A Puff of Smoke Book Launch and Exhibition

Jo McPherson book launch, Diagnostic odyssey, memior 0

Join Sarah Lippett to celebrate the publication of A Puff of Smoke on the 1st of November 6-9pm at The Centre for Better Health in London.

25th June 2019

Medics4RareDiseases becomes a UK Registered Charity

Lucy McKay News, Uncategorised Charity, Charity Commission, Diagnostic odyssey, funding, fundraising, health, healthcare, medical education, medical school, rare disease, sickness, sponsorship 0

Medics4RareDiseases registered as a UK charity who’s object is the relief of sickness and preservation of health of those suffering from rare diseases.

2nd June 2019

The Diagnostic Odyssey – A Mother’s Experience

Jo McPherson congenital, daretothinkrare, disease, interview, patient CSID, Deficiency, diagnosis, Diagnostic odyssey, Diet, Enzyme, Enzyme deficiency, Gastroenterology, Mother, Nutrition, rare, rare disease, Rare reality, Sugar 3

The diagnostic odyssey is a term used to describe the long and arduous journey that many rare disease patients find themselves on in pursuit of a diagnosis. The charity, Rare […]

A Puff of Smoke Book Launch and Exhibition

Medics4RareDiseases becomes a UK Registered Charity

The Diagnostic Odyssey – A Mother’s Experience

Upcoming Events

Rare diseases in primary care – the needles in the haystack (but there are a lot of needles!)

EURORDIS Summer School