The diagnostic odyssey is a term used to describe the long and arduous journey that many rare disease patients find themselves on in pursuit of a diagnosis. The charity, Rare Disease UK, estimate that a patient with a rare disease will wait an average of four years for a diagnosis and be given an average […]
It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. Free to attend, this 2-day festival will shine a light on some successes and innovative solutions that are striving to address this. RAREfest will raise awareness of rare conditions and bring together all stakeholders in the rare disease community alongside the general public […]
Lucy McKay News acromegaly, awareness, Clinical examination, doctor, endocrine, foundation doctors, med school, med student, medical, medical education, medical school, medical student, medicine, opthalmology, OSCE, rare, rare disease, rare disease day
VIDEO: Dan Jeffries, owner of two rare diseases and author of ‘Me, Myself & Eye’, interviewed M4RD Founder Lucy McKay. Watch the video to hear Dan’s interesting story of being diagnosed during an OSCE and to find out what M4RD is all about from the zebra’s mouth.
Lucy McKay News awareness, diagnosis, doctor, doctor in training, doctors in training, foundation doctors, med school, med student, medical, medical education, medical school, medical student, medicine, paediatrics, rare, rare disease, Training
Another brilliant Rare Disease Day. This year we rebranded to Medics4RareDiseases!