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SUMMARY:CamRare's RAREsummit23
DESCRIPTION:A platform for change\nCamRARE’s RAREsummit23 welcomes and unites patients\, advocates\, experts and leaders to address the challenges faced by people affected by rare diseases. By reflecting on progress made\, showcasing best practices and new developments\, sharing knowledge and experience\, and finding ways to work together\, the journey towards better diagnosis\, treatment and support for patients and their families is smoother and more certain.\nOn Thursday 12 October 2023\, we will gather at the Wellcome Genome Campus for our 6th RAREsummit – a flagship CamRARE event gathering 300 great minds in rare diseases to make connections\, exchange ideas and openly debate possibilities. \n“RAREsummit has turned my growing curiosity in Rare Diseases into a reality. I was both able to connect with some amazing people and be inspired by the passion and activity going on throughout this community.”\nThrough RAREsummit23\, we aim: \n\nto raise awareness of rare conditions and their impact\nto showcase exemplars of impactful collaboration between stakeholders\, with patients at the heart\nto bring all stakeholders in rare diseases together as equals to drive patient group\, researcher and industry partnering opportunities\nto give stakeholders the knowledge and skills to ensure their practices involve patients and their advocates as essential partners\nto improve the lives of rare disease patients by working together with greater efficiency\, collaboration and success\n\nWhy attend? Learn something new\, be inspired\, meet people\, add value\, collaborate.\n\nBuild your network with 300 biotechnology\, pharma and startup leaders\, innovators\, patients and patient group CEOs\, healthcare professionals\, policy-makers\, CROs\, researchers\, investors and students assembled.\nMeet\, mingle and hold crucial discussions with potential partners from local and global arenas.\nTake away practical strategies and fresh ideas.\nParticipate in interactive workshops and Dragon’s Den style tech solutions sessions as an innovator or an audience ‘judge’.\nHear from and put questions to key opinion leaders from the patient\, scientific\, industry\, medical\, and policy sectors.\n\nThemes will include:\n\nProgress in diagnostics – where are we now? What does the future hold? Exploring a broad range of diagnostic tools and strategies\nYoung Voices – have we listened? Does the Rare Disease Framework reflect what young people want and need?\nRare researchers’ poster and pitch – showcasing novel academic and translational research\, the bedrock of better understanding.\nExploring funding challenges and opportunities for this vital research\nCan we fix the everyday challenges of rare patients with technology? In collaboration with Eastern Academic Health Science Network – a live Dragon’s Den Tech solution pitching session.\nTurning the research paradigm on its head. Showcasing patient-led research.\nGene therapies – where are we now and what does the future hold?\nPractical workshops – themes emerging …get in touch if you have a proposal or a wishlist!\nNetworking\, Patient Journey and research poster gallery\, exhibits\n\nBook now!
URL:https://www.m4rd.org/event/camrares-raresummit23/
CATEGORIES:Conference
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