.\nPatient experiences – Real-life stories that highlight the journey from diagnosis to treatment.\nNewborn research & pharmacogenomics – The future of personalised medicine.\nSupport networks & advocacy – Connecting patients with resources for ongoing care.\nWe’ll hear from a range of experts\, from clinicians to charity representatives and patient advocates. To view the full agenda\, please click here.  \nIf you have any queries\, please don’t hesitate to get in touch. We look forward to seeing you on 28 February.
URL:https://www.m4rd.org/event/more-than-you-can-imagine-genomics-and-rare-disease/
LOCATION:ONLINE
CATEGORIES:Conference
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DTSTART;TZID=Europe/London:20250228T160000
DTEND;TZID=Europe/London:20250228T180000
DTSTAMP:20260508T213214
CREATED:20250220T114533Z
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UID:12838-1740758400-1740765600@www.m4rd.org
SUMMARY:Spotlight on the Unseen
DESCRIPTION:Join us on Friday\, 28th February\, from 16:00–18:00 at Formby Room\, Cedar House\, University of Liverpool. \nThis seminar is an exciting opportunity to learn from an expert speaker\, hear powerful patient stories\, and explore the crucial role of rare disease awareness in medical education. Refreshments will be provided! \nProgramme Highlights\nRare 101 – An introduction to rare disease\n“Sickle Cell stopped me from studying medicine” – Experience shared by Alicia\n“Living with Chiari Malformation & Syringomyelia” – Insights from Charlotte \nWhy Attend?\nEnhance your clinical knowledge and become Rare Aware! Rare diseases are individually rare but collectively common and share common challenges. Learn about the common themes in the patient experience and how to best support people before\, during and after diagnosis.\nLearn directly from lived experience advocates and connect with Rare Aware peers – Network with others who are passionate about improving rare disease education and care.\nNab some free Medics for Rare Socks – don’t forget to share a picture on social media and tag @MedicsForRare\nReceive a certificate of attendance – just complete our short feedback survey! \nGetting here:\nThe Formby Room\, Cedar House is located within the University of Liverpool’s medical school on Ashton St\, Liverpool L69 3GE. The room is on the ground floor\, ensuring easy access for all attendees.\nBy Public Transport: Cedar House is easily accessible via Liverpool Lime Street Station (~15 min walk) and by various bus routes.\nBy Car: Limited parking is available on campus\, and nearby public parking options can be found. \nFor any questions\, feel free to reach out to Himani hlhsehgal@liverpool.ac.uk or Princess hlpbello@liverpool.ac.uk \n#DareToThinkRare #ShowYourStripes @MedicsForRare
URL:https://www.m4rd.org/event/spotlight-on-the-unseen/
LOCATION:University of Liverpool
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