Rare Disease Patients Need you. Here’s How.

In an ideal world, all healthcare professionals would have an understanding of how many people are affected by rare diseases and what a huge impact having a rare disease has on patients and their families.

We often get asked about how to make teaching about rare diseases mandatory in the medical school curriculum. However with over 7000 rare diseases and an already packed medical curriculum, teaching about every rare disease is unfeasible.

We feel the more realistic solution is that medical students and doctors in training are provided “Rare Disease 101” – what are rare diseases, who do they affect and how can rare disease patients be helped by their doctor? We do this through events, The M4RD Ambassador Programme, social media, our website and our e-newsletter.

If you’re a medical student or doctor in training here’s how you can get involved:

  • Attend our annual symposium | Organised with The Medical Genetics Section of The Royal Society of Medicine, this annual event is a great way to learn about M4RD and rare diseases in everyday medicine. Our next symposium is on 19th February 2020.

  • Organise your own rare disease event | Whether this is at your medical school or hospital – we can suggest topics, help you find speakers and advertise for you.

  • Consider choosing a rare disease talk for your speciality conference | We have some amazing speakers who will be more than happy to share their perspective

  • Peer to Peer Teaching | From medical students to GP trainees, we all have to do it, so why not learn about something different but relevant – “Rare Disease 101” could be the answer!

  • Competitions | Every year we collaborate with the charity Findacure to bring you The Student Voice Essay Competition with fantastic prizes at stake.

  • Become an M4RD Ambassador | If you like what we do and you want to spread the word more about rare diseases you can become an ambassador (this is currently a pilot programme and all places are full). Please sign up to our e-newsletter to find out when new applications are being accepted.

If would like to help us with our mission, please get in touch.

We would love to hear from medical students to consultants and everyone in between

Take a look at some of the groups we've worked with...