Starting a conversation Back in 2019, Baroness Blackwood spoke at the British Paediatric Surveillance Unit (BPSU) rare disease summer tea party where she stated “we need national debate on rare […]
We believe that asking doctors to #DareToThinkRare is fundamental to improving the experience of all patients living with rare diseases. And to eliminating the diagnostic odyssey. Working together to share […]
We would like to thank all our sponsors and donors for their generous support of M4RD’s 2021 work programme that includes further development of Rare Disease 101 and gathering data […]
M4RD is hiring (again!) We’re looking for someone to become the part-time Medical Communications Officer for M4RD. The successful candidate will be responsible for communications that require a good understanding […]
emotive Reviews ‘The Unusual Suspects’ M4RD has continued to work closely with emotive – an independent, award winning global healthcare communications agency. Emotive were greatly involved in helping us bring […]
You spoke and we listened!! We are pleased to announce that Mystery Disease Monday will be back from Monday 17th May and to mark the start of National Eosinophilic Awareness […]
Written by Dr Thomas Dunne, Trust Grade SHO in Paediatrics & M4RD Clinical Ambassador When reflecting on your experiences of undergraduate medical education on rare diseases, what comes to mind? […]
At the beginning of the COVID-19 pandemic of early 2020, a group of concerned advocates came together to take Action for Rare Disease Empowerment. The group became known as ARDEnt […]
We’re excited to announce the appointment of our new part-time Operations and Finance Manager, Jo McPherson. Many of you will already recognise the name because Jo has been helping out Lucy […]
Richard Lynn has retired after 31 years as the British Paediatric Surveillance Unit’s Scientific Coordinator and M4RD would like to thank him for advocating for those affected by rare disease. Richard started […]
