We have worked with some brilliant medical students who are keen to spread the word about rare diseases. As M4RD started out as a group of medical students organising specialist rare disease events we want to help as many medical students as possible to do the same. Organising and running events like this is not only good for the rare disease community but also for continued personal development. Not to mention how impressive it can look in the ol' portfolio.....
If you are a medical student and keen to run a rare event but don't know how or want some help please contact us.
Birmingham Rare Diseases Society, UK
This medical student society was formed in 2016 and works in collaboration with Birmingham Children's Hospital. They have organised events ranging from small extra-curricular lectures to an impressive national Rare Disease Training Day in 2017. They also volunteer in their spare time for The Birmingham Children's Hospital Charity.
Their recent Rare Disease Training Day featured talks about 100K Genome Project, The Diagnostic Odyssey and a patient's experience of using art to help her live with two rare diseases.
Students4RareDiseases Cambridge, UK
Formed in 2016 this medical student society has organised a number of rare disease events. They have worked with The Cambridge Rare Disease Network and Cambridge Biomedical Research Centre. Some of their members have spoken at rare disease event.
One member, Rebecca Nunn, won The Findacure Student Voice Essay in 2017 and spoke at our annual symposium at The Royal Society of Medicine in May 2017. Click here to see her recent interview for Rare Disease Day by Comradis, a rare disease communications agency.
King’s College London Medical Genetics Society
This new society has hit the ground running with lots of events already in the pipeline. Their aim is to promote the specialty of Clinical Genetics in the medical student community of KCL. And how can you love clinical genetics without loving rare diseases?!
They do this work through guest lectures, providing revision materials to medical students and organising social events. They also have a very active instagram account so check them out now. Also follow them on Facebook and visit their website.
Next rare disease event is 3rd December 2018. Find out more here.
M4RD hope to collaborate with this group in March 2019. Make sure you’re signed up to our newsletter so you don’t miss out.
Manchester University Medics Paediatric Society, UK
We are so excited to work with Manchester University's MUMPS group for the first time this year. This society runs events and provides resources for medical students who wish to pursue a career in paediatrics and child health. They understand the huge relevance of rare diseases in this specialty and this year plan to shine a spotlight on rare diseases at their annual conference. For more information visit their website or their Facebook page.
McGill Rare Disease Interest Group (RareDIG) Montreal, Canada
The McGill Rare Disease Interest Group (rareDIG), founded in September 2017, is the first medical student-run rare disease group in Canada and the third such group in North America. We aim to improve the care of patients with rare diseases by sensitising medical trainees. Our goals are to encourage medical students to understand the challenges patients with rare diseases face and adopt attitudes to reduce inequities faced by rare patients; spread awareness of rare diseases among medical students and the general public; create opportunities for patients to share experiences with future medical professionals; and encourage medical students at other universities to develop similar rare disease groups. Our activities include:
patient perspective series
Additionally, rareDIG’s Humans of Rare Disease project and Rare Disease Day, impact the broader community. Visit their website for more information.
UCL Medics4RareDiseases, University College London, UK
Medical Students at UCL and our team have been working together since 2014 when Sam Audet (graduating this year) helped organise The Unusual Suspects: An Afternoon of Rare Diseases at The Royal Society of Medicine. The group are in the process of becoming an official student society and holding an event at the beginning of the next academic year. Natacha will be taking over as president and she is joined by Simon who was a runner up in the Findacure Student Voice Essay Competition 2017.
University of Western Australia
Medical students at UWA have been raising awareness of rare diseases since 2016. They have produced infograms, produced engaging videos and run local events. Our founder, Lucy, even produced a video about our work for them to play in a medical school lecture!
They have strong links with The Undiagnosed Disease Programme, WA (UDP-WA). This programme is the first of it's type in the country and it aims to provide diagnoses to people with undiagnosed complex and long-term conditions.