BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Medics For Rare Disease - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Medics For Rare Disease
X-ORIGINAL-URL:https://www.m4rd.org
X-WR-CALDESC:Events for Medics For Rare Disease
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/London
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20240331T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20241027T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20251026T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20260329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20261025T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250909T100000
DTEND;TZID=Europe/London:20250909T130000
DTSTAMP:20260508T144611
CREATED:20250903T081504Z
LAST-MODIFIED:20250903T081504Z
UID:13669-1757412000-1757422800@www.m4rd.org
SUMMARY:IAG2 Online Workshop
DESCRIPTION:Medics for Rare Disease has a vision of healthcare equity for everyone. We have been working with the Department of Health and Social Care since 2018 in order to achieve our mission. \nWe are hosting this online workshop in order to develop recommendations for the DoHSC about ‘healthcare professional awareness of rare disease’. \nWe will be asking: What is healthcare professional awareness? How do we implement it throughout the NHS? How do we measure it?  If you have practical ideas and suggestions that could inform these recommendations\, WE WANT YOU to join us on the day. \nWho do we want to attend:\n* People who have practical ideas\n* People who have experience of driving system change\n* People who have experience developing services in the NHS\n* People with experience designing and implementing e.g. Dementia Friendly Hospitals\n* Healthcare professionals\, people who work in the NHS and advocates alike! \nThis project (‘IAG2’) is being run by Medics for Rare Disease and Emotive with support from collaborators on the UK Rare Diseases Framework Forum and has been approved by The Department of Health and Social Care. \nKeep in mind:\n* We are not responsible for implementing the recommendations\n* This will not be a forum for exploring single individual’s experiences\n* This will not be a forum for raising concerns or complaints about single cases of care \nAbout IAG2\nListen to this podcast episode to understand the background of the IAG2 and more details about the plan for the day.
URL:https://www.m4rd.org/event/iag2-online-workshop/
LOCATION:ONLINE
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2025/09/IAG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250926
DTEND;VALUE=DATE:20250927
DTSTAMP:20260508T144611
CREATED:20250912T145621Z
LAST-MODIFIED:20250912T145621Z
UID:13677-1758844800-1758931199@www.m4rd.org
SUMMARY:Wales Rare Disease Research Network (RDRN) Inaugural Meeting
DESCRIPTION:Ymunwch â ni ar gyfer cyfarfod cyntaf erioed Rhwydwaith Ymchwil i Glefydau Prin Cymru!  \nJoin us for the very first RDRN meeting!
URL:https://www.m4rd.org/event/wales-rare-disease-research-network-rdrn-inaugural-meeting/
LOCATION:Swansea University Bay Campus\, Fabian Way\, Skewen\, SA1 8EP
ATTACH;FMTTYPE=image/png:https://www.m4rd.org/wp-content/uploads/2025/09/Screenshot-2025-09-12-at-15.55.03.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250930T143000
DTEND;TZID=Europe/London:20250930T150000
DTSTAMP:20260508T144611
CREATED:20251008T143325Z
LAST-MODIFIED:20251008T143421Z
UID:13731-1759242600-1759244400@www.m4rd.org
SUMMARY:Ambassador Welcome Brew
DESCRIPTION:A short\, casual catch-up for Medics for Rare Disease Ambassadors (cohort 2024/25) starting their second year on the Programme. \nThese informal sessions allow the Ambassadors to ask questions of the team and each other and to share experiences and challenges to inspire each other!
URL:https://www.m4rd.org/event/ambassador-welcome-brew-2/
LOCATION:ONLINE
CATEGORIES:Ambassadors,M4RD,Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.m4rd.org/wp-content/uploads/2025/10/https___cdn.evbuc_.com_images_1114015993_530843553353_1_original.jpeg
END:VEVENT
END:VCALENDAR