Improving Clinical Care Through Learning About the Lived Experience
Karen’s twin sons were both diagnosed with X-linked adrenoleukodystrophy in childhood when Alexander started showing signs similar to dementia. Dr Alexandra Downes was at a paediatrician training event and listened … Continue reading Improving Clinical Care Through Learning About the Lived Experience
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Improving Clinical Care Through Learning About the Lived Experience
Karen’s twin sons were both diagnosed with X-linked adrenoleukodystrophy in childhood when Alexander started showing signs similar to dementia. Dr Alexandra Downes was at a paediatrician training event and listened … Continue reading Improving Clinical Care Through Learning About the Lived Experience