Emma Huskinson

About Emma Huskinson

Posts by Emma Huskinson:

22nd September 2026

A Proud Day at Westminster with Rare4Schools

Emma Huskinson Rare Disease Education Children and Young People, education, rare disease, Rare Disease Awareness, Rare4Schools, Westminster 0

Dr Emma Huskinson, Medical Comms Lead, shares her reflections on representing Medics for Rare Disease at the launch of Rare4Schools at Westminster. Tuesday was one of those days that I […]

16th June 2026

Rare Disease Quality Standards QS214

Emma Huskinson Healthcare education, Healthcare policy, Medical Education, Uncategorised Healthcare Policy, NICE, patient care, QS214, rare disease, Rare Disease Care, Rare Disease Quality Standard NICE QS214 Rare Disease Rare Disease Care Healthcare Policy Diagnosis Patient Care NHS

Rare Disease Quality Standards QS214 This year, NICE published the first ever Rare Disease Quality Standard (QS214). This was a huge milestone for the rare community. It was published at […]

Nurses supporting patients with rare diseases on International Nurses Day

13th May 2026

International Nurses Day: Supporting Rare Disease Nursing

Emma Huskinson Healthcare education, Nursing, Rare Disease Global Nursing Network, Healthcare professionals, International Nurses Day, Medics for Rare Disease, nurses, Nursing education, patient support, Rare Disease Awareness, rare disease nursing

It’s International Nurses Day and I would like to do a big shout out to our nursing friends out there! It is so important to recognise the extraordinary contribution nurses […]

24th April 2026

One doctor’s diagnostic odyssey

Emma Huskinson Medical Education, Rare Disease diagnostic delay, Diagnostic odyssey, medical education, Medics for Rare Disease, Patient Story, rare disease, UK healthcare

Doctors are highlighting the serious impact of diagnostic delay on individuals and their families living with rare conditions. Bringing the ‘Five Year Wait’ to life Today Medics for Rare Disease […]

5th March 2026

Thank you all for making Rare Disease Day 2026 our biggest yet

Emma Huskinson Awareness Campaigns, Rare Disease Day Healthcare professionals, Learn your stripes, medical education, NHS Awareness, Rare Disease Awareness, Rare disease community, Rare Disease Day 2026, rare disease education

Sending a huge thank you to all of you who helped to make Rare Disease Day 2026 so incredible. Once again you have overwhelmed us with our support, your creativity […]

28th February 2026

It’s Rare Disease Day!

Emma Huskinson Rare Disease Day Healthcare professionals, Learn your stripes, medical education, Medics for Rare Diseases, patient advocacy, rare conditions, Rare Disease Awareness, rare disease day, Rare Disease Day 2026, show your stripes

Happy Rare Disease Day everyone! We have been astounded by all of the engagement we have received for this year’s campaign already. Don’t forget to post your stripy sock photos […]

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20th February 2026

It’s officially the year of the horse… but remember to listen for zebra-hooves too!

Emma Huskinson Rare Disease Day Healthcare Education, Learn your stripes, medical students, Medical Training, Medics for Rare, Nursing education, patient advocacy, rare conditions, Rare Disease Awareness, rare disease day, Rare Disease Day 2026, show your stripes

Happy Lunar New Year! As we welcome the year of the horse, remember to show some support for their stripey counterparts. As you may know, there is an old rhetoric […]

6th February 2026

Time to Share the Rare… Our New Five Minute Training Video is Available NOW!

Emma Huskinson M4RD Learn, Medics for Rare Disease, Rare Disease 101, Rare Disease Day medical education, rare disease, rare disease day

Medics for Rare Disease’s new, ultra-compact training video is now available to watch here. In the run-up to Rare Disease Day, 28th February, we are striving to get the video […]

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27th January 2026

PRESS RELEASE: Call for healthcare professionals – Take Five Minutes to ‘Learn your Stripes’ for Rare Disease Day

Emma Huskinson Medics for Rare Disease, Rare Disease Day, Uncategorised Learn your stripes, medical education, rare disease, rare disease day, RDD2026

26 January 2026: Medics for Rare Disease today announced the launch of a mini training video that will help HCPs become more ‘rare aware’ in five minutes. Since 2022, the […]

16th January 2026

6 weeks until Rare Disease Day 2026

Emma Huskinson Medics for Rare Disease, Rare Disease Day Healthcare professionals, Learn your stripes, Medics for Rare Disease, NHS, Rare Disease Awareness, Rare Disease Day 2026, Rare Disease Training, show your stripes

Watch this space for the launch of our NEW mini training video and make sure you have your stripey socks at-the-ready because Rare Disease Day is looming! Rare Disease Day […]