Patient Story

24th April 2026

One doctor’s diagnostic odyssey

Emma Huskinson Medical Education, Rare Disease diagnostic delay, Diagnostic odyssey, medical education, Medics for Rare Disease, Patient Story, rare disease, UK healthcare 0

Doctors are highlighting the serious impact of diagnostic delay on individuals and their families living with rare conditions. Bringing the ‘Five Year Wait’ to life Today Medics for Rare Disease […]

5th November 2025

When the Rare is Common: Living with Ehlers-Danlos Syndrome

Jo McPherson Health & Medicine, Medical Education, Patient Stories, Rare Diseases Chronic Illness, EDS, Elhers-Danlos Syndrome, Med Student Life, Misdiagnosis, Patient Story, rare disease, rare genetic condition

When the Rare is Common Hi, I’m Alisha. I’m 26, a medical student, and I have Ehlers-Danlos Syndrome (EDS). Most people haven’t heard of it before, but it’s a rare genetic […]