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3 item(s) found

Measuring the Impact of the COVID-19 Pandemic on Diagnostic Delay in Rare Disease

Posted 2 years ago

Rare diseases are individually rare but collectively common, with a combined prevalence of 3.5–5.9%. A...

Journals and Articles / 573 views / Popular

Making the Unseen Seen: rare disease and the lessons learned from the COVID-19 pandemic

Posted 3 years ago

At the beginning of the COVID-19 pandemic of early 2020, a group of concerned advocates...

Journals and Articles / 1028 views / Popular

A new approach to shortening the diagnostic odyssey

Posted 4 years ago

People living with rare disease often face a diagnostic odyssey, typically waiting years for a...

Journals and Articles / 1559 views / Popular

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Medics4RareDiseases Ltd is a Charitable Incorporated Organisation (CIO) registered in England & Wales, Registered Charity Number 1183996. M4RD is registered at Companies House as a private company registered by guarantee without share capital, Company Number 11119884. Our registered address is: c/o Analogue Wonderland, Unit 12 Treadaway Technical Centre, Treadaway Hill, Loudwater, High Wycombe, HP10 9RS.

M4RD is currently funded by donations and company sponsorship with unrestricted grants. M4RD does not endorse any companies or products. M4RD is operated independently from these companies and they have no editorial control over M4RD’s content or activities. To find out more click here.

Please note that M4RD does not provide any clinical services and staff are not able to assist in making a diagnosis or clinical referrals. The information on this website is provided for driving awareness and should not be interpreted as or a substitute for professional medical advice.

Recent Posts

My journey applying for the Student Voice Prize by Diya Porwal
16th April 2024
Gallery: First, do no harm – Reflections on a rare bone disease
9th April 2024
We’re Hiring! Apply for our Training Programmes Manager Position
4th April 2024

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