A Puff of Smoke Book Launch and Exhibition

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Join Sarah Lippett to celebrate the publication of A Puff of Smoke on the 1st of November 6-9pm at The Centre for Better Health in London.

25 June 2019

Medics4RareDiseases becomes a UK Registered Charity

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Medics4RareDiseases registered as a UK charity who’s object is the relief of sickness and preservation of health of those suffering from rare diseases.

2 June 2019

The Diagnostic Odyssey – A Mother’s Experience

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The diagnostic odyssey is a term used to describe the long and arduous journey that many rare disease patients find themselves on in pursuit of a diagnosis. The charity, Rare Disease UK, estimate that a patient with a rare disease will wait an average of four years for a diagnosis and be given an average […]