Medical Education

16th June 2026

Rare Disease Quality Standards QS214

Emma Huskinson Healthcare education, Healthcare policy, Medical Education, Uncategorised Healthcare Policy, NICE, patient care, QS214, rare disease, Rare Disease Care, Rare Disease Quality Standard NICE QS214 Rare Disease Rare Disease Care Healthcare Policy Diagnosis Patient Care NHS 0

Rare Disease Quality Standards QS214 This year, NICE published the first ever Rare Disease Quality Standard (QS214). This was a huge milestone for the rare community. It was published at […]

24th April 2026

One doctor’s diagnostic odyssey

Emma Huskinson Medical Education, Rare Disease diagnostic delay, Diagnostic odyssey, medical education, Medics for Rare Disease, Patient Story, rare disease, UK healthcare

Doctors are highlighting the serious impact of diagnostic delay on individuals and their families living with rare conditions. Bringing the ‘Five Year Wait’ to life Today Medics for Rare Disease […]

Surgeons in scrubs wearing stripy socks for rare disease day

12th November 2025

Big Plans for Rare Disease Day 2026!

Emma Huskinson M4RD, Medical Education, Rare Disease Day, Uncategorised medical education, Medics for Rare Disease, NHS, rare conditions, rare disease, Rare Disease Day 2026, show your stripes

Get ready to #ShowYourStripes February 28th may seem like a long way off but behind the scenes, Medics for Rare Disease staff are deep in planning mode! It will be […]

5th November 2025

When the Rare is Common: Living with Ehlers-Danlos Syndrome

Jo McPherson Health & Medicine, Medical Education, Patient Stories, Rare Diseases Chronic Illness, EDS, Elhers-Danlos Syndrome, Med Student Life, Misdiagnosis, Patient Story, rare disease, rare genetic condition

When the Rare is Common Hi, I’m Alisha. I’m 26, a medical student, and I have Ehlers-Danlos Syndrome (EDS). Most people haven’t heard of it before, but it’s a rare genetic […]