M4RD
Dare To Think Rare

Privacy Policy

 
M4RD FINAL LOGO .jpg
 

Medics4RareDiseases Ltd Privacy Policy

At M4RD we care about rare. But we also care about your privacy. This Privacy Policy describes how your personal information is collected, used, and shared when you visit www.m4rd.org, contact us or sign up to our e-newsletter.

DEVICE INFORMATION WE COLLECT FROM WWW.M4RD.ORG

When you visit the website, we automatically collect certain information about your device, including information about your web browser, IP address, time zone, and some of the cookies that are installed on your device. Additionally, as you browse the website, we collect information about the individual web pages or content that you view, what websites or search terms referred you to the website, and information about how you interact with the website. We refer to this automatically-collected information as “Device Information”.

The website is powered by SquareSpace. You can read more about how SquareSpace uses your device information here.

HOW WE COLLECT DEVICE INFORMATION

'Cookies' are data files that are placed on your device or computer and often include an anonymous unique identifier. For more information about cookies, and how to disable cookies click here.

'Log files' track actions occurring on the website, and collect data including your IP address, browser type, Internet service provider, referring/exit pages, and date/time stamps.

'Web beacons', 'tags', and 'pixels' are electronic files used to record information about how you browse the website.

WHAT HAPPENS TO YOUR PERSONAL INFORMATION WHEN YOU CONTACT US?

When you contact us via email, phone or social media we will keep contact data so we can fulfil your enquiry. Or to take a course of action we have agreed with you. We only collect data that you have given us which may include: your name, you email address, your telephone number, where you work, your field of work, how and why you got in contact with us or events you have attended. 

STORING YOUR PERSONAL INFORMATION

We store all our data on the GoogleDrive attached to the M4RD gmail account. This service allows us to store all our data in 'The Cloud' rather than on one device or as physical copies in a locked office. Only relevant members of the M4RD board have access to the Drive. All of those who have access to the drive are required to have 2-step-verification for logging in to ensure the safety of your personal information. For more information on Google Cloud's privacy policy click here.

HOW LONG DO WE KEEP YOUR PERSONAL INFORMATION?

We only keep your personal information for as long as necessary. We will also permanently delete your data if requested by yourself. You can request what data we have stored about you and to have it amended or deleted by contacting us using the details at the bottom of this page.

HOW DO WE USE YOUR PERSONAL INFORMATION?

When in line with the preferences you have shared with us, we use your information to provide you with information or advertising relating to rare disease events, resources and opportunities. Our e-newsletter is sent to all those who have opted in to receive it. We may also contact you individually in order to highlight some specific opportunities in your particular area or we think will be of particular interest to you.

We use the Device Information that we collect to help us screen for potential risk and fraud (in particular, your IP address), and more generally to improve and optimise our website (for example, by generating analytics about how our users browse and interact with the Site, and to assess the success of our marketing and advertising campaigns).

SHARING YOUR PERSONAL INFORMATION

We share your personal information with third parties to help us use your personal information, as described above. We do this to improve our website and e-newsletter to make it more relevant to you. We also use Google Analytics to help us understand how our customers use the website. You can read more about how Google uses your personal information here. You can also opt-out of Google Analytics here.

The M4RD email account is powered by GoogleMail. You can view GoogleMail's privacy policy here.

We occasionally send out an e-newsletter to promote, events, news and opportunities for medical students and doctors in training. This is powered by MailChimp who store your personal information including name and email address. They also use device information in order to analyse the success of the campaign and to measure engagement by the audience. All e-newsletters that you will receive provide the opportunity to unsubscribe with an easy-to-use button at the bottom of the email. For more information please view MailChimp's privacy policy here.

We would love medical students and doctors in training to connect with each other in order to spread the word about what we're doing and the relevance of rare diseases in the medical world. To do this we may occasionally make links between our members. We will not pass on your personal information to anyone for this purpose without requesting your permission first.

Finally, we may also share your Personal Information to comply with applicable laws and regulations, to respond to a subpoena, search warrant or other lawful request for information we receive, or to otherwise protect our rights.

DO NOT TRACK

Please note that we do not alter our Site’s data collection and use practices when we see a Do Not Track signal from your browser.

ACCESSING YOUR PERSONAL INFORMATION STORED BY M4RD

If you would like to know what personal information we hold about you and to ask that your personal information be corrected, updated, or deleted please contact us through the contact information at the bottom of this page.

Additionally, if you are a European resident we note that we are processing your information in order to fulfil contracts we might have with you, or otherwise to pursue our legitimate business interests listed above.  Additionally, please note that your information will be transferred outside of Europe, including to Canada and the United States.

CHANGES TO THIS PRIVACY POLICY

We may update this privacy policy from time to time in order to reflect, for example, changes to our practices or for other operational, legal or regulatory reasons.

CONTACT US

For more information about our privacy practices, if you have questions, or if you would like to make a complaint, please contact us by e-mail at lucy@m4rd.org, using the contact page or by post using the details provided below:

8 Silver Street, Dursley, Gloucestershire, GL11 4ND, United Kingdom