Professor Phil Beales gives specific advice for those with Bardet-Biedl Syndrome which is a ciliopathy. He clears up confusion around shielding guidance. Many people with BBS will be considered at risk due to obesity, hypertension diabetes, severe kidney disease and respiratory issues like recurrent chest infections, sleep apnoea, asthma and COPD. he talks through these problems in this video.
Find out more about BardetBiedl Syndrome at the BBS UK website.