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X-WR-CALDESC:Events for Medics For Rare Disease
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DTSTART;TZID=Europe/London:20260211T193000
DTEND;TZID=Europe/London:20260211T203000
DTSTAMP:20260501T113147
CREATED:20260109T151523Z
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UID:14372-1770838200-1770841800@www.m4rd.org
SUMMARY:Rarely Taught: Reflections on Rare Disease Training Globally
DESCRIPTION:Connect with healthcare professionals and students from around the world for a dynamic discussion on rare disease medical training across global contexts. \nAs part of this interactive session\, we’ll also deliver a FLASH Rare Disease 101 training showcasing our updated e-learning course – giving you the opportunity to #LearnYourStripes ahead of Rare Disease Day 2026. \n📅 Event Details\nDate & Time: 11 February 2026\, 19:30–20:30 GMT\nLocation: 💻 Online via Zoom\n👉 Register via Eventbrite and receive the Zoom link shortly before the event \n🌐 What to Expect\nA concise\, high-impact Rare Disease 101 teaching session\nA shared conversation on learning needs\, challenges and opportunities in rare disease medical training\nOpportunities to connect with peers worldwide \n🎟️ Who should attend?\nOpen to healthcare professionals and students globally. FREE to attend with optional £10 donation. \nWhether you’re looking to expand your knowledge\, gain a global perspective\, or connect with like-minded colleagues\, this event is the perfect way to kick-start your Rare Disease Day 2026 learning. \n📌 Save the date and register now!
URL:https://www.m4rd.org/event/save-the-date-global-rare-disease-101-online-event/
LOCATION:ONLINE
CATEGORIES:Conferences / Workshops,Global Health,HCPs,Lectures,Medical Students,Rare Disease,Webinar
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DTSTART;TZID=Europe/London:20260226T140000
DTEND;TZID=Europe/London:20260226T153000
DTSTAMP:20260501T113147
CREATED:20260206T101350Z
LAST-MODIFIED:20260206T101350Z
UID:14789-1772114400-1772119800@www.m4rd.org
SUMMARY:When to Suspect a Rare Disease in Any Practice Setting
DESCRIPTION:Join Medscape for a live educational session\, ‘When to Suspect a Rare Disease in Any Practice Setting’\, featuring our very own CEO Lucy McKay.  \nThis live-streamed event will take place on February 26\, 2026\, at 2 PM GMT / 3 PM CET and will explore practical insights to help clinicians recognize when a rare disease may be at play across diverse clinical settings.  \nThe event will be hosted live on Medscape’s social media platforms—no registration is required. Simply follow @Medscape to watch once the event goes live.
URL:https://www.m4rd.org/event/when-to-suspect-a-rare-disease-in-any-practice-setting/
LOCATION:LIVE STREAM
CATEGORIES:clinical,General Practice,Global Health,HCPs,Lectures,Medical Students,Public Engagement,Public health,Rare Disease
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ORGANIZER;CN="Medscape Education Global":MAILTO:aduncan@webmd.net
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DTSTART;TZID=Europe/London:20260227T120000
DTEND;TZID=Europe/London:20260227T140000
DTSTAMP:20260501T113147
CREATED:20260129T141824Z
LAST-MODIFIED:20260129T141824Z
UID:14772-1772193600-1772200800@www.m4rd.org
SUMMARY:More Than You Can Imagine: Genomics and Rare Disease
DESCRIPTION:Join Central and South Genomics for an insightful webinar in recognition of Rare Disease Day\, where they will bring together patients\, healthcare professionals\, and researchers to explore the latest in patient advocacy\, genomics and rare disease. This event is for everyone\, whether you’re from a healthcare background\, have been affected by a rare disease\, or are just keen to learn more. \nThis session will cover key topics\, including:\n* Understanding rare diseases and genomics – How advances in genetics are shaping diagnosis and treatment.\n* History of rare disease – How rare disease diagnosis has changed through time.\n* Patient experiences – Real-life stories that highlight the journey from diagnosis to treatment.\n* Support networks & advocacy – Connecting patients with resources for ongoing care. \nYou’ll hear from a range of experts\, from clinicians to charity representatives and patient advocates.  \nIf you have any queries\, please contact Vicki.Geddes@uhb.nhs.uk
URL:https://www.m4rd.org/event/more-than-you-can-imagine-genomics-and-rare-disease-2/
LOCATION:ONLINE
CATEGORIES:Genomics,Networking,Patient Engagement,Policy & Advocacy,Public health,Rare Disease
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DTSTART;VALUE=DATE:20260228
DTEND;VALUE=DATE:20260301
DTSTAMP:20260501T113147
CREATED:20260114T120713Z
LAST-MODIFIED:20260210T154504Z
UID:14386-1772236800-1772323199@www.m4rd.org
SUMMARY:Rare Disease Day 2026: #ShowYourStripes & #LearnYourStripes
DESCRIPTION:Rare Disease Day 2026 is your chance to stand with the 3.5 million people in the UK living with a rare disease\, and to take one small action that can make a big difference. \nSince 2022\, Medics for Rare Disease has invited healthcare professionals (HCPs)\, medical students and supporters to #ShowYourStripes by wearing stripy socks to spark conversations\, raise awareness and show solidarity with the rare community. \nIn 2026\, we’re going one step further. \nAlongside dusting off your stripey socks\, we’re launching #LearnYourStripes\, a major push to deepen understanding of rare diseases across healthcare and beyond. This year\, we’re asking HCPs not only to show their support\, but to build their rare disease knowledge by completing our 5‑minute Rare Disease training video 🔗 https://www.m4rd.org/rarediseaseday/ \nWhy this matters \nWhile there are thousands of individual rare diseases\, people affected by them face strikingly similar challenges. \n* 3.5 million people in the UK are living with a rare disease\, as many as those living with cancer \n* Patients wait an average of 5 years for a diagnosis\, often being passed between specialists and undergoing unnecessary tests \n* Despite this\, there is no standardised rare disease education in UK medical school curricula or specialty training \n* In a 2023 Medics for Rare Disease study\, 73% of medical students surveyed could not correctly define a rare disease \nGreater rare awareness in healthcare can shorten diagnostic journeys\, reduce patient harm and improve experiences for people living with rare conditions. \nHow to get involved \nIn the week running up to Rare Disease Day (Saturday 28 February 2026)\, we’re inviting healthcare professionals and supporters to: \n1. #ShowYourStripes \n* Wear a pair of stripey socks at work or at home\n* Share a photo on social media using #ShowYourStripes\n* Tag @MedicsForRare to help spread the message \n2. #LearnYourStripes \n* Complete our 5‑minute Rare Disease training video 🔗 https://www.m4rd.org/rarediseaseday/\n* Encourage colleagues\, teams and students to do the same\n* For enquiries about in‑person training\, email: hello@m4rd.org
URL:https://www.m4rd.org/event/rare-disease-day-2026-showyourstripes-learnyourstripes/
LOCATION:Cheshire
CATEGORIES:Global Health,HCPs,Policy & Advocacy,Public Engagement,Public health,Rare Disease
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