Join our friends at Genetic Alliance UK for this online webinar exploring the future of rare conditions policy across the UK.
The Future for Rare campaign is gathering views from people living with rare conditions, families, healthcare professionals, researchers, charities and industry to help shape what comes after the current UK Rare Diseases Framework. This webinar is an opportunity to hear about the campaign, learn how you can get involved, and contribute to conversations that could influence future policy.
Who should attend?
* Healthcare professionals
* Researchers
* People living with rare conditions and families
* Patient organisations
* Anyone with an interest in improving rare disease care
📅 Date: Wednesday 2 September 2026
💻 Location: Online
🎟️ Registration: Via Eventbrite
This website uses cookies to improve your experience. We'll assume you're ok with this, but you can opt-out if you wish. Cookie settingsACCEPT
Privacy & Cookies Policy
Privacy Overview
This website uses cookies to improve your experience while you navigate through the website. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are as essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may have an effect on your browsing experience.
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Join our friends at Genetic Alliance UK for this online webinar exploring the future of rare conditions policy across the UK.
The Future for Rare campaign is gathering views from people living with rare conditions, families, healthcare professionals, researchers, charities and industry to help shape what comes after the current UK Rare Diseases Framework. This webinar is an opportunity to hear about the campaign, learn how you can get involved, and contribute to conversations that could influence future policy.
Who should attend?
* Healthcare professionals
* Researchers
* People living with rare conditions and families
* Patient organisations
* Anyone with an interest in improving rare disease care
📅 Date: Wednesday 2 September 2026
💻 Location: Online
🎟️ Registration: Via Eventbrite
Details
Venue
Organiser